Holy Crap!

So much has happened since I was able to make my computer work well enough to blog.  So here's to hoping that I can get it all in before it over heats and shuts down.

    Ok so the week that I posted last was the week of parent teacher conferences for Nikole and Gavin.  On top of that was also the bookfair at their school that I told them I would help with.  But since Rhett was having issues Sunday I stayed home to make sure he was ok after school.  He came home and almost instantly fell asleep and slept for 3 hours!  Ok he does realize that bedtime is 7:30 pm and I don't make exceptions on school nights.  He did go to sleep around 8 pm.  I hope that he is ok.  Monday nights are usually hard trying to get them back in the swing of things.
     Tuesday I was a good day and I was able to help in the bookfair.  Rhett was told to sit and do homework while I was busy helping.  Did he NO!  What is wrong with him?  Maybe it is his age thing but still it would sure help if he would do what he is asked to do without a lot of drama.
     Wednesday this got crazy trying to fit in both parent teacher conferences.  We were really late for one but daddy doesn't get off in time to meet earlier.  But both Gavin and Nikole are doing great!  They need to stay focused and have better behavior but other then that their grades are GREAT!  So proud of my kids!  They are super smart and they know it. LOL!
     Thursday I was able to help in the bookfair again for a little while but then it was like I was running to make sure everything was taken care of since that is a crazy night for me because daddy has things he has to do and is not available to help with anything on those nights.
     Friday is finally here!  So happy to be able to say we got through that week, but I guess I spoke too soon.  As I was watching Dylan and helping in the bookfair I was told that we were going to draw some classes to break pinatas since the theme of the bookfair was fiesta.  After calling down the 1st class and having a great turn out, the 2nd class came down to break their pinata.  Oh the joys of pinatas!  Well after we started not to far into the class there was one girl that found the rope that I was hanging onto with the stick and swung at my head.  It was like I saw it in slow motion.  As she swung I just dropped the rope and fell backwards on purpose.  Didn't hurt me but I wasn't sure if I would make it out of the way of the stick before I would get hit.  That was goal was not to get hit with the stick.  Well didn't get hit and didn't get hurt.  Scared the crap out of everyone there but I was having a blast!  Then the next girl started swinging towards Dylan who was very close to the windows and as she got closer to him I moved between her and my baby with the rope in front of me hoping that we would all make it out alive.  Did I mention that this was a 5th grade class?  Opps I guess I left that out.  Anyways since I could see that this was going to end badly if I didn't do something I reached out as she swung and grabbed the rope and the stick at the same time without getting hurt.  Put a end to that.  Finally they broke it open and that was that, or that is what I thought.  The principle saw what had happened and came to ask me if I was ok since all he saw was the girl swing and me fall.  LOL!  I told him that I was fine and dandy.  Well then I was told that we were going to finish breaking all of the rest of the pinatas which meant 3 more classes to swing.  Oh boy oh boy...  Well I was the only crazy one willing to hold the rope and have the kids swing a stick around close to me.  he he he So I went out and we got through almost 2 classes before my phone.  Well it was my husband and when I tried answering it I couldn't hear anything since the kids were all screaming and having a grand time.  So as soon as we were finished with that class I called him back to see what was going on before the next class came for their turn whacking that candy out of the paper.  This is what I was told on the phone...
     Rhett's school called and there was an issue that happened and they couldn't get a hold of me.  I asked what happened and I was informed that Rhett admitted that he had smeared poop on the wall in the bathroom.  I was like WHAT!?!?!  Ok now what do I do?  I asked my husband if I needed to go get him and he said that they didn't say, so I hung up and he called me back within 2 minutes and said yes you need to go get him.  OK!  GREAT, not really...  Ok it is going to take me at least a half in hour to get there.  I hung up and realized that I had one more class to go.  CRAP!  Ok let's get this party started and get it over with.  Well this class took it's time and I had to let them know that they had to wrap it up before the bell rang and then Rhett's school was calling me asking where I was and how soon I was going to be there etc...  I told them that I had to my car and then I would head out ASAP.  Hoping to be there before 12:30pm.  Well I raced home with Dylan after I had let everyone know that there was an issue that I had to leave for and I was sorry that I couldn't stay and help them like I had planned.
     I pull up to Rhett's school pissed off since this is something that he knows he shouldn't do.  There were kids outside ready to get on the bus that were middle and high schooled age children.  As they saw me get out of my car there eyes went from normal size to big.  I hope they were thinking oh crap don't mess with her.  Since that is how I felt.  I was so mad it wasn't funny.  I go in and the school psychologist was there waiting for me.  She explained to me that what Rhett was saying  about wiping poop and writing in wasn't adding up and she also explained to me that it took them over a hour to calm him down since they had informed him that I was going to be told and that he was going to have to explain everything to me.  I guess he knows that you just don't mess with me.  They were hoping that I could get more info out of him but nothing that they haven't heard.  It still didn't add up and make much since but oh well...  There was nothing I could say or do to get new info from him.  As he was telling me all what had happened he did say that he was just so very mad since there was at least 2 people that have been picking on him.  OH MY &%*^$!!!!!  I was pissed but I contained it.  I found out that some of the kids have been swearing at him since the 5th day of school and then they started playing the "F" game meaning that you would get hit if you saw the letter 'F' below the waist but he was getting hit no matter where the 'F' was.  I WAS SO PISSED!!!  At this point I wanted to clobber these kids that have been hurting my son.  I asked him to hit me as hard as this one boy has hit him, and he told me that he wouldn't.  I informed him that I could handle it after almost being hit in the head, but then he told me that he cannot hit me that hard because he can't hit as hard as this boy.  OH MY GOSH!!!  Can you say MAD!!!!  I wanted to do more damage and I was so glad that there were some days in between that day and the next day of school.  It took such a long time to talk to him and get all the info out of him, I mean I got at his school around 12:30 pm but I didn't get to leave there with him until almost 3:30 pm!!!  Holy CRAP child when I want answers you better give them to me faster than that!!  I had planned to take the kids to a pumpkin patch at 3:00 pm but no...  I called and let CR and Amy that we were running late and we would be there as soon as I could.  Then I had to find Nikole and Gavin since they were in the after school program and I had told everyone that I needed them at the school and to keep them there.  Found out that they were out on a field trip and I had to stop by the place that they were at and pick them up.  I headed home to pick up daddy and then hit the road to the pumpkin patch.  We got lost trying to find it and then when we finally found it the kids were so excited since they have never been to a pumpkin patch.

