Well man this last 2 weeks have been a killer with things that we had to do. I hope that it isn't too long for you but hack it was a lot.
For starters I had to take Rhett to the cardiologist Tuesday morning and that was a hard thing to set up since they wanted to wait until the end of the month and I told them that I wouldn't have that and he needed to be seen sooner. So we got in and saw the doctor which I was happy about. The doctor said that Rhett will start to desat in less than 5 minutes. His heart sounded great and his blood pressure is great. So they asked me to come back Wednesday and get a ECHO done and then they would call me with the results. So after I took it him on Tuesday I took him back to school. Then Wednesday right before the ECHO I took all the kids to the Fair to get a hand stamp and that way we could go back after they get out of school and after daddy comes home. So after we went to the Fair I took all the kids but Rhett to school then headed to PCMC to get Rhett's ECHO done. We had the ECHO and then I took him to school. After that the day went pretty fast and the doctors office called me that afternoon and told me that they couldn't get a very good reading on the pressures that he has, but that he does have some flatting of his heart. There was a slight elevation in his pressures that they could measure even though it wasn't a lot. They did tell me that when he does strain his heart and turn blue it does elevate his pressures but no idea how much. Too bad that he does that more and more every week. Then Thursday I had to take him to the pediatrician.to make sure that he was in the loop with what was going on and get his input. He said Rhett looks healthy and hope that all the testing and seeing all the doctors will provide answers that would not be available otherwise. Lucky for me the weekend was a little relaxing.
Then the following week I was grateful that my husband had work off and that we were able to spend the week together. Monday was fun after a meeting that I had first thing in the morning we went bowling. It was so much fun! Of course I am not very good but I hope that I will get better and so I can beat my husband more often. :) LOL! Then we planned our next day. We just had so much fun spending time with each other. So Tuesday was our anniversary! It was so much fun to spend the day together. He took me to a meeting that I had that morning and then we had decided to go hike Mt. Timpanogos, but when we got there we found out that it was closed. I had planned a babysitter for the evening so we had the whole day together. Since we were down that way we decided to hit up some Deseret Industries looking for bowling items since my husband is on a bowling league. We found some bowling balls that we could use and some bowling bags since he wanted me to have my own. LOL!!! We went bowling again that afternoon. Then we went out to dinner and then to a movie. Grabbed some ice cream for us and the babysitter on the way home. It was a great day! Wednesday was a crazy day that we had. We found out Tuesday night that Rhett had parent teacher conferences and the last day was Wednesday between the time school got out and 7 pm. I had called to get Rhett dropped off at the same school Dylan was at and I could pick them up at the same time. There was some communication error and we were told that he was at the other school after I had told them to take him to this school. So as we were going to the other school I called the bus driver to see if he had Rhett, and he told me that he had done what I asked and took him to the same school as Dylan. So then we turned around and drove back to the school and found Rhett. As soon as we got him we headed to the other school for parent teacher conferences there and then head back to the deaf school for their parent teacher conferences. Well there are some classes he is doing great in, but most of them he is figuring out that it takes work to get good grades. He has so much work to make up. It really sucks!!!! We headed home about 7 pm so then at 7:30 pm Rhett was taken to scouts As he was being dropped off I put the other kids to bed and then Rhett came home almost at 10 pm! Crazy late since he does get up about 5:45 am. At this point I felt like I had been hit by a truck. So I took some meds and went to bed.
Thanks to my husband who let me sleep a little longer Thursday than normal. But not really late since I had to be at court by 8:15 am. I was told I had to be there to testify against the man who had broke into my house a year ago. Lucky for me my husband was there to help calm my nerves. I talked to several police officers and they so nice. Lucky for me the man that broke into my house and stole stuff he left his DNA that the police got a match on it, and that person was in the prison when they found out there was a match. Going into the courtroom and having someone from the DA office ask me a whole bunch of questions was very... how do I put this... I was trembling! He was sitting there shackled and there was an officer sitting right behind him. He had that expression of I can get away with anything that I do and I am going to just get a smack on the hand for this. the detective that worked on the case was also there after someone that he works with called him and told him that he had court. Glad that he got there before it was our turn. The Judge decided that there was enough evidence to hold him and charge him with all the things he is being charge for that was just for our case that didn't include the other things he is being charged for. After going to court we went bowling with Mr. Dylan since he was the only one that was not in school. We had so much fun!
Friday was a strange day since there was no school for Rhett and Dylan but not for Nikole and Gavin. Which was good since Rhett had a pulmonary appointment Friday morning since we needed to measure his lung volume to see if his lungs have grown from the last surgery that he had in April. His total lung volume went up a little but I guess it is better than nothing. He had 1.09 February and he now has 1.33. The only problem that I saw was that the other numbers went down. After every blowing test that he had he was blue around his lips and he told the techs that he needed a oxygen break. As soon as we were done at the hospital we went and got the other kids from school and took them bowling. By that time my arm was killing me!! LOL!! I couldn't even bowl normally, he he he. Oh well that is ok.
During this time I have had a cold and it just got worse and worse. Finally by today I am finally starting to feel a little bit better but I am still coughing and my voice sounds horrible. I hope that it goes away and my kids don't get any of it.
Sorry this was a long post but trying to cover everything that has happened in 2 weeks is a little overwhelming. I will be posting more now that there isn't one thing after another I hope. :)
Sunday, September 25, 2011
Monday, September 12, 2011
How much more can I take??
So many thing have happened since I last blogged that I have to play a huge catch up on information.
