Well Rhett's back is still looking not so good but what am I suppose to do????
I was thinking of taking him to the ER today but decided that the doctors are clueless when it come to him and I will be taking him to the doctors instead. Wow! Not like that is going to be fun. Maybe I will just call and talk to the doctors. :) Even a better idea!!
They do have video conferencing right? Well why can't I have that same thing??? You have any idea how many appointments that would save me from? A ton!!!
It has been snowing since last night and it is still coming down! Holy COW! I know the ice skating rink out there called roads are going to be super fun to drive on. :) LOL!! Oh okay fine I won't hit anything or anyone when I have to leave. Maybe I will call a sick day. he he he
I am so excited about the Festival of Trees!! I am also sad since I will not be doing a tree this year because I could not find a donor this year. But going to the auction is the BEST!!! Glad that my kids will be home with daddy so I can have some girl time. I think we all need that sometime.
There are many people that I have to call tomorrow and set things up with so I better make a list to make sure they all get done on time. :)
I will post more about Rhett's back when I have more info from the doctors. Hope it will be tomorrow. Let's cross our fingers!
Sunday, November 28, 2010
The latest ER visit
Monday night...
Well of course he didn't get home until almost 5:30 to 6 at night since he is in the after school program.
Rhett started complaining about his shoulder hurting. (He told me that he said something as soon as he came home but I didn't hear him.) We didn't think too much about that since he was at school today and playing like kids normally play. We told him that he should stretch it out and that it would get better.
So we kinda just blew it off.
Just so you know that is never what a parent should do. I know bad parenting on my part. I will do better I am sure of it. :)
So when the clock said that it was almost bed time of course we tell all the kids to go get dressed for bed. Like normal it took us telling Rhett 5-10 times in order for him to actually do it. LOL! Love the 11 year old behavior.
So after he was finished he came out lie he normally does with just pants on. Of course no shirt, it is just like him trying so hard to be what he considers "cool".
Well as he walks past me to see daddy and something on daddy's computer, I see this mark on his back. HUH??? I asked him to come back so I can take a closer look. It is on his left side right at the bottom of his scars from his surgeries. It was around 2 inches in diameter. Very red looking thing.
Soooo... What the heck is this thing???
He is to the point that he cannot even move his arm. GREAT!!! This is not what I wanted! Ok I am sure that he didn't want this either.
Well my husband and I look at each other and said at the same time... ER. So before I start getting ready to leave and take him up to the hospital I look at him and ask him if he wants a blessing.
He tells me, "Yes. Tomorrow."
So then I have to explain to him that I am taking him to the hospital that night and does he want one before we go. He said yes, so I called someone in my ward to come over and give him a blessing. They were there in less than 5 minutes. They gave him a very nice blessing and then we were able to get in the car and head out. Gavin and Nikole each gave Rhett something to remember them by. LOL!! Way funny, but very nice of them.
We head out and get there in about 10-15 minutes. The parking lot is packed so of course I am thinking that the ER is also packed. Well it wasn't! I know surprise to me too.
This is our first visit to the new and improved ER!! Let me tell you it doesn't do anything for me. I guess I am just used to the old one and the new one is just very uncomfortable.
We get back and they are checking him in and getting all of his body info. The person checking him in is very happy that we came in after seeing his back. I know that there is something wrong and I am not sure what it is. They had to take his blood pressure twice since it was high and it didn't even drop very much the second time either. The took us to a room and then we were waiting.