Here are some pictures of each kids and their pumpkins.  LOL!!!

I will post more pictures trying to catch up a little later.

The kids loved it!!!  It was fun being able to do something that we have never been able to do before.  I was so happy that the day was over since it was a very long day.
     So Saturday it was S.I.B.S. (Super Important Brother and Sister) day at PCMC (Primary Children's Medical Center)!  I was so happy since this is something that is just for Gavin and Nikole.  The hospital puts this program on for siblings of children with special needs.  I am glad that it gives them some place that they can meet other kids like them that also have a sibling that has special needs even if they are not exactly the same as Rhett and Dylan.  I had to take Rhett with me to the hospital because he had so much homework that he needed to get done before Monday.  So while daddy took Dylan to baseball I took all the other kids up to the hospital.  I dropped Gavin and Nikole off and then took Rhett with me to the parent hour they have, so parents can meet other parents dealing with some of the same problems.  I sat Rhett down at a table and informed him that he was going to sit here and do homework the whole time. while Nikole and Gavin are playing.  After meeting with the other parents I sat down with Rhett and read my book while he did homework after homework.  After the end of S.I.B.S. day I went home with all the kids thinking that Rhett had actually finished all of his homework.  I found out Monday morning that Rhett missed one subject and could finish it.  But other than that he got the rest of it done.
     Sunday I informed Rhett that he would have to talk to the bishop about what had happened at school and his eyes size went from normal to golf ball size really quickly.  I am hoping that he has learned his lesson and will never do anything like that again.  He had a great talk with the bishop and worked everything out.  I am so very grateful for having Christ in my life and showing my children that they are important to him and to my family.
     So come Monday I had to take Rhett to the orthodontist since he had a tooth fall out that that had the band on it.  But before I went on a field trip with Dylan's class to the fire station.  We walked there from the school and they had a BLAST!!

Here are some pictures of the great time that they had.  LOL!

