Month almost gone

This month has flown by. I can not believe how fast it has gone.

Rhett, Nikole, and Gavin all had a great opportunity this month to be able to go shopping with the Jazz Bear. They were so excited and it was amazing that they were chosen. I helped them make a list since I wanted them to be thinking of others since that is what Christmas is all about. They were so happy to get things for their siblings. There was no way we could have done what they were able to do. Thank you to all the wonderful volunteers that my kids got. We are so grateful for those people that asked us and for those responsible for putting it all together.

That same day we went to a Christmas party and the kids had a blast! While we were there we saw Tangled with the kids and Dylan slept through the whole movie since he hadn't had a nap before. It was a great movie and the kids really liked it. I would recommend it for any family.

After that we went home for a while and then headed out to the festival of trees. We always take the Trax train down and the kids just love it! We saw all the wonderful trees and even ran into the genetic councilor that we see. I was able to talk to her and see what she can do to help us. It was good. Rhett, Nikole, Gavin and Dylan were all great and mostly stayed with us the whole time. Since Rhett was using a wheelchair because he cannot walk very far, we were able to use the wheelchair access to the Trax train. Rhett loved being right behind the driver of the train and looking at everything out the front window. It was a lot of fun.

We has another Christmas party and we were able to meet some new families also. Thank you for inviting us! We had a blast!!

Just recently the doctors said, Rhett is doing ok. Not so sure I believe them. He finally got all of the things he needed for his bypap but he is still waking up in the middle of the night taking it off. On top of which, he ended up with another CT scan since he is re bruising over and over again without being hurt by outside influence. So the doctor set up a CT scan the 22nd. Which happened to be the same day as 3 other doctors appointments. We went to PCMC and had an Orthodontist appointment at 11 am then from there we ran to Shriners for 2 different appointments at 12:40. In between those is when I got the message that the CT scan was set up for 1 pm. WHAT??? Fine! Called and changed the time so then it was set up at 5 pm since we had a doctors appointment at 2:30 pm for Rhett's ear infection. I ended up calling the doctors and letting them know that we would be late since we were still at Shriners at 2:30 pm. HECK! We didn't even leave Shriners until 2:45 pm!!! We raced to the doctors and got seen in between other patients. Yep he has an infection in his ear. Then after we just head right back to PCMC since there is no point going anywhere else just to be back there at 5 pm. So we get there are hang out until Rhett's name was called and he went to get his CT scan. As we sit there waiting and even after Dylan slept on the floor in the waiting room. He had a great nap. :)

From all the coughing and such that I heard in the hospital of course my kids were going to get something. I feel bad since it was Dylan who started and of course he is the only one that shares so we were all sick on the day after Christmas. We were all doing pretty good except for a little sore throat her and there and a little nose needing to be blown every now again. But then it turned into a huge coughing, gross noses, and aches all over the house. Thank you who ever you are for taking you sick children to the hospital and not covering their mouths so that way when they cough it gets everyone else that is healthy around you sick. I try very hard to make sure that I am not one of those people so having that happen to me just makes me really mad at other parents and their kids. :( I know not very nice of me huh? Oh maybe it is because I freeze each time that my son has a hard time breathing at night and he might end up in the hospital.

I hope that no one got sick from my family since I am trying to contain it to my house. It is going to be harder when I get to have a babysitter. I hope I can get everyone better before I need to do that.

Nikole and Dylan share a room so they both get sick from each other very easy. I feel bad for both of them. Nikole has been coughing since she has fallen asleep. I guess I better call the doctors, then the doctors will say no more monkeys jumping on the bed. LOL! I am hoping that I get some info from them besides "It's a virus." ARGH! That makes me crazy when I hear that since there is nothing I can do for those except wait it out.

The kids really enjoyed Christmas and the best part was when they were giving their presents to each other. The grins on their faces were super huge. I am hoping that they will get the understanding that Christmas is a time we give to other and think of others first. After this year I think they are understanding that a little bit more than they were before. I hope that they will hold that tight and give more often. :) Might be wishful thinking but hey I guess I will do the best I can.

Now all the kids are home for the rest of the year. :) Ok that is only till the end of the month but hey that is good as long as they keep the fighting to a minimum. I am not sure if that will happen but here is to hopeful thinking. They have been ok but I guess that is to be expected right? :) Now that Christmas is over there is nothing to look forward to this month. None of them are able to stay up all night on New Year's Eve so I guess they will look forward to the birthdays next month. Wow does time fly.

Dylan will be starting school next month. I am not sure if I am looking forward to that or not but wither I am or not it is coming. I guess all I can do is prepare for it. I will hopefully get the CT scan results this week. The results for the RSV Synagis appeal and the results of the insurance claim on our break in this week also.