The doctor came and and told us the plan to draw blood to see if it was an infection. I than asked for a x-ray to compare with the last x-ray that he had. They said ok. The tech came in and got Rhett for the x-rays that they needed. To me something looked off. I have seen lots of Rhett's x-rays and this one looked like there was something just not right. After the x-rays we went back to the room and 2 doctors walked in, they said that they came in when we were at x-ray so they just waited until we got back. They took a look at Rhett and then listened to his breathing. They checked out his x-rays and didn't see anything really abnormal. They did say that there was an orthopedic doctor in the ER that night which doesn't happen that often. They paged the orthopedic doctor to come and take a look at him. Of course by then Rhett could move his arm and refused to say anything about hurting. The orthopedic doctor too a look at one x-ray and then said something to the lines of, "Nothing looks wrong. There is no reason to keep you. If there was an infection that would be a reason that we would keep you. Just talk to Dr. Smith tomorrow and then follow up with him." The ER doctors were so much nicer and more understanding then the orthopedic doctor that we saw. They knew that something was wrong and actually came and asked me what I wanted to do. They did say that they could keep him if I wanted them too but they were not sure if that would do any good. I was grateful that they were so nice and understanding after dealing with the orthopedic doctor that isn't our normal doctor.
We decided to go home and get some rest. LOL!! Yeah right like I could rest! Rhett was feeling pretty good.
I later found out that he was acting kind of weird at school not pulling his oxygen like normal and not grabbing the balls that he was playing with like normal either all Monday. Why hadn't anybody called me? Oh yeah it was no big deal. Oh well nothing like waiting to see. We called our doctor Tuesday and left a message with his assistant. Who than in turn left a message with us, LOL! Phone tag got to love it. Well his orthopedic doctor took a look at his x-rays and was able to compare them with the last one and said that nothing has changed. If there were any problems to call. Well I didn't think of it since it was starting to go away at least that is what I thought. I should have been checking it every day but I have forgotten.
So now it is pretty bad and he cannot move his arm again. Well this has been happening off and on since Monday. The bruise type thing is bigger and darker than it was before. Called the orthopedic doctor on call and talked with him. He said to see if we can wait until later the next day to bring him in, but if it gets too bad to bring him in. So we are waiting to see what is going to happen. Gave him some meds and hoped that the pain would go away but heck you never know. I couldn't go to bed until midnight. But I had to get all of this down before I started to forget anything since it was so much.
I will have to do better so that way it is all down. I will have to post pictures of this later when I have time to take some pictures.
When all of this happened to Rhett, Nikole had a break down and was crying like crazy. I asked her what was wrong and why she was crying. She told me that "I thought Rhett wasn't part of our family and now he has to go to the ER." WHAT?!?! What the heck does she mean not part of our family? I tell her that he is always part of our family and no matter what she didn't do anything to him to make him needing to go to the hospital. She needed some hugs and to calm down a little and then I took Rhett.
Oh the way to the hospital I asked Rhett "What did Nikole mean when she said that you were not part of the family?"
Rhett's reply made me laugh. He said "She got mad at me and now I am going to the hospital."
LOL!!!! Being mad at someone is different than thinking that they are not part of our family.
Love my kids they make me smile. :) I will have to post a little later today to update.
Well of course he didn't get home until almost 5:30 to 6 at night since he is in the after school program.
Rhett started complaining about his shoulder hurting. (He told me that he said something as soon as he came home but I didn't hear him.) We didn't think too much about that since he was at school today and playing like kids normally play. We told him that he should stretch it out and that it would get better.
So we kinda just blew it off.
Just so you know that is never what a parent should do. I know bad parenting on my part. I will do better I am sure of it. :)
So when the clock said that it was almost bed time of course we tell all the kids to go get dressed for bed. Like normal it took us telling Rhett 5-10 times in order for him to actually do it. LOL! Love the 11 year old behavior.
So after he was finished he came out lie he normally does with just pants on. Of course no shirt, it is just like him trying so hard to be what he considers "cool".
Well as he walks past me to see daddy and something on daddy's computer, I see this mark on his back. HUH??? I asked him to come back so I can take a closer look. It is on his left side right at the bottom of his scars from his surgeries. It was around 2 inches in diameter. Very red looking thing.
Soooo... What the heck is this thing???