This past week Rhett has been complaining about his heart hurting meaning that his heart is pounding so hard that he is feeling it through his whole body. At one point I had him check his oxygen levels since he looked pale and was telling me that he was having a hard time. He actually wanted to wear his bypap at 5pm since his heart was pounding. When he checked his oxygen levels he was at 96 and sitting there not moving. I was not happy about that since he is on about 2 liters of oxygen and that for him is A LOT of oxygen. To top that off Friday when I picked him up from school he was completely out of oxygen and around his lips were blue! I was so frustrated with him. He decided not to tell anyone because at the school he was at there was no other oxygen at all. It is a good thing that I carry oxygen around with me just in case things like this happen. But as we left the school we were on the road maybe 10 minutes Rhett just fell asleep in the back of the car because he had been without oxygen for so long that it made him really tired. It is a good thing we are going to be talking to someone soon about this. It is quite scary for me having him do this to me for a whole week.
Nikole is still not doing her homework! What the heck! I am getting not very happy with her. I tell her you are in the after school program so you can get your homework done before you get home. Since as soon as she gets home it is like let's play with my brothers! So happy! So I had to inform her that since she didn't get her homework done that I will have to talk to the after school people and there is a good chance that she will not be able to go. ARGH! Not happy mommy right now.
Gavin is doing great at getting his homework done even though he is in the after school program too. Very cute seeing him come home all happy after fighting with him to get him out the door in the morning. It is good that school is so much fun for him and I hope that he starts loving it and wants to go to school. He does like walking to and from school with Nikole and it is great not having to drive everyday like I had to the many year since Rhett cannot walk that far. I hope that They will walk all year long. :) Happy dance!
Dylan is having a hard time keeping his health good since the weather has been changing radically. It is quite cool in the morning and by the afternoon it is around 80 degrees! So he has caught a cold and his poor nose is green I am going to have to take him into the doctors eventually. But his little bottom is also very sore from his cold. :( It is like we are always having to stay on top of the diapers since he has no want or desire to learn how to use the potty. They are helping at school too but the teacher also tells me that he has no interest in learning. He loves going to school and playing with his friends mostly Autumn. LOL! She is a sweetie and he is so cutie if you ever mention her name he just grins and says that is is his Autumn. :) They are the same age meaning born the same month so they will always be in the same school class which I am very grateful for since they get along so well together.
Finally this past Friday I took my test and PASSED!!! I am so excited! I was scared that I wouldn't pass since there was a lot of grammar and reading things on the test and to be honest I am not very good with things like that. So scary for me as I was taking it I was second guessing myself and and knowing that I am not very strong in those areas. So after I finished the test I made sure that I answered every question but I refused to change any of my answers. I had prayed that I would be able to pass the test and when I was having a hard time deciding what answer to choose I just went with the answer my gut told me to pick. The passing score is 460 and I got 478!!! I did my happy dance and was singing "I like to move it", but then Dylan got mad at me and told me that he likes to move it. LOL! I love how he tries to sing that song.
Now it is a new week and a pretty crazy one here. I will have to post some pictures before I post anymore since it has been a very long time.
This past week Rhett has been complaining about his heart hurting meaning that his heart is pounding so hard that he is feeling it through his whole body. At one point I had him check his oxygen levels since he looked pale and was telling me that he was having a hard time. He actually wanted to wear his bypap at 5pm since his heart was pounding. When he checked his oxygen levels he was at 96 and sitting there not moving. I was not happy about that since he is on about 2 liters of oxygen and that for him is A LOT of oxygen. To top that off Friday when I picked him up from school he was completely out of oxygen and around his lips were blue! I was so frustrated with him. He decided not to tell anyone because at the school he was at there was no other oxygen at all. It is a good thing that I carry oxygen around with me just in case things like this happen. But as we left the school we were on the road maybe 10 minutes Rhett just fell asleep in the back of the car because he had been without oxygen for so long that it made him really tired. It is a good thing we are going to be talking to someone soon about this. It is quite scary for me having him do this to me for a whole week.
Nikole is still not doing her homework! What the heck! I am getting not very happy with her. I tell her you are in the after school program so you can get your homework done before you get home. Since as soon as she gets home it is like let's play with my brothers! So happy! So I had to inform her that since she didn't get her homework done that I will have to talk to the after school people and there is a good chance that she will not be able to go. ARGH! Not happy mommy right now.
Gavin is doing great at getting his homework done even though he is in the after school program too. Very cute seeing him come home all happy after fighting with him to get him out the door in the morning. It is good that school is so much fun for him and I hope that he starts loving it and wants to go to school. He does like walking to and from school with Nikole and it is great not having to drive everyday like I had to the many year since Rhett cannot walk that far. I hope that They will walk all year long. :) Happy dance!
Dylan is having a hard time keeping his health good since the weather has been changing radically. It is quite cool in the morning and by the afternoon it is around 80 degrees! So he has caught a cold and his poor nose is green I am going to have to take him into the doctors eventually. But his little bottom is also very sore from his cold. :( It is like we are always having to stay on top of the diapers since he has no want or desire to learn how to use the potty. They are helping at school too but the teacher also tells me that he has no interest in learning. He loves going to school and playing with his friends mostly Autumn. LOL! She is a sweetie and he is so cutie if you ever mention her name he just grins and says that is is his Autumn. :) They are the same age meaning born the same month so they will always be in the same school class which I am very grateful for since they get along so well together.
Finally this past Friday I took my test and PASSED!!! I am so excited! I was scared that I wouldn't pass since there was a lot of grammar and reading things on the test and to be honest I am not very good with things like that. So scary for me as I was taking it I was second guessing myself and and knowing that I am not very strong in those areas. So after I finished the test I made sure that I answered every question but I refused to change any of my answers. I had prayed that I would be able to pass the test and when I was having a hard time deciding what answer to choose I just went with the answer my gut told me to pick. The passing score is 460 and I got 478!!! I did my happy dance and was singing "I like to move it", but then Dylan got mad at me and told me that he likes to move it. LOL! I love how he tries to sing that song.
Now it is a new week and a pretty crazy one here. I will have to post some pictures before I post anymore since it has been a very long time.
Sunday, September 4, 2011
The end of August
Oh boy the end of August was a very frustrating time for me. I cannot even go into detail about it because so much happened.
