Well man this last 2 weeks have been a killer with things that we had to do. I hope that it isn't too long for you but hack it was a lot.
For starters I had to take Rhett to the cardiologist Tuesday morning and that was a hard thing to set up since they wanted to wait until the end of the month and I told them that I wouldn't have that and he needed to be seen sooner. So we got in and saw the doctor which I was happy about. The doctor said that Rhett will start to desat in less than 5 minutes. His heart sounded great and his blood pressure is great. So they asked me to come back Wednesday and get a ECHO done and then they would call me with the results. So after I took it him on Tuesday I took him back to school. Then Wednesday right before the ECHO I took all the kids to the Fair to get a hand stamp and that way we could go back after they get out of school and after daddy comes home. So after we went to the Fair I took all the kids but Rhett to school then headed to PCMC to get Rhett's ECHO done. We had the ECHO and then I took him to school. After that the day went pretty fast and the doctors office called me that afternoon and told me that they couldn't get a very good reading on the pressures that he has, but that he does have some flatting of his heart. There was a slight elevation in his pressures that they could measure even though it wasn't a lot. They did tell me that when he does strain his heart and turn blue it does elevate his pressures but no idea how much. Too bad that he does that more and more every week. Then Thursday I had to take him to the pediatrician.to make sure that he was in the loop with what was going on and get his input. He said Rhett looks healthy and hope that all the testing and seeing all the doctors will provide answers that would not be available otherwise. Lucky for me the weekend was a little relaxing.
Then the following week I was grateful that my husband had work off and that we were able to spend the week together. Monday was fun after a meeting that I had first thing in the morning we went bowling. It was so much fun! Of course I am not very good but I hope that I will get better and so I can beat my husband more often. :) LOL! Then we planned our next day. We just had so much fun spending time with each other. So Tuesday was our anniversary! It was so much fun to spend the day together. He took me to a meeting that I had that morning and then we had decided to go hike Mt. Timpanogos, but when we got there we found out that it was closed. I had planned a babysitter for the evening so we had the whole day together. Since we were down that way we decided to hit up some Deseret Industries looking for bowling items since my husband is on a bowling league. We found some bowling balls that we could use and some bowling bags since he wanted me to have my own. LOL!!! We went bowling again that afternoon. Then we went out to dinner and then to a movie. Grabbed some ice cream for us and the babysitter on the way home. It was a great day! Wednesday was a crazy day that we had. We found out Tuesday night that Rhett had parent teacher conferences and the last day was Wednesday between the time school got out and 7 pm. I had called to get Rhett dropped off at the same school Dylan was at and I could pick them up at the same time. There was some communication error and we were told that he was at the other school after I had told them to take him to this school. So as we were going to the other school I called the bus driver to see if he had Rhett, and he told me that he had done what I asked and took him to the same school as Dylan. So then we turned around and drove back to the school and found Rhett. As soon as we got him we headed to the other school for parent teacher conferences there and then head back to the deaf school for their parent teacher conferences. Well there are some classes he is doing great in, but most of them he is figuring out that it takes work to get good grades. He has so much work to make up. It really sucks!!!! We headed home about 7 pm so then at 7:30 pm Rhett was taken to scouts As he was being dropped off I put the other kids to bed and then Rhett came home almost at 10 pm! Crazy late since he does get up about 5:45 am. At this point I felt like I had been hit by a truck. So I took some meds and went to bed.
Thanks to my husband who let me sleep a little longer Thursday than normal. But not really late since I had to be at court by 8:15 am. I was told I had to be there to testify against the man who had broke into my house a year ago. Lucky for me my husband was there to help calm my nerves. I talked to several police officers and they so nice. Lucky for me the man that broke into my house and stole stuff he left his DNA that the police got a match on it, and that person was in the prison when they found out there was a match. Going into the courtroom and having someone from the DA office ask me a whole bunch of questions was very... how do I put this... I was trembling! He was sitting there shackled and there was an officer sitting right behind him. He had that expression of I can get away with anything that I do and I am going to just get a smack on the hand for this. the detective that worked on the case was also there after someone that he works with called him and told him that he had court. Glad that he got there before it was our turn. The Judge decided that there was enough evidence to hold him and charge him with all the things he is being charge for that was just for our case that didn't include the other things he is being charged for. After going to court we went bowling with Mr. Dylan since he was the only one that was not in school. We had so much fun!
Friday was a strange day since there was no school for Rhett and Dylan but not for Nikole and Gavin. Which was good since Rhett had a pulmonary appointment Friday morning since we needed to measure his lung volume to see if his lungs have grown from the last surgery that he had in April. His total lung volume went up a little but I guess it is better than nothing. He had 1.09 February and he now has 1.33. The only problem that I saw was that the other numbers went down. After every blowing test that he had he was blue around his lips and he told the techs that he needed a oxygen break. As soon as we were done at the hospital we went and got the other kids from school and took them bowling. By that time my arm was killing me!! LOL!! I couldn't even bowl normally, he he he. Oh well that is ok.
During this time I have had a cold and it just got worse and worse. Finally by today I am finally starting to feel a little bit better but I am still coughing and my voice sounds horrible. I hope that it goes away and my kids don't get any of it.
Sorry this was a long post but trying to cover everything that has happened in 2 weeks is a little overwhelming. I will be posting more now that there isn't one thing after another I hope. :)
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