He is to the point that he cannot even move his arm. GREAT!!! This is not what I wanted! Ok I am sure that he didn't want this either.
Well my husband and I look at each other and said at the same time... ER. So before I start getting ready to leave and take him up to the hospital I look at him and ask him if he wants a blessing.
He tells me, "Yes. Tomorrow."
So then I have to explain to him that I am taking him to the hospital that night and does he want one before we go. He said yes, so I called someone in my ward to come over and give him a blessing. They were there in less than 5 minutes. They gave him a very nice blessing and then we were able to get in the car and head out. Gavin and Nikole each gave Rhett something to remember them by. LOL!! Way funny, but very nice of them.
We head out and get there in about 10-15 minutes. The parking lot is packed so of course I am thinking that the ER is also packed. Well it wasn't! I know surprise to me too.
This is our first visit to the new and improved ER!! Let me tell you it doesn't do anything for me. I guess I am just used to the old one and the new one is just very uncomfortable.
We get back and they are checking him in and getting all of his body info. The person checking him in is very happy that we came in after seeing his back. I know that there is something wrong and I am not sure what it is. They had to take his blood pressure twice since it was high and it didn't even drop very much the second time either. The took us to a room and then we were waiting.
The doctor came and and told us the plan to draw blood to see if it was an infection. I than asked for a x-ray to compare with the last x-ray that he had. They said ok. The tech came in and got Rhett for the x-rays that they needed. To me something looked off. I have seen lots of Rhett's x-rays and this one looked like there was something just not right. After the x-rays we went back to the room and 2 doctors walked in, they said that they came in when we were at x-ray so they just waited until we got back. They took a look at Rhett and then listened to his breathing. They checked out his x-rays and didn't see anything really abnormal. They did say that there was an orthopedic doctor in the ER that night which doesn't happen that often. They paged the orthopedic doctor to come and take a look at him. Of course by then Rhett could move his arm and refused to say anything about hurting. The orthopedic doctor too a look at one x-ray and then said something to the lines of, "Nothing looks wrong. There is no reason to keep you. If there was an infection that would be a reason that we would keep you. Just talk to Dr. Smith tomorrow and then follow up with him." The ER doctors were so much nicer and more understanding then the orthopedic doctor that we saw. They knew that something was wrong and actually came and asked me what I wanted to do. They did say that they could keep him if I wanted them too but they were not sure if that would do any good. I was grateful that they were so nice and understanding after dealing with the orthopedic doctor that isn't our normal doctor.
We decided to go home and get some rest. LOL!! Yeah right like I could rest! Rhett was feeling pretty good.
I later found out that he was acting kind of weird at school not pulling his oxygen like normal and not grabbing the balls that he was playing with like normal either all Monday. Why hadn't anybody called me? Oh yeah it was no big deal. Oh well nothing like waiting to see. We called our doctor Tuesday and left a message with his assistant. Who than in turn left a message with us, LOL! Phone tag got to love it. Well his orthopedic doctor took a look at his x-rays and was able to compare them with the last one and said that nothing has changed. If there were any problems to call. Well I didn't think of it since it was starting to go away at least that is what I thought. I should have been checking it every day but I have forgotten.
So now it is pretty bad and he cannot move his arm again. Well this has been happening off and on since Monday. The bruise type thing is bigger and darker than it was before. Called the orthopedic doctor on call and talked with him. He said to see if we can wait until later the next day to bring him in, but if it gets too bad to bring him in. So we are waiting to see what is going to happen. Gave him some meds and hoped that the pain would go away but heck you never know. I couldn't go to bed until midnight. But I had to get all of this down before I started to forget anything since it was so much.
I will have to do better so that way it is all down. I will have to post pictures of this later when I have time to take some pictures.