Rhett has been trying to get into the swing of things and so far has been doing good at school. He has left his homework till the last minute which is driving me crazy! If he keeps this up I might have to admit myself to the funny farm for sure. He has almost been late for the bus a few times too. ARGH! He is going to give me gray hairs if he doesn't stop this, ok I refuse to get any gray hairs so he better knock it off. His bus driver is amazing! He picks Rhett up first and actually comes to the door to help carry Rhett's things to the buss and make sure that he is on the bus ok. What a great guy! Thanks Ryan! I really wish Rhett would learn to listen better and follow direction but I guess he is at that age where he is just going to do what he wants to do.
Nikole is doing great but has also been leaving her homework till last minute too. NO! Not another child that procrastinates. She is understand more but tells me that she needs help. LOL! It is like mom I need help and when I try she says oh I got it. What a funny girl. She is a great big sister and makes sure Gavin gets too and from school safe and her too. She is doing great nad I know she will get better this year. Nikole did get the teacher that I had requested!! I am so excited!
Gavin is I hope doing good. I forgot to take him in for his testing since they yelled at me the first day of school to let them walk themselves home. Oh man that was bad! I guess I am going to have to talk with his teacher and let her know that I am really sorry that I forgot. Gavin also got the teacher I had requested! YEAH!! I hope that this school year will help him more and more so then emotionally he will be great by summer and have no more melt downs.
Dylan has a new teacher this year and she is really nice. I met with her this past week and talked about all the things that is Dylan that I have noticed at home, since she needed to get some paper work on all the kids that she has only known for about 2 weeks finished. LOL! Like the teacher really knows their kids they teach within 2 weeks of meeting them. I wish the state would give them a little more time to get to know the kids. The school got a new playground since they didn't have one before and it was really cute seeing him run outside and want to play.
So happy that school is back in, for now I guess it might change in a day or two we will have to see.
Rhett has been trying to get into the swing of things and so far has been doing good at school. He has left his homework till the last minute which is driving me crazy! If he keeps this up I might have to admit myself to the funny farm for sure. He has almost been late for the bus a few times too. ARGH! He is going to give me gray hairs if he doesn't stop this, ok I refuse to get any gray hairs so he better knock it off. His bus driver is amazing! He picks Rhett up first and actually comes to the door to help carry Rhett's things to the buss and make sure that he is on the bus ok. What a great guy! Thanks Ryan! I really wish Rhett would learn to listen better and follow direction but I guess he is at that age where he is just going to do what he wants to do.
Nikole is doing great but has also been leaving her homework till last minute too. NO! Not another child that procrastinates. She is understand more but tells me that she needs help. LOL! It is like mom I need help and when I try she says oh I got it. What a funny girl. She is a great big sister and makes sure Gavin gets too and from school safe and her too. She is doing great nad I know she will get better this year. Nikole did get the teacher that I had requested!! I am so excited!
Gavin is I hope doing good. I forgot to take him in for his testing since they yelled at me the first day of school to let them walk themselves home. Oh man that was bad! I guess I am going to have to talk with his teacher and let her know that I am really sorry that I forgot. Gavin also got the teacher I had requested! YEAH!! I hope that this school year will help him more and more so then emotionally he will be great by summer and have no more melt downs.
Dylan has a new teacher this year and she is really nice. I met with her this past week and talked about all the things that is Dylan that I have noticed at home, since she needed to get some paper work on all the kids that she has only known for about 2 weeks finished. LOL! Like the teacher really knows their kids they teach within 2 weeks of meeting them. I wish the state would give them a little more time to get to know the kids. The school got a new playground since they didn't have one before and it was really cute seeing him run outside and want to play.
So happy that school is back in, for now I guess it might change in a day or two we will have to see.
Tuesday, August 23, 2011
Well well well...
When I started this blog it was to help my family (mostly siblings that live really far away) stay up to date on the goings on in my house. Since there are sometimes that we have a really hard time and other time it is great. Also to help other families try to connect. I have been searching for other families like mine. Trying to find people that have what Rhett and Dylan have is very hard to do when we have stumped doctors all over and they are not even sure what the boys have. I was hoping to find someone that could relate. No such luck but I have made many friends and it is nice when there are things going on in my house that is making me crazy I know I have some support. It is nice that I don't have to repeat everything over and over again and I can just let people know they can look here ot find out the goings on.
On a different note....
What have we here? Somebody decided that it was in their best interest to gossip about me. I am very disappointed. I sure hope it was worth it to them.
Rhett was late for school because the time I had was right and the bus driver's time was wrong. LOL! He has got a awesome bus driver. He had to drive over his route again today after he dropped Rhett off to see how long it would take and try to calculate the time with the traffic to see what time he will have to pick up Rhett. I got a call tonight and Rhett is going to have to be picked up about 6:30 am. Oh the mornings that we are going to have here. Two buses and then two kids either walked or dropped off. I almost feel guilty for being happy that I will be childless.
Gavin and Nikole met their teachers and saw where their desks are and also found out who is going to be in their classes with them. They are SO EXCITED!! They have been getting along great together mostly when the other boys are at school and when they have a little problem they actually work it out pretty fast. I witnessed it all day and I was just amazed at how well they played together. I am glad that they have each other. They are happy that there are so many things that they get to do together that they were too small to do before but are now big enough.
On a different note....
What have we here? Somebody decided that it was in their best interest to gossip about me. I am very disappointed. I sure hope it was worth it to them.
Rhett was late for school because the time I had was right and the bus driver's time was wrong. LOL! He has got a awesome bus driver. He had to drive over his route again today after he dropped Rhett off to see how long it would take and try to calculate the time with the traffic to see what time he will have to pick up Rhett. I got a call tonight and Rhett is going to have to be picked up about 6:30 am. Oh the mornings that we are going to have here. Two buses and then two kids either walked or dropped off. I almost feel guilty for being happy that I will be childless.