We were at the doctors office a lot longer than I thought.  So I took him back to school after and headed home.  By the time I got home the kids were getting out of school.  What the heck the appointment was at 11:00 am.  Oh well at least that is taken care of and he isn't scratching the inside of his mouth like crazy any more.
     Tuesday was a normal day!  It is about time...  I am grateful for at least one normal day in my life.  LOL!  Usually they don't last long and I was right it didn't  By Wednesday there was no school for Nikole, Gavin, and Dylan.  Rhett was the only one that had school that day.  So Wednesday morning I took all of the 3 younger kids with me to the dentist but the appointment was for me not for any of them.  ARGH!  Having the kids run around while they clean my teeth really sucks!  Find out that I have some cavities and I am not happy about it but at least it isn't too horrible.  But I am working really hard to make sure I don't get any more.  Next time I go I will NOT take any of my kids.  he he he...  Then as soon as I was done there I headed toward Rhett's and Dylan's school because both of their IEP's were set up for that day.  But before the IEP's Rhett had to meet with the school director, the psychologist and myself.  So they grabbed him and went over what had happened on Friday and told them that there are consequences for his actions and that we were all there to discuss what was going to happen.  So we went over a contract that Rhett needed to sign since he was the one that confessed and admitted that he did something that he shouldn't have.  Then after we went through that and signed it then it was IEP time... Oh the joys!  NOT!!  Rhett's IEP was first and come to find out he should have had an interpreter ever since first grade but that is a long story and it is all in the past.  Then because he is so stinking smart he doesn't qualify for an IEP if he doesn't have speech or speech goals.  Oh I am so pissed about getting all this info that would have been nice way back then.  Then Dylan's IEP was right after and he is behind but ready to move forward.  He is going to be going into a new class starting Monday.  We will have to see how things will go since he will be in a different class than his friend Autumn.  They have been together since the beginning so we will have to see how he handles being separated from her.  LOL!!  After the IEP's it was time to go and we walk out to the car and I ask Rhett where his backpack and stuff was, at this he looked speechless.  GRRR....   So I sent him in and told him to hurry and I waited in the car after 30 minutes I sent Nikole in to find him and she came back out and couldn't find them.  So I get out and start searching the school for Rhett.  I was getting more and more frustrated the more I looked.  I finally found him in his science class.  After he gathered everything up I sent him out to the car and talked a little with the teacher and left.  I didn't get home until about 6 pm!!  WHAT!!!  It shouldn't have taken that long.  Oh well.  I went to my meeting Wednesday night and had a great time learning and being away and out of the house by myself. 
     Thursday was a day that I was glad that it ended.  We stayed home and I was telling Rhett to do his homework all day long.
     Friday was just like Thursday!  GRRR.....  I told him that if he didn't get what he needed to get done then we would not be going to U-fit.  He finally finished everything that was homework except for his airplane project.  Oh man it is going to be a long weekend!  All the kids were lucky enough to be able to go to U-fit and have fun.
     Saturday was a day.  WOW!  First thing in the morning we had Gavin throwing up until at least noon with the 24 hour stomach flu.  On top of that Dylan refused to eat dinner so he was so hungry that he threw up too.  Then we were suppose to meet with someone but we had to let them know that we couldn't since we had sick kids.  Rhett was working on his project using my computer starting at 8:00 - 9:00 am.  well he worked on it the whole day.  Since Gavin was feeling better and so was Dylan was too.  Nikole did was she was asked to do all 3 of them were able to go to a birthday party with daddy for their cousin.  They had a great time.  I was bummed and so was Rhett, but since his project wasn't finished we both stayed home and he worked on and on.  He got it all finished by 9:00 pm.  YES!!!  Now on to the next project. :(  He has at least 3 other math projects that need to be done this school year.  One every term, but still it is crazy!  It is nice that he is being pushed at school to his potential, but still it is a lot of work for me trying to keep him focused and on task.  The end of the term is October 27th.  I am looking forward to starting a new term and informing him that he has to work hard to get good grades.  LOL!  We will see how he is doing soon.
     Sunday was a pretty relaxing day since Rhett's homework was done and of course the house that was clean was not so clean anymore but at that moment I really didn't care since it was such a long weekend.  I am looking forward to school Monday morning and the craziness that happens at those times.  I also have to figure out costumes for all the kids. :(  Oh heck I am going to need prayers and lots of them.

I am so sorry it took so long to update you all but with my computer having fits I never know how long I can be on the computer before it dies.  I hope to update more often and post more pictures.  I know I will update the photos first but still...

Can you believe it!

There is so much that I have to do and not even enough time to do it all in.

Rhett has a huge math project that is due this month and of course he has left it to the last minute.  Then it is I who gets to help him try to figure out everything that he needs to do.  I expect him to get good grades and I told him that.  He can get good grades and I demand it.  Maybe I am a mean mom but I know he is able to get this amazing grades if he tries a little bit.  The topic of his project is Airplanes and Aviation.  He has to present it and make sure that it represents math and how math is part of Airplanes and Aviation.

He just wanted to do that subject because he likes airplanes.  GRRRR.....  He doesn't want to explain anything about math he wants to show pictures, and just tell everyone how big they are or how fast they go.  So now I am in the process of trying to get him to understand that he needs to do more than just say this airplane is big and can hold lots of stuff, or this airplane is the fastest ever built.  That is not how it works!  Thankfully he has a little time before ti is due but he had this weekend to do the rough draft and turn in that Monday so we have placed many hours studying airplanes but mostly looking up the "cool" airplanes according to him.

I guess you can say he has his work cut out for him.  For me too even though I am not going to school. :(  That is a Bummer.  I have thought about going to school again but that takes a thing called money that I am still working at acquiring. LOL!  Before next year I will have it all!  HE HE HE! 