When all of this happened to Rhett, Nikole had a break down and was crying like crazy. I asked her what was wrong and why she was crying. She told me that "I thought Rhett wasn't part of our family and now he has to go to the ER." WHAT?!?! What the heck does she mean not part of our family? I tell her that he is always part of our family and no matter what she didn't do anything to him to make him needing to go to the hospital. She needed some hugs and to calm down a little and then I took Rhett.
Oh the way to the hospital I asked Rhett "What did Nikole mean when she said that you were not part of the family?"
Rhett's reply made me laugh. He said "She got mad at me and now I am going to the hospital."
LOL!!!! Being mad at someone is different than thinking that they are not part of our family.
Love my kids they make me smile. :) I will have to post a little later today to update.
Thursday, November 25, 2010
Thankful
Today is the day that is set up to help us remember to be thankful.
Like I am not any other time of the year!
Well I am very thankful for my kids. They wanted to earn game time a be able to play, so I told them that they can earn game time if they helped me get the house all clean for the pending party that we had today at our house. So they said ok. I made a list and said that when all of those things are done on the list they can all play their own game. :) I had Nikole cleaning her room, vacuuming her room. Rhett and Gavin were cleaning their room, vacuuming the hall and their room. They got done before I was finished in the bathroom that they went into the living room and cleaned that room and vacuumed that also. Nikole is a good helping when Rhett is vacuuming she makes sure that his oxygen doesn't get stuck, or vacuumed.
Then later that day they helped clean the dining room table and floor getting it all ready. They did it they did everything on the list!!!! They have earned the game time that I promised them! :) So happy!! Then since it was after 9 pm I told them that they will have to play tomorrow since it is way too late. They were ok with that since they all know that they earned their game time. Then Rhett and Gavin started fighting like there was no tomorrow. :( Not a good way to end a great day. Well daddy then decided that they loose their privileges that they were going to to tomorrow. Which sent them all on a crying trip. So now we are headed onto Friday and hope they can get their game time that they earned. :)
We had a wonderful party with family today and I am very grateful for being able to do that.
I am thankful for my friends and the support that they give me and my family.
I am thankful for the warm house that I have to live in.
I am thankful for the yummy food that we got to eat and that I have in my fridge.
I ma thankful for my wonderful husband.
I am thankful for all the doctors that have helped our family over the years.
I am thankful for so much that I cannot even list them all right here.
I hope you all had a very wonderful and safe Thanksgiving.
Like I am not any other time of the year!
Well I am very thankful for my kids. They wanted to earn game time a be able to play, so I told them that they can earn game time if they helped me get the house all clean for the pending party that we had today at our house. So they said ok. I made a list and said that when all of those things are done on the list they can all play their own game. :) I had Nikole cleaning her room, vacuuming her room. Rhett and Gavin were cleaning their room, vacuuming the hall and their room. They got done before I was finished in the bathroom that they went into the living room and cleaned that room and vacuumed that also. Nikole is a good helping when Rhett is vacuuming she makes sure that his oxygen doesn't get stuck, or vacuumed.
Then later that day they helped clean the dining room table and floor getting it all ready. They did it they did everything on the list!!!! They have earned the game time that I promised them! :) So happy!! Then since it was after 9 pm I told them that they will have to play tomorrow since it is way too late. They were ok with that since they all know that they earned their game time. Then Rhett and Gavin started fighting like there was no tomorrow. :( Not a good way to end a great day. Well daddy then decided that they loose their privileges that they were going to to tomorrow. Which sent them all on a crying trip. So now we are headed onto Friday and hope they can get their game time that they earned. :)
We had a wonderful party with family today and I am very grateful for being able to do that.
I am thankful for my friends and the support that they give me and my family.
I am thankful for the warm house that I have to live in.
I am thankful for the yummy food that we got to eat and that I have in my fridge.
I ma thankful for my wonderful husband.
I am thankful for all the doctors that have helped our family over the years.
I am thankful for so much that I cannot even list them all right here.
I hope you all had a very wonderful and safe Thanksgiving.