Gavin and Nikole met their teachers and saw where their desks are and also found out who is going to be in their classes with them. They are SO EXCITED!! They have been getting along great together mostly when the other boys are at school and when they have a little problem they actually work it out pretty fast. I witnessed it all day and I was just amazed at how well they played together. I am glad that they have each other. They are happy that there are so many things that they get to do together that they were too small to do before but are now big enough.
Sunday, August 21, 2011
Oh man!!
Oh man!!! School starts tomorrow for Rhett and Dylan. I am so stressed about it. The school sent me a schedule for Rhett saying that school starts at 7:50 am Mondays and Tuesdays through Fridays school starts at 7:30 am. But the bus coordinator has the schedule is set to have school start at 7:45 am everyday. ARGH! Why can't they send out all the same information?
Last year they had something that the older kids could do after school but this year I was told they didn't. So now I have kids getting out of school at different times but at the same school. I was hoping that Rhett and Dylan could come home on the same bus at the same time. Rhett will be getting out of school at 2:50 pm, but Dylan will not get out until 3:30 pm.
They are also being picked up at different time Rhett for now is going to be picked up at 7:00 am and Dylan will be picked up at 7:45 am even thought school for Dylan doesn't start until 9:00 am.
The schedule for Nikole and Gavin have not changed for a while which is good. Since I know the school time by heart and have no worries about it. I hope that they will be able to walk to school together often this school year. It has been hard for them not being able to ride their bikes or walk to and from school because it was so hard on Rhett we just picked them up and dropped them off 99% of the time. There was that 1% when we walked or rode bikes but it was really hard to since I had to have the bike trailer just for Rhett's oxygen that he was going to need at school. But that is quite sad that we only live 5 blocks away and from the time Rhett started 1st grade to the time he finished we hardly walked over there or even rode our bikes. I hope that can change with just the other 2 going to school there for at least this year.
As for me I am studying for my test that is coming up on September 9th. We are going to pray really hard that I understand what I need to and pass the test. I know I can do it. Wouldn't it be nice if everything worked on faith and faith alone? Ahhhh..... What a life that would be. Oh well it is going to take Faith and lots of practice and studying to make sure that I pass. It is going to be great after I pass. I can hardly wait! Ok maybe that was a little too much excitement. LOL! Just thinking about it freaks me out and makes me worried and stressed so I am trying hard not to think about it too much as you can tell.
Last year they had something that the older kids could do after school but this year I was told they didn't. So now I have kids getting out of school at different times but at the same school. I was hoping that Rhett and Dylan could come home on the same bus at the same time. Rhett will be getting out of school at 2:50 pm, but Dylan will not get out until 3:30 pm.
They are also being picked up at different time Rhett for now is going to be picked up at 7:00 am and Dylan will be picked up at 7:45 am even thought school for Dylan doesn't start until 9:00 am.
Oh the numbers in my head are spinning.
The schedule for Nikole and Gavin have not changed for a while which is good. Since I know the school time by heart and have no worries about it. I hope that they will be able to walk to school together often this school year. It has been hard for them not being able to ride their bikes or walk to and from school because it was so hard on Rhett we just picked them up and dropped them off 99% of the time. There was that 1% when we walked or rode bikes but it was really hard to since I had to have the bike trailer just for Rhett's oxygen that he was going to need at school. But that is quite sad that we only live 5 blocks away and from the time Rhett started 1st grade to the time he finished we hardly walked over there or even rode our bikes. I hope that can change with just the other 2 going to school there for at least this year.
As for me I am studying for my test that is coming up on September 9th. We are going to pray really hard that I understand what I need to and pass the test. I know I can do it. Wouldn't it be nice if everything worked on faith and faith alone? Ahhhh..... What a life that would be. Oh well it is going to take Faith and lots of practice and studying to make sure that I pass. It is going to be great after I pass. I can hardly wait! Ok maybe that was a little too much excitement. LOL! Just thinking about it freaks me out and makes me worried and stressed so I am trying hard not to think about it too much as you can tell.
This is going to be a good week! Positive outlook as you can see.
Monday, August 15, 2011
Clarification..
Ok so I have been told that there are people getting the wrong impression about my knowledge for who my kids are going to have as their teachers this year, meaning Nikole and Gavin. Just to let you all know I have requested certain teachers for them and I have been presuming that my kids will be in the classes that I have requested.
There is nothing in stone and I have not been told that they are or are not going to be in those classes, I am just going with my mind in thinking they are going to be in the classes that I have requested. If they are not then bummer since I worked so hard finding out who the best teachers would be for my kids.
I just wanted to set the record straight that I have not been given any information regarding the school year. I am like all the other parents out there not sure but hoping that my requests have been heard.
Sunday, August 14, 2011
My mind.....
With all the things on my mind there are good days and not so good days. Today was not a good day. Yesterday was different it was a great day. Man sometimes I feel like I am on a roller coaster and there is nothing that I can do to get off or even make it not so up and down.
There are several things happening at the same time in my life and so I cannot focus on just one thing at a time. The kids are starting school next week and I am happy that they will be going back I just need to make sure that I have something that I can do while they are at school to help pass the time. I am going to miss them while they are gone but I will not miss the fighting and the not listening. the owner of the buses that will be taking Rhett and Dylan to school called to let me know that they have to make sure the oxygen is attached to the bus while he is taken to school and returned home. But I have not heard back from him and school starts in a week! He better give me a call soon so we can get this taken care of before school starts.
Rhett is suppose to be on Flovent 2 times a day but he is just not doing it. We are going to be going in for a Pulmonary Function Test (PFT) soon, but the doctor thinks that the Flovent will help improve the results of the PFT. I highly doubt that but whatever. I got the medicine and he isn't using it, GRRR! That was $120! I told him when I brought it home that he better use it all but ARGH! Not like I can tie him down and force him to use it.
