Life Happenings

I was going to update earlier but that so didn't happen. So now where are we...

Oh I had the best thing ever happen!!! My sister and my mom came over and I was able to go through so much stuff that was downstairs in my unfinished basement that it is walkable again and I have to just go through papers and shred stuff and file stuff!! I am so grateful for my family and everything that they do for me and my family!!! I am going to go to my sisters house and help her go through stuff as soon as I can. I am not sure if it will be before spring, but I am going to do that and that way we can help each other, isn't what this life is for helping others as you live you own life. If I could I would help everyone I know somehow and it would be great!! Life is great when you help other people!

Ok on to other business, yes I took Rhett to see the allergy doctor on the 31st of December and how lucky I am to do so because we have reached our out of pocket max for our family so I didn't have to pay anything for him to see the doctor of have any testing done. Well they did an allergy test which took about 15 minutes and then found out the following... He has some of the exact same allergies that his daddy has some trees and grass, then the sad part... the cat was the biggest and the dog and horse were the next biggest allergy triggers. Oh wait we don't have a horse, dang it I always wanted one. :) Now what to do??? The doctor did suggest a few things, but my biggest thing with everything is that if we gave the animals away then what... is he going to come off oxygen?? No. Is he going to breath easier? A BIG maybe. So what good would be getting rid of the animals be??? He is on all sorts of medicine because of his breathing and that is why it would not make a difference if we got rid of the animals. the doctor did suggest we bathe both animals weekly and get a air purifier for his room and make sure that the cat never goes in that room which she never does anyway since she is scared of the kids.

So now the thinking of what we need to do begins. Man I wish I could just take a break! Is there anyone willing to walk in my shoes for at least a weekend so I wouldn't have to worry about anything and have a free and clean break from all the stresses of real life? Oh no takers, drats ok I figured not but it was worth a shot. :) Rhett is still on 3, 4, and 5 liters of oxygen and is doing ok on that but gets really tired on 3 liters so 4 and 5 are better for him at the moment but the problem is that the portable concentrator we have will only go up to 3 liters and will not go any higher. Plus he is really hating that machine. The oxygen tanks we have go up to 4 liters but they are depleted in less then 2 hours so we have to change them often. The only one that goes to 5 would be his concentrator we have at home and that one is heavy with no battery etc... In other word yeah right so not taking that one to school. We are trying to figure out of he is going to be able to go back to school and I am thinking not just because I don't want to have to stress about him while he is there and I don't want the staff to worry. I mean it is really bad that he is not coming down from a high liter flow! But if I lower him then he desats and that defeats the point of helping him breathe. even on all the meds he is on now the oxygen levels are still staying high, guess we will be seeing a lot of doctors this month etc...

Nikole was crying at the doctors office trying to figure out if she gets to keep her cat that she got from daddy as a birthday present or the puppy they got for Christmas. She was so distraught and there was nothing I could do to help her understand better. Man I feel like an awful parent! How do you explain all of this to a 7 year old who will be turning 8 this month and not have them hate you in the process? Nikole will be going to school tomorrow with Gavin but I will keep Rhett home until I have talked to doctors and have had him seen and stuff like that. Nikole is doing great at school I just hope she is able to keep it up because if not man it is going to be not so good. When she gets into trouble she will say she is a terrible sister and daughter and slams her door. It breaks my heart to see her acting this way and saying stuff like that. :( When she does act this way I tell her how much I love her and let her know that she isn't a terrible person. I let her know that she is a very beautiful girl on the inside and outside and she just needs to show everyone how beautiful she is because people only see the outside. I give her hugs nad tell her that she means a lot to me.

Gavin can't wait for school to start again! He has been out of school for 3 weeks and is so ready to go back. lol He is such a cutie! If there is anything he likes more than school it is video games. Man him and his brother are so much alike! He has been running to me so excited and tells me that he is growing even without his birthdays. :) Then we check it on the measure thing we have and then we see that he has grown and he jumps up and down and gives me big hugs. He is such a cutie, but he is having a hard time because he fights often with Rhett and Nikole and it gets so bad that he says he is a loser which just makes me want to cry. :( It is so hard for him to understand even if he isn't as good at everything as his brother and sister are he is not a loser. But I tell him that everyday. I tell him that he means a lot to me and that I love him very much.

Dylan is so funny! He has started tapping me and then pointing at what he wants from me. LOL!! Then he signs please. He has been signing food for several words, I am not even sure what word he is using food for. :) He will walk around my house all day and sign food. Cracking me up because I have no clue what he wants. He walks around like he owns the place which is funny. I am hoping that the communication with him will improve past food. :) He loves his brothers and sister so much and it is hard if you are feeling bad to keep a straight face when he is in the same room with you. He has a few people coming out to the house to to therapy with him and I am honestly not sure about the times they are coming so I guess I better go look before too long.

This is going to be a long week and I am not looking forward to it at all. I will have to keep everyone posted when we find out things from all the doctors that I have to get in touch with this week.

Hope you all have a wonderful New Year!!!