Monday, November 15, 2010
Long over due
It has been a crazy month for us and without me being able to get it all down earlier I hope I can remember it all.
Well on the 3rd of November we had the care conference for Rhett. We met with 5 doctors including the cardiologist, genetic doctor, orthopedic surgeon, the pulmonologist, and the pediatrician. We also had the school district nurse, and case manager for IHC that we deal with a lot. There was a conference coordinator and us as his parents. I was thinking that we would have only talked for a half an hour since one for the doctors was available at 11 am but not available at 11:30 am. But it didn't go for only a half and hour it was a hour and a half! I was so happy that we were able to get so many thing talked about.
These doctors actually care for Rhett and want the best for him which is wonderful. They did find out that he has no signs of pulmonary hypertension while he is at rest. The pressures in his pulmonary arteries are in the normal range, the high end of normal but normal none the less. Which is great but not great at the same time. That means when ever he exercises of himself in any sort of way, example: walking up stairs, walking through the school, walking at all will elevate his pressures. More so than it would be of a normal person. He is unable to get off oxygen ever where we are at. They would like for us to be able to check him at sea level to see if he can come off of oxygen there. Well that is something to think about. I think it is time that I look into visiting my sister with Rhett and that way I will be able to check Rhett and get more info for the doctors and us. There is no reason that he turns blue even on oxygen but he does. He is still growing as far as the doctors can see, but they are going to keep a close eye on him. There is nothing more that the doctors can do for him that they are already not doing. They suggest that we keep the surgeries going and more tests so that way they can make sure everything is helping him. Which is a sign of relief so that the doctors will have more info to be able to help them with Rhett's care plan. They believe that the surgeries are helping him but I am not so sure. The prognosis of Rhett is still unknown, but there is a chance that he might be able to live with what he has for a while. I am still not sure if I believe them. Rhett has had his hearing aid fixed finally and was way excited to get it back. He is doing well in school. The PE people with the district have been out to see if that can help with Rhett's PE time. They have rigged something up for him to be able to have PE and be free to move without being tethered. He is so excited, but we are still looking at it to make sure it will not hurt him.
Nikole is doing well. She has been told that if she does he homework on time then she will be able to stay in the after school program since she loves that so much. She is still learning that throwing fits is not acceptable. Lucky for me it only happens every other day. LOL! Ok maybe less than that but still, it is frustrating. She is very smart and is shows often. She is great help when she wants to be. Lucky for me she doesn't need to see the cardiologist for another 2 year if I remember right. :) She did have 2 small cavities and had them taken care of at the dentist. She was a super brave girl and held really still and handled it better than some adults. She is getting her homework done more on time than she used to which is GREAT!!! I am so happy that she is doing that much better.
Gavin is doing great in school and even at home he is helping more. He loves playing with Dylan and it is great to see them play so nicely together. There are sometimes that he does pick a fight with his siblings but most of the time it is provoked. :( We have been working on earning game time as a reward to good behavior. Sometimes it works and other times it doesn't work. He is very smart and loves doing homework! I know can you believe it??? Well he does! He loves coming home on Monday and doing it almost all in one day and then he asks me if he had earn game time. :) LOL! Can't see where his mind is huh? We read almost every night before bed. We do read a lot during the weekend. At least a few hours every day Friday, Saturday and Sunday each. He loves going to church and being reverent and kind towards people in church which I have waited for forever. LOL! Ok not really forever but for a very long time.
Dylan is doing well and loves learning. He is signing more which is great!! It is nice to be able to communicate with him more. He has had several ear infections and is dealing with one now which makes me sad to see him suffer. We are suppose to see the ENT but heck he is all booked up for a very long time. I guess we will have to wait and see. Poor kid he seems to have a knack for getting in trouble and also to hurting himself. He is going to be 3 in a month and a half I cannot believe it!! The doctors are fighting for synagis for him. Which are shots to help prevent RSV from being very severe. I pray that the insurance will cover the shots and approve them for him. It would be a whole heck of a lot cheaper than a hospital visit.