There are many people that will see Rhett at an event that we go to with Hope Kids and/or Angel's Hands Foundation. They always think that he is a such a great kid. Which he is but sometimes it goes to his head and then he feels like it is all about him. LOL! That is Rhett for you. Give him a inch and he takes a yard.
Thanks to Angel's Hands Foundation we were invited to a Monster Truck show just yesterday and it was so much fun! The kids even had a lot of fun. To only problem was that we didn't know the thing that they put on the oil when it spills is toxic! What the heck! They kept repeating over and over again that any eye contact with the dust from it should be treated by the medics. Oh that is great what if it is inhaled? They never said anything, but my lungs felt horrible last night and most of the day today. I also had a sick child this morning even though we left before it was all over. Our family had such a great time! We have never been to an event like that before and all the kids liked it except for maybe Nikole, but she did have fun. LOL! Thank you Angel's Hands Foundation! You can see more about them at angelshands.org they have a new site. It looks great.
There are things that I would love to write to help get them off my mind but I cannot seeing as I don't need the wrong people reading it. I know most of the people that read this really care and are such an amazing support to me. I am grateful for all the support and love that I get from those that have been following my blog. Thank you.
There are several things happening at the same time in my life and so I cannot focus on just one thing at a time. The kids are starting school next week and I am happy that they will be going back I just need to make sure that I have something that I can do while they are at school to help pass the time. I am going to miss them while they are gone but I will not miss the fighting and the not listening. the owner of the buses that will be taking Rhett and Dylan to school called to let me know that they have to make sure the oxygen is attached to the bus while he is taken to school and returned home. But I have not heard back from him and school starts in a week! He better give me a call soon so we can get this taken care of before school starts.
Rhett is suppose to be on Flovent 2 times a day but he is just not doing it. We are going to be going in for a Pulmonary Function Test (PFT) soon, but the doctor thinks that the Flovent will help improve the results of the PFT. I highly doubt that but whatever. I got the medicine and he isn't using it, GRRR! That was $120! I told him when I brought it home that he better use it all but ARGH! Not like I can tie him down and force him to use it.
There are many people that will see Rhett at an event that we go to with Hope Kids and/or Angel's Hands Foundation. They always think that he is a such a great kid. Which he is but sometimes it goes to his head and then he feels like it is all about him. LOL! That is Rhett for you. Give him a inch and he takes a yard.
Thanks to Angel's Hands Foundation we were invited to a Monster Truck show just yesterday and it was so much fun! The kids even had a lot of fun. To only problem was that we didn't know the thing that they put on the oil when it spills is toxic! What the heck! They kept repeating over and over again that any eye contact with the dust from it should be treated by the medics. Oh that is great what if it is inhaled? They never said anything, but my lungs felt horrible last night and most of the day today. I also had a sick child this morning even though we left before it was all over. Our family had such a great time! We have never been to an event like that before and all the kids liked it except for maybe Nikole, but she did have fun. LOL! Thank you Angel's Hands Foundation! You can see more about them at angelshands.org they have a new site. It looks great.
There are things that I would love to write to help get them off my mind but I cannot seeing as I don't need the wrong people reading it. I know most of the people that read this really care and are such an amazing support to me. I am grateful for all the support and love that I get from those that have been following my blog. Thank you.
Friday, August 12, 2011
Let's think
Ok so I know it has been a while but things are snowballing here. we are down to less then 2 weeks before school starts. I am so super excited to have the kids going back that I cannot stand it.
Rhett, Nikole, Gavin, Dylan and daddy all went to my family reunion since I had other obligations and couldn't make it. They had a blast and I was glad to have some quite time at night. They left Friday while I was busy and made their way to my aunt house in Idaho. I missed them but seeing the pictures that people took was great! How I love my family!! I was glad that they were able to go even though I couldn't go. They did some service projects and many other things Saturday and then came home Sunday. They got home around 4:30pm Sunday and I was so happy that they had made it home safely.
I have registered all 4 kids for school and am waiting to hear back from the transportation company that will be taking Rhett to and from school since he needs to have oxygen. I heard from them once but haven't since then. I think I will call them and see what I can do since there is less than 2 weeks before he has to go. We are thinking about getting the portable oxygen concentrator out making sure it works and then having him take that. But the only problem that I have with that is the battery would die often and he wouldn't plug it in and charge it. It makes me so mad that he thinks he can do whatever he wants even though it make breathing really hard and he will also turn blue very quickly. Oh the stress he puts on me.
I informed Nikole and Gavin who their teachers were and they were happy to know that their classes are going to be next to each other. I am happy that I only have to go to one door to drop them off. I am glad that they are actually happy to start school again.
I asked Dylan if he wanted to see Autumn and his other friends at school. He looked at me like I was crazy and then when he saw school his face lit up and he nodded. At least he is happy about school even though he is only 3 years old still.
Now all I have to do is get them on a schedule before school starts so they are getting enough rest at night in order to function through the day. That has been a bit of a challenge more so than thought it would be. Mostly because Rhett is now 12 and wants to do what other kids do and be up all hours of the night. ARGH! That child can push some buttons and needs to learn that he cannot get away with that.
I have the camera it is just hard getting the pictures off but as soon as I do I will be playing catch up with pictures.
Rhett, Nikole, Gavin, Dylan and daddy all went to my family reunion since I had other obligations and couldn't make it. They had a blast and I was glad to have some quite time at night. They left Friday while I was busy and made their way to my aunt house in Idaho. I missed them but seeing the pictures that people took was great! How I love my family!! I was glad that they were able to go even though I couldn't go. They did some service projects and many other things Saturday and then came home Sunday. They got home around 4:30pm Sunday and I was so happy that they had made it home safely.
