Long Month

Holy Cow can we say hospital? I feel like this month I have been up here so very much that it isn't funny. right now I am sitting here typing this in PICU at PCMC. Dylan had a really bad night after surgery. He was so close to being intubated because he was refusing to breathe deep enough to get all the oxygen he needs. Then we found out that his left lung collapsed so he just couldn't breathe deep enough no matter how he tried. We are working him off the bi-pap machine that he had to be on all night. I feel so bad because he is tied to the bed so he doesn't rip it off. What a night, he would still wake up at night screaming and all I could do was pray that his sats were not dropping more. What was meant for an over night hospital stay as just a precaution has now been extended. I hope we can leave tomorrow but there is a chance that we wont.

My little kid has got a great talent that he will gladly share with anyone who wants to learn how to sleep through anything sitting up. :)




You might be able to see it or you might not. He does sleep with one eye opened and one eye closed, due to an earlier surgery. See his closed eye?
















Here is my favorite one that looks so funny. :)



I love my talented little kid! I love all my kids they are wonderful!!!

Some pictures!

Nikole is such a big girl going into 2nd grade! She is a sweet little girl and this is such a great picture of her.



Rhett's first day of school! Can't believe he is old enough to be in 5th grade.




I couldn't make up my mind, these are from Gavin's first day of Pre-K. He loves that color green.





Dylan started walking in September!

No news good news?

So is that saying "no news is good news." actually a good saying? I doubt it! I want information and I want it now! I did finally get a hold of the genetic department and let our genetic counselor know what we have found out. I have yet to actually hear from the doctor himself but heck at least I got a hold of someone. We had another PFT with Rhett and found out that the test results were worse then they were 2 weeks ago. I have tried to get Dylan in for a sleep study and to no avail they have no openings before he goes in for surgery. He is actually going in for surgery in Tuesday the 27th so that is tomorrow. Wow! Time flies when life isn't any fun! Rhett had a sleep study while he was at the hospital and we got the results on Wednesday the 21st. We found out that Rhett really needs to wear a bi-pap to bed because his sleep apnea is so bad that even the oxygen doesn't help him at night. We are getting that machine today! Oh heavens I was going to write tomorrow. I guess that is what I get when I have to update in the middle of the night. I have to try to make it to parent teacher conferences this week too! Oh heavens this is going to be a long week!

My friends and family are such a great support to me while I go through some hard times. It is good to have them here for me. Especially going through such times as these, when life is in the air and it is very emotional.

What is going on

Ok so there have been some drastic changes that are going on here. Rhett health has not been this bad in a long time and now he is needing more medical equipment and time. Because of his breathing problems the doctors are clueless and can't give me the answers that I really need. I posted this info on FB and all of a sudden I was getting help from my friends online. We are all getting ready for Halloween, look and see.

What a month, so glad it is almost over.

Latest and greatest

Well we have had a many new development that has come up in our lives. Last week I had to take Rhett to the ER, he ended up being admitted. We got to our room from the ER at 6 am on Thursday morning. How exhausting! That day they did a PFT(Pulmonary Function Test) and that came back to us 2 days later with not a good reading. We found out from the PFT is that his lungs have not grown in 3 years. So we needed to find out about his heart. the Next day Cardiology came to see us and then gave him an ECHO to see about his heart. They found out that his heart looks great and is doing a good job doing what it does. So we are still waiting for doctors to call us so we can take Rhett in and get it over with. I will have to keep you posted.

Stress can do that

So we had a a horrible thing happen to our family. One of our tenants moved and didn't let us know or anything. I was really really mad! It took 3 1/2 weeks to get it ready and rented. I couldn't believe the mess they left. My heart broke! It was such a stressful time since my house was placed on the back burner and it has taken me forever to try to get it cleaned up, which it still isn't... Oh well at least we found some one that takes renting seriously and will be able to make the payments and not move out on us.

About 2 weeks after all this happening we went with LPA to Ruby Tuesday and had dinner with them. Ok well we tried to have dinner with them. As soon as our dinner was brought to us, Dylan grabbed a piece of shrimp off my plate and started chomping on it. Well he get it in his mouth in a few pieces, and i was watching him closely. He then started trying to throw it up so I raced him to the bathroom trying to get there before he threw it up. Well he ended up screaming and not getting it out. So I thought he must have swallowed it. Was I WRONG! Next thing I know I take him back out of the bathroom and he started to turn blue. I mean blue from head to toe. He almost lost consciousness, he was so close and it took everything we had to keep him slightly awake. He was limp like a rag doll. I told Jaren that he was choking and he told someone to call 911 so we had a few people jump up to help try to get the piece that was stuck out. Well we were pounding on his back trying to get it out without doing physical harm to him. It was so very scary! Finally we dislodged it and walked outside with him waiting for the ambulance to get there because it was still stuck in his little throat. After they arrived he finally was his normal color and was trying to get it out by throwing up again and he got it out!! yeah for him I was so relieved!! Then he was so exhausted that he just passed out. Because of the way he is we did ask to be taken to PCMC and so Dylan and I went for a ride in the ambulance from Draper to PCMC. Jaren stayed at the restaurant with the kids, but basically packed up everything and left with the kids but left the diaper bag. :) At least we were able to retrieve that the next day. We got to the hospital and the monitored him and everything and he just laid there for the longest time until grandma came and then he wanted to play. They took a chest x-ray to make sure his lungs were clear. Well they didn't look as good as they sounded so they wanted to keep him but I told them that I could monitor him at home as well as they could at the hospital. We were able to go home but I did have antibiotics to give him and had to follow up with his doctor on Monday. He is doing ok, but I have made an appointment with the ENT and trying to get in to see how his airway is doing.

Stress can do that to you!

If you have questions please feel free to ask me.

Forever ago

Holy heck!!! It has been forever since I wrote anything. :) I should update this more often. I think I will work on that so that way it won't be old news to everyone that even reads this. So now school has started and I am super busy with 3 kids in school and doing business while the kids are not home, well with 1 kid at home.

Let's see where to start? Oh I know... Nikole is in 2nd grade and loving it. Well kind of, she has been having a hard time with friends, but we are all helping her and it is getting better. she is so smart and she is loving looking pretty and helping me around the house and with Dylan. She is such a sweet girl and I am so blessed to have her.

Gavin is in Pre-k and is giving the teachers a run for their money. He is the only one running around in class and getting into tantrums in class. What is up with that? We had a little chat and I informed him that he had better change his attitude or things might just get really bad for him. He is telling me all the time that he is changing his attitude so that way he is happy and good at school. :) What a good boy, but I wonder if he is just saying that or if he really wants to do it.

Rhett is in 5th grade and is enjoying his class. He is so smart! He got all 4s on his CRT this last spring and the teacher made him a deal last year that if he got all 4s he would take him and a friend to lunch where ever he wanted to go. I am so proud that he did his best! He is a great brother to his siblings that are in school and like to help watch out for them since he is older then them. He is struggling doing homework on time so the school is helping promote doing homework on time and complete so that way he can make a habit of doing that.

Dylan started walking last month and is enjoying the freedom that it has brought to him. He is still very wobbly but making progress. The PT wants to work on helping him do stairs this next time which means that I guess I had better get my house clean. :) He is just loving life at 20 months old and it is loving him back. the kids are all very good to help with him and be such great brothers and sister to him. He is learning lots like how to take toys and sometimes how to share. Also to hit if someone takes what you have without giving it to them. The kids are such great teachers. :)