I need to tell Les that I am ever so grateful for her and the help that she has giving me. She is such a wonderful woman who is one of the greatest of friends. Yes I am getting to bed earlier thanks to Les!! :) I will be able to update more often thanks ot Les also! So happy!!! :D
Well on the 3rd of November we had the care conference for Rhett. We met with 5 doctors including the cardiologist, genetic doctor, orthopedic surgeon, the pulmonologist, and the pediatrician. We also had the school district nurse, and case manager for IHC that we deal with a lot. There was a conference coordinator and us as his parents. I was thinking that we would have only talked for a half an hour since one for the doctors was available at 11 am but not available at 11:30 am. But it didn't go for only a half and hour it was a hour and a half! I was so happy that we were able to get so many thing talked about.
These doctors actually care for Rhett and want the best for him which is wonderful. They did find out that he has no signs of pulmonary hypertension while he is at rest. The pressures in his pulmonary arteries are in the normal range, the high end of normal but normal none the less. Which is great but not great at the same time. That means when ever he exercises of himself in any sort of way, example: walking up stairs, walking through the school, walking at all will elevate his pressures. More so than it would be of a normal person. He is unable to get off oxygen ever where we are at. They would like for us to be able to check him at sea level to see if he can come off of oxygen there. Well that is something to think about. I think it is time that I look into visiting my sister with Rhett and that way I will be able to check Rhett and get more info for the doctors and us. There is no reason that he turns blue even on oxygen but he does. He is still growing as far as the doctors can see, but they are going to keep a close eye on him. There is nothing more that the doctors can do for him that they are already not doing. They suggest that we keep the surgeries going and more tests so that way they can make sure everything is helping him. Which is a sign of relief so that the doctors will have more info to be able to help them with Rhett's care plan. They believe that the surgeries are helping him but I am not so sure. The prognosis of Rhett is still unknown, but there is a chance that he might be able to live with what he has for a while. I am still not sure if I believe them. Rhett has had his hearing aid fixed finally and was way excited to get it back. He is doing well in school. The PE people with the district have been out to see if that can help with Rhett's PE time. They have rigged something up for him to be able to have PE and be free to move without being tethered. He is so excited, but we are still looking at it to make sure it will not hurt him.
Nikole is doing well. She has been told that if she does he homework on time then she will be able to stay in the after school program since she loves that so much. She is still learning that throwing fits is not acceptable. Lucky for me it only happens every other day. LOL! Ok maybe less than that but still, it is frustrating. She is very smart and is shows often. She is great help when she wants to be. Lucky for me she doesn't need to see the cardiologist for another 2 year if I remember right. :) She did have 2 small cavities and had them taken care of at the dentist. She was a super brave girl and held really still and handled it better than some adults. She is getting her homework done more on time than she used to which is GREAT!!! I am so happy that she is doing that much better.
Gavin is doing great in school and even at home he is helping more. He loves playing with Dylan and it is great to see them play so nicely together. There are sometimes that he does pick a fight with his siblings but most of the time it is provoked. :( We have been working on earning game time as a reward to good behavior. Sometimes it works and other times it doesn't work. He is very smart and loves doing homework! I know can you believe it??? Well he does! He loves coming home on Monday and doing it almost all in one day and then he asks me if he had earn game time. :) LOL! Can't see where his mind is huh? We read almost every night before bed. We do read a lot during the weekend. At least a few hours every day Friday, Saturday and Sunday each. He loves going to church and being reverent and kind towards people in church which I have waited for forever. LOL! Ok not really forever but for a very long time.