I have registered all 4 kids for school and am waiting to hear back from the transportation company that will be taking Rhett to and from school since he needs to have oxygen. I heard from them once but haven't since then. I think I will call them and see what I can do since there is less than 2 weeks before he has to go. We are thinking about getting the portable oxygen concentrator out making sure it works and then having him take that. But the only problem that I have with that is the battery would die often and he wouldn't plug it in and charge it. It makes me so mad that he thinks he can do whatever he wants even though it make breathing really hard and he will also turn blue very quickly. Oh the stress he puts on me.
I informed Nikole and Gavin who their teachers were and they were happy to know that their classes are going to be next to each other. I am happy that I only have to go to one door to drop them off. I am glad that they are actually happy to start school again.
I asked Dylan if he wanted to see Autumn and his other friends at school. He looked at me like I was crazy and then when he saw school his face lit up and he nodded. At least he is happy about school even though he is only 3 years old still.
Now all I have to do is get them on a schedule before school starts so they are getting enough rest at night in order to function through the day. That has been a bit of a challenge more so than thought it would be. Mostly because Rhett is now 12 and wants to do what other kids do and be up all hours of the night. ARGH! That child can push some buttons and needs to learn that he cannot get away with that.
I have the camera it is just hard getting the pictures off but as soon as I do I will be playing catch up with pictures.
Monday, August 1, 2011
WOW long time
Ok so I know that it has been a while since I posted. I am really sorry. Things have been crazy busy here. After Nikole's pageant, was Gavin's birthday and the day after that we headed out to a family reunion in Las Vegas. That was quite a trip.
Thursday was Gavin's 6th birthday. He had a blast! The house was all clean and of course I didn't get too much sleep trying to make sure the house was clean and decorating and getting ready for our trip all in one. We had his party where I had rapped all of his gifts and then put them in a big box and rapped the big box. It was great to see him all excited about being 6 and is now very excited to start 1st grade too. We actually ran out of cake and ice cream which was quite sad since he didn't get any because he was busy opening presents and didn't want any at the time. Oh well there is always later right? :)
We left here Friday after work and got there around 3 am Utah time and 2 am Vegas time. I was saying weird things and so not able to drive since I hadn't gotten a good nights sleep in a few days prior to leaving.But after we got there we slept in the next day and then went swimming first thing in the morning which the kids loved. We actually swam everyday that we were there and I was sad to realize how much I miss swimming. We met with family and had a great time. We walked around some of downtown and saw many things and got a whole bunch of pictures I just have ot find the camera.
We left Vegas Wednesday to come home since Rhett and daddy were planning on going to scout camp Thursday morning. We made it home before midnight which was great and Rhett was able to pack everything he needed or more like everything that we had that he needed to take with him.
Thursday was a busy morning and then came to a stop. LOL! As I was helping them get ready to leave Rhett tells us that he doesn't want breakfast and he was coughing quite a bit. Which is a sign that he is having a asthma attack. :( Not a good way to start off scout camp. I give him his Flovent and his Albuterol and sent the inhalers with him. I was still worried and said a pray hoping that I didn't get any phone calls the rest of the day. Good thing he is already on oxygen and that daddy was with him. After the boys made sure they had everything they were off and me and the other kids stayed home which I was happy to do since I was so very tired from our trip. We all veggied and cleaned up from our trip which was easy since most of the clothes that they took with them were clean thanks to the washer and dryer that we had in our condo/hotel. Later my mom came over to watch my kids, but then I get a call telling me that Rhett and daddy were headed home and he would be able to have all the kids while I went to work. It was great to have that time with adults. It worked out great! Rhett had a great time and had stopped coughing after being up there for a little while. He did need his inhalers at least one more time, but that was it. Glad that Thursday was over.
Friday was a little different since it was the day that Rhett was going to be spending the night at scout camp and I was scared to death! I was worried since this was his first overnight event with out me being there and I had a hard time with it. No wonder I couldn't sleep very good. They packed up a tent sleeping bags and everything that they were going to need for at least 2 days. Man was a I mess. I probably didn't look it I guess it was because I just told myself not to think about it. I went to work and my parents had the other kids until I got off work and then I took all of them out to a play at the Off Broadway Theater. It was great to get out and get my mind off of not having Rhett or daddy home. I can handle not having daddy home since he does travel for work some times but not having Rhett was another thing. He has always been with me and it get hard not knowing if everything is ok or if he is waking up or if if if..... It is like a million things that could happen and I wasn't there to make sure or know anything about it.
Saturday was a hard morning for us all. the other kids were not feeling great and I was just stressed to say the least so the plans we made fell through since I didn't want to take any type of sick kid out. Lucky for me they got over it by lunch time and were ok the rest of the day. I have 3 kids all playing nice and making sure the house was clean and just playing it was great! There was a whole bunch of peace in my house. Rhett and daddy came home around 1 pm and then we had a whole yard to care for since we have been very neglectful. LOL! That is what happens when you have to take care of yourself and not the house. We got some of it done and then I got sick from the heat and was done for the day. I let the kids play outside on the slip and slide that Gavin got for his birthday. Then we went and got some cute clothes for our new niece right before we went to dinner with the scouts. I never know scouts were so weird. I guess it is a boy thing. LOL! It was great seeing Rhett with these boys that he was at camp with and seeing for myself that he was being treated like one of them. Made me smile to see that they treated him nice and it was the same for all of them. They were being nice to each other which was great. After we were finished we went and said hi to my sister in law and saw her new baby and the rest of the family. After coming home I decided to give the boys hair cuts and started with Gavin. After I was finished Dylan was eager to jump in and be second to have his done and of course Rhett didn't want his done but got it all cut off anyway. Then I made them all jump in the shower and make sure they all got clean. It was great to have them clean and with hair that is not blocking their ears. :) While I cut their hair daddy went out and finished up cutting the grass. The yard looks so much better then it did.
I found the camera but I have not gotten the pictures off of it yet so as soon as I do I will post some pictures to show you our grand month of July.
