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Well we have had a many new development that has come up in our lives. Last week I had to take Rhett to the ER, he ended up being admitted. We got to our room from the ER at 6 am on Thursday morning. How exhausting! That day they did a PFT(Pulmonary Function Test) and that came back to us 2 days later with not a good reading. We found out from the PFT is that his lungs have not grown in 3 years. So we needed to find out about his heart. the Next day Cardiology came to see us and then gave him an ECHO to see about his heart. They found out that his heart looks great and is doing a good job doing what it does. So we are still waiting for doctors to call us so we can take Rhett in and get it over with. I will have to keep you posted.