Dylan is doing well and loves learning. He is signing more which is great!! It is nice to be able to communicate with him more. He has had several ear infections and is dealing with one now which makes me sad to see him suffer. We are suppose to see the ENT but heck he is all booked up for a very long time. I guess we will have to wait and see. Poor kid he seems to have a knack for getting in trouble and also to hurting himself. He is going to be 3 in a month and a half I cannot believe it!! The doctors are fighting for synagis for him. Which are shots to help prevent RSV from being very severe. I pray that the insurance will cover the shots and approve them for him. It would be a whole heck of a lot cheaper than a hospital visit.
I need to tell Les that I am ever so grateful for her and the help that she has giving me. She is such a wonderful woman who is one of the greatest of friends. Yes I am getting to bed earlier thanks to Les!! :) I will be able to update more often thanks ot Les also! So happy!!! :D
Friday, November 12, 2010
A long few weeks
This has been so hard for me since I have lost my computer. There have been so many things that I need to blog about but I never seem to have the time on the computer to be able to blog. I hope that tomorrow I will have more time since I am falling asleep now. :) I guess that is what happens when you are up for too long huh? I promise to catch you all up ASAP. Thanks for sticking with me through this huge delay in posting.
Monday, November 1, 2010
November
I cannot believe that November is here! It feels like time is flying by and I am jumping days ahead. LOL! I know I missed a few days these last few weeks but when life spins like a bottle you have a tendency to get dizzy.
This cold weather that cannot make up it's mind is driving me CRAZY! I think there should either be a warm or a cold and that it shouldn't flip flop weekly if not daily. It makes kids insane and the stress on the body is a whole new factor that can make you sick if you are not careful.
Rhett is doing good. He has a Cardiac Cath done on Friday and the doctor said that everything looks good. Which is great news but heck that doesn't explain a lot. I asked him then why does he turn blue and he had no answer for that. Also why does he get so tired so quickly with exertion? Again no answer. CRAP! I was hoping for some answers to some of these pressing questions. I guess it is a wait and see thing. He still cannot maintain his SATS and there is really nothing that we can do about that. I am going to ask the doctors about lower elevation to see if that would help. We are thinking about testing that idea but no idea of when we would do that. We had parent teacher conferences this last month and he is above grade level across the board. I wonder if he just likes to take it easy and not push himself to achieve better? I think the only thing that he really needs to work on is some science and language. LOL! That is where he scored the lowest but he above school, district, and state levels across the board!
Nikole is so very high strung. I wish that the drama that she likes to display would leave and then she would be normal. :) Oh well I think it is a girl thing but I don't seem to recall acting the way she does sometimes. She is still struggling to get all her homework in on-time if at all. I have tried everything I can think of to get her to do it as soon as she gets home so she is free to play, read, etc... Yet she has no desire to do anything fun. LOL!! She is super smart and I know it and so does her teachers but she is not willing to show what she can do. It is very frustrating for me. We also had a parent teacher conference for her too and she is also at the top of her class. I cannot find her papers so I am trying to remember what they said. :( I do know that she was also like Rhett across the board being at the top!!
This cold weather that cannot make up it's mind is driving me CRAZY! I think there should either be a warm or a cold and that it shouldn't flip flop weekly if not daily. It makes kids insane and the stress on the body is a whole new factor that can make you sick if you are not careful.
Rhett is doing good. He has a Cardiac Cath done on Friday and the doctor said that everything looks good. Which is great news but heck that doesn't explain a lot. I asked him then why does he turn blue and he had no answer for that. Also why does he get so tired so quickly with exertion? Again no answer. CRAP! I was hoping for some answers to some of these pressing questions. I guess it is a wait and see thing. He still cannot maintain his SATS and there is really nothing that we can do about that. I am going to ask the doctors about lower elevation to see if that would help. We are thinking about testing that idea but no idea of when we would do that. We had parent teacher conferences this last month and he is above grade level across the board. I wonder if he just likes to take it easy and not push himself to achieve better? I think the only thing that he really needs to work on is some science and language. LOL! That is where he scored the lowest but he above school, district, and state levels across the board!