Thursday was Gavin's 6th birthday. He had a blast! The house was all clean and of course I didn't get too much sleep trying to make sure the house was clean and decorating and getting ready for our trip all in one. We had his party where I had rapped all of his gifts and then put them in a big box and rapped the big box. It was great to see him all excited about being 6 and is now very excited to start 1st grade too. We actually ran out of cake and ice cream which was quite sad since he didn't get any because he was busy opening presents and didn't want any at the time. Oh well there is always later right? :)
We left here Friday after work and got there around 3 am Utah time and 2 am Vegas time. I was saying weird things and so not able to drive since I hadn't gotten a good nights sleep in a few days prior to leaving.But after we got there we slept in the next day and then went swimming first thing in the morning which the kids loved. We actually swam everyday that we were there and I was sad to realize how much I miss swimming. We met with family and had a great time. We walked around some of downtown and saw many things and got a whole bunch of pictures I just have ot find the camera.
We left Vegas Wednesday to come home since Rhett and daddy were planning on going to scout camp Thursday morning. We made it home before midnight which was great and Rhett was able to pack everything he needed or more like everything that we had that he needed to take with him.
Thursday was a busy morning and then came to a stop. LOL! As I was helping them get ready to leave Rhett tells us that he doesn't want breakfast and he was coughing quite a bit. Which is a sign that he is having a asthma attack. :( Not a good way to start off scout camp. I give him his Flovent and his Albuterol and sent the inhalers with him. I was still worried and said a pray hoping that I didn't get any phone calls the rest of the day. Good thing he is already on oxygen and that daddy was with him. After the boys made sure they had everything they were off and me and the other kids stayed home which I was happy to do since I was so very tired from our trip. We all veggied and cleaned up from our trip which was easy since most of the clothes that they took with them were clean thanks to the washer and dryer that we had in our condo/hotel. Later my mom came over to watch my kids, but then I get a call telling me that Rhett and daddy were headed home and he would be able to have all the kids while I went to work. It was great to have that time with adults. It worked out great! Rhett had a great time and had stopped coughing after being up there for a little while. He did need his inhalers at least one more time, but that was it. Glad that Thursday was over.
Friday was a little different since it was the day that Rhett was going to be spending the night at scout camp and I was scared to death! I was worried since this was his first overnight event with out me being there and I had a hard time with it. No wonder I couldn't sleep very good. They packed up a tent sleeping bags and everything that they were going to need for at least 2 days. Man was a I mess. I probably didn't look it I guess it was because I just told myself not to think about it. I went to work and my parents had the other kids until I got off work and then I took all of them out to a play at the Off Broadway Theater. It was great to get out and get my mind off of not having Rhett or daddy home. I can handle not having daddy home since he does travel for work some times but not having Rhett was another thing. He has always been with me and it get hard not knowing if everything is ok or if he is waking up or if if if..... It is like a million things that could happen and I wasn't there to make sure or know anything about it.
Saturday was a hard morning for us all. the other kids were not feeling great and I was just stressed to say the least so the plans we made fell through since I didn't want to take any type of sick kid out. Lucky for me they got over it by lunch time and were ok the rest of the day. I have 3 kids all playing nice and making sure the house was clean and just playing it was great! There was a whole bunch of peace in my house. Rhett and daddy came home around 1 pm and then we had a whole yard to care for since we have been very neglectful. LOL! That is what happens when you have to take care of yourself and not the house. We got some of it done and then I got sick from the heat and was done for the day. I let the kids play outside on the slip and slide that Gavin got for his birthday. Then we went and got some cute clothes for our new niece right before we went to dinner with the scouts. I never know scouts were so weird. I guess it is a boy thing. LOL! It was great seeing Rhett with these boys that he was at camp with and seeing for myself that he was being treated like one of them. Made me smile to see that they treated him nice and it was the same for all of them. They were being nice to each other which was great. After we were finished we went and said hi to my sister in law and saw her new baby and the rest of the family. After coming home I decided to give the boys hair cuts and started with Gavin. After I was finished Dylan was eager to jump in and be second to have his done and of course Rhett didn't want his done but got it all cut off anyway. Then I made them all jump in the shower and make sure they all got clean. It was great to have them clean and with hair that is not blocking their ears. :) While I cut their hair daddy went out and finished up cutting the grass. The yard looks so much better then it did.
I found the camera but I have not gotten the pictures off of it yet so as soon as I do I will post some pictures to show you our grand month of July.
Wednesday, July 20, 2011
Be prepared!
Here is a great opportunity for everyone to come and learn what they can do to help their families in case there was an emergency. It is always good to be prepared.
Please save the photo and come and learn lots of stuff that I am sure will help. Fun things and a great way to learn new things even if you think you already know everything.
Monday, July 18, 2011
NAMISS Pageant Saturday!
Gratefully Saturday was not as crazy busy as Friday was at least I think. LOL!! The worst of it was that we had to be there by 7:30 am. But it was the whole family so we all had to wake up very early and we did! We made in time! Then Nikole had to do her personal introduction at 8:00 am. That is where she had to get up and introduce herself and tell a little bit about herself.
She did great and I am so proud of her!!! After she got up and introduced herself they had all the young girls including her go and do interviews which is where she sat down with a judge one on one and talked with them. We were not able to see that or be able to support her except from a distance. When she came back to the room where we were waiting we all cheered and and I gave her a big hug and told her how proud I was of her.
After that we had a little break and was able to go get some breakfast since of course none of us had eaten anything before we left the house. We were lucky that the next time she had to be somewhere was at 11:30 am to practice her dance number for the final pageant.
Well she just didn't want to wait so I took her in and got her ready while daddy stayed with the boys and did some stuff with them. After she was changed and ready we still had 1 1/2 hours to kill before the practice. So we went in the hall and found some of the other parents that had girls that were her age and in her group. They sat there and played and when they were not sitting there they were running around. LOL! Thank goodness for technology! We had a great time visiting. It was too bad that we couldn't do that too much before, since Nikole had to pick out who she thinks would be Miss Personality in her age group. But they had a lot of fun running around and playing.
Then they had to get to the room where they were to practice that dance. Here are a few picture from the practice. She doesn't know how to dance very good but she gave it her best.
After that I was at her side the whole time and had to give the camera to daddy and he got the rest of the pictures until we left and got home. Here are some of the pictures that daddy took.
Most of the next pictures are blurry so I will only post the ones that are not as blurry as others. LOL! Since she is dancing and so is everyone else.
They only learned the dance about 2 hours before they preformed so she is concentrating really hard so she only smiles a little bit. They wanted all the girls to smile like crazy the whole time but they were all trying to get the dance right.
I had asked her if she wants to do it again next year and she said she would think about it. Then after we were in the car headed home daddy asked her if she wanted to do it again and she said yes. I guess she didn't have to think about it too long. LOL! She is actually looking forward to next year.
They are all sitting here getting ready for the personal introduction.
He is so ready for food since that is the only thing on his mind. LOL!
Getting ready to practice since they are getting their photo's taken.
She said "Hi." LOL! Getting her photo taken.
She is actually on stage next in line to speak in front of the judges.
She is giving her speech that she has practiced so much. I didn't hear very much of it, I guess she will have to speak up. Since Dylan was talking and throwing a fit.
She did great and I am so proud of her!!! After she got up and introduced herself they had all the young girls including her go and do interviews which is where she sat down with a judge one on one and talked with them. We were not able to see that or be able to support her except from a distance. When she came back to the room where we were waiting we all cheered and and I gave her a big hug and told her how proud I was of her.
After that we had a little break and was able to go get some breakfast since of course none of us had eaten anything before we left the house. We were lucky that the next time she had to be somewhere was at 11:30 am to practice her dance number for the final pageant.
Well she just didn't want to wait so I took her in and got her ready while daddy stayed with the boys and did some stuff with them. After she was changed and ready we still had 1 1/2 hours to kill before the practice. So we went in the hall and found some of the other parents that had girls that were her age and in her group. They sat there and played and when they were not sitting there they were running around. LOL! Thank goodness for technology! We had a great time visiting. It was too bad that we couldn't do that too much before, since Nikole had to pick out who she thinks would be Miss Personality in her age group. But they had a lot of fun running around and playing.
Caught her off guard. LOL!!
They are all watching a video or something on a phone. He he he! So happy that they made new friends and hope we can keep them as life long.
Then they had to get to the room where they were to practice that dance. Here are a few picture from the practice. She doesn't know how to dance very good but she gave it her best.
They are all visiting before all the girls get there.
Making sure they have enough space between them.
I cannot believe it they are all standing still. He he he!! I wish I could get her to do that at home. :)
From the picture they are all suppose to be listening but as you can see Nikole is playing. LOL!
A group shot that is the end of the dance where they all scream as you will see in another picture.
I am glad that she is standing on the back row at the end.
Let's take it from the top!
Let the screaming start. I am now a deaf person hearing all those girls scream at the top of their lungs.
Then they were told to run to their moms. LOL! Nikole is a blur...
Nikole sitting in my spot that is what I wanted her to do since then she is sitting near her friend.
In the dressing room making sure that she knows where we are going to meet after the dance number to hurry and change her into her formal wear.
This is the last picture that I took before I had to take the camera to daddy.
After that I was at her side the whole time and had to give the camera to daddy and he got the rest of the pictures until we left and got home. Here are some of the pictures that daddy took.
Dylan signing that he wants to take a picture with the camera.
Rhett taking a picture as they are waiting in line ready for the final pageant.
The stage is set and ready.
The Princess group are giving their performance right before the Jr. Pre-Teen group.
Nikole's group and the beginning of their dance.
Most of the next pictures are blurry so I will only post the ones that are not as blurry as others. LOL! Since she is dancing and so is everyone else.
They only learned the dance about 2 hours before they preformed so she is concentrating really hard so she only smiles a little bit. They wanted all the girls to smile like crazy the whole time but they were all trying to get the dance right.
Yeah she is smiling. LOL! I couldn't see her very well where I was sitting.
Doing her thing. He he he!
Like I said concentration.
A little blurry but it is expected when you try to get a picture of someone dancing and you are not a professional photographer. Well daddy was taking all the pictures since I couldn't see her.
All the girls had a chance to stand in front and since Nikole started in the middle since ended in the back, but that is ok. Since she is taller than many of the girls.
Twist and shout. LOL!
Yep the shouting, ok for like screaming.
This is where I jumped up and headed to the dressing room to make sure that I am ready to help her change.
As Nikole was changing this lady was starting to introduce the princesses.
Then they started with the Jr. Preteen's and Nikole is number 4 so she is at the beginning.
Here is my princess!!! Isn't she beautiful!!!
Than they handed out awards for all the things that went on this weekend. She got 4th runner up for the actress, runner up for the art contest, and she won the best thank you card! I knew that she would win best thank you cards, since the thank you cards that she wrote was the best ever!
Here are all the girls that have a chance of becoming the new Queen in their division. No Nikole isn't up there and she was ok with it. I am glad that she has shown such great sportsmanship.
Here is the new royalty with all the other girls with crowns. The new ones are the ones with the flowers. They did a great job and are going to have a busy year.
Here is Nikole with her awards and ready to go home since it was a long weekend. LOL! But she does want try it again next year so watch out world Nikole is on the lose. :)
I had asked her if she wants to do it again next year and she said she would think about it. Then after we were in the car headed home daddy asked her if she wanted to do it again and she said yes. I guess she didn't have to think about it too long. LOL! She is actually looking forward to next year.
You all have been a huge support and we are so very grateful for all of you.
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