GOOD JOB RHETT!!! So proud of you!!!
Nikole is so very high strung. I wish that the drama that she likes to display would leave and then she would be normal. :) Oh well I think it is a girl thing but I don't seem to recall acting the way she does sometimes. She is still struggling to get all her homework in on-time if at all. I have tried everything I can think of to get her to do it as soon as she gets home so she is free to play, read, etc... Yet she has no desire to do anything fun. LOL!! She is super smart and I know it and so does her teachers but she is not willing to show what she can do. It is very frustrating for me. We also had a parent teacher conference for her too and she is also at the top of her class. I cannot find her papers so I am trying to remember what they said. :( I do know that she was also like Rhett across the board being at the top!!
GOOD JOB NIKOLE!!! So proud of you!!!
Gavin is trying his hardest o be good at school, home, and church. He has learned the system of rewards. LOL! He knows that when he is good he can earn game time and if he isn't then the chances of playing the game are slim to none. :) Love that he has figured it out but what am I going to do when he gets older and that won't work anymore??? I hope I have time to think about that question. He is learning to read and loving it!! I am so happy!! When I am helping him and he is getting frustrated he says will you help me and the only thing I need to tell him right now is to sound it out. After that he can figure the word out that he is looking at and with a big smile on his face reads it. Then he is so proud of himself for figuring it out on his own. One day he will read to Dylan and it will be great! Oh wait he will need to learn to sign it to Dylan unless Dylan can hear then..... ARGH! I will have to think that through but not right now. :) Gavin is doing great in school and I am so happy that he is working so hard to be good and do what is right so he can have fun after wards. LOL!! Thank goodness for the little things in life that make it so nice. He is also at the top of his class!
GREAT JOB GAVIN!!! So proud of you!!!
Dylan is speaking more and more. LOL! OK not really speaking but he is communicating much more with all of us. He is figuring out that he can get things when he signs to us and that makes him a happy camper. LOL! He is such a daddy's boy that it is not even funny how much of a daddy's boy he really is. He screams and cries if he sees daddy leaving and he is not going with him. He would much rather have daddy over mommy right now and I am ok with that as long as I am not the one changing the diapers. LOL!! Daddy has been working with him to get him to sit on the potty and go potty but it is yet to happen. Mostly because he doesn't tell us when he needs to go. Not sure if he even feels it or if he can recognize that. Not sure what they are going to do when he hits 3 and is still not potty trained. I guess it will be a wait and see thing for sure. I have 2 and 1/2 months left of him at home and then it is off to school with him. Dylan is ready to learn and is enjoying the books that I read to him nightly. He likes picking out books with animals and than looking forward to naming the animals. LOL! Very cute to watch! He will learn lots when he starts school for sure.
I think Dylan might be ready for him to start school but I am not sure if I am. :( I wonder if I am going to feel a little lost since my life is so intertwined with my kids. It was hard with all of them going to school for the first time but the problem is that they were all half day when they started and I was home to greet them everyday. I am not sure if I am going to be home and he is going to be going all day not just half day. They will buss him in the morning and afternoon early to late and I am so sad. I am also wondering if it is because Gavin started Kindergarten and I am just not ready to let me baby start preschool the same year. I don't know I am not a psychologist for myself. All I can do is guess and wonder as to why I am feeling all of these emotions. We have a wonderful person helping us fix our car at a great price and hopefully we will get it road worthy again. LOL! I have been driving a time bomb for so long that it will be nice to be able to not have to worry so much about that. Thank you so very much!!! I honestly don't know where we would be without them. I have been enjoying the time I get to read to the kids at night and have them actually enjoy the book too. LOL! They are books that I picked out, so I know that I like them and am willing to read them to my kids. :) Soon I will be going through the Harry Potter series again and the kids will be listening. It is going to be great! I will have to update again soon to let everyone know the info that we get on Rhett. Hopefully it will be useful information and we will know more than we do now.
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