What would you do if you felt like you didn't have anyone to talk to about things close to the heart?  I find myself holding it all in trying to keep it at bay and hoping that nobody will notice.

What now???

It has been very hard for me.  

I will have to explain a little later in the next post but first thing first.

Rhett saw the Orthopedic surgeon the end of last month and he had some x-rays done.  We also went over all the things that happened health wise last month.  His knee is actually moving or should I say correcting itself and hopefully in 6 months they can take the pins our of his knee and his leg will be straight.  The doctor went over the pulmonary reports and has decided not to do a chest expansion this month.  It makes me wonder if he is nervous about what was going on with Rhett's heart.  It wouldn't surprise me since I am nervous but I doubt that I will get any answers anyways.  It has been hard on Rhett watching from the side line and having no control over his body.  He has told me once again how much he hate his oxygen, and I looked at him and said I am sorry too bad you have to have it.  I was helping him do his homework and he kept kicking my butt getting it done before I could even help him.  Why does he ask for help when he doesn't need it?  Maybe he just wants to see the look of shock on my face as he gets his work done?  LOL!  That wouldn't surprise me at all.  It is amazing how smart he really is.  It has to be hard on him with his health problems being what they are and having such a smart little head on your body.  We got the heart monitor that Dr. Day wanted to have Rhett use for a month he has had a few episodes where his heart is pounding but he forgets to push the button to record it.  ARGH!  That is frustrating to say the least.  And then to top it off when he wasn't having the issues he would push the button to test the monitor to make sure it is working.  WHAT?!?!  Seriously can't he just do what the doctors have asked him to do or does he need a babysitter?  I guess we will see what this week holds.  He got a stomach bug from Dylan that only lasts 24 hours and it was horrible for each of them, throwing up all night and then really tired during the day hours.  That can make for a long night but lucky for me he is better and so is Dylan and they are both sleeping.  Now all we need to do is pray that the other 2 kids do not get sick at all.

Nikole is going to be getting her grades next week and I cannot wait to see how she is doing.  She has a hard time staying focused and getting her work done.  She has started getting it done before she comes home but there has been a few times that she doesn't and it makes for a long night.  She has been bonding with Gavin and that has been a good thing for each of them.  They go to school together and come home together and I want that to stay that way for a couple of year but I have to think of schooling for Nikole for when she goes to jr high school.  Sad to be thinking about that at the beginning of 4th grade but the school I was thinking of putting her in you have to start in 5th grade and that just really sucks since I was hoping that she and Gavin could keep going to school together for a little longer.  So now I have to look for a good school to put her in for jr high since I would really want her to stay at the school where she is at a while longer.

Mr Gavin is also going to be getting his grades next week too.  I am almost giddy. LOL!  I know I shouldn't be but I really want to make sure he is getting good grades and see where I can help him improve.  He tells me every day that he was good and I sure hope he has been.  He has been doing great at getting his homework done.  There have been a few times I have to correct him on his homework by telling him that the "b" or the "d" is backwards and that it needs to be re-written.  He doesn't like that at all but he does it willingly.  He is ever so helpful if his reward is going to be video games.  LOL!!  It is amazing how much that little boy can get done in such a short period of time just to be able to play video games.  He is also very into Star Wars and last year dressed up as Darth Vader.  So on my cell phone I have his ring tone the Imperial March.  As I was playing a whole bunch of possible ring tomes for the kids his face lit up the most from the songs that they were.  I try to play them more just to get a small smile from that little handsome boy.  He also has 3 loose teeth.  Of course they are all in front.  I wonder how cute he is going to look after he loses his baby teeth.  I guess I will find out this school year.  It is nice to see the bond that he has been forming with Nikole.  Trying to get them to play together and be nice has always been hard until this year when they starting going to school together.  I hope that they get closer over the years.

Dylan is a cutie!  It is funny to see how happy that he is to go to school and after he walks out to the bus so happy he gets on and starts crying and doesn't want to go. LOL!!  Very funny to see the drastic change in his attitude.  But after a while on the bus he is fine and gets happy.  So weird!  He got sick this past week and had to be taken out of school at lunch time since he started throwing up.  He didn't stop until really late that night.  He stayed home the next day and then went back the day after just fine.  I am ever so glad that it ended.  I felt bad that he got sick at school.  I told them that if I had known he was sick I wouldn't have sent him.  They knew I would never do that.  He loves school and he loves signing and being able to communicate with other people.  He likes to try to be a big boy but sometimes doesn't realize that he is still a little boy.  He was doing something that was quite funny yesterday, he was drinking some milk and with his mouth full of milk he would knock on my head and when I would turn to look at him he would do everything that he could to keep his mouth closed but if he smiled he would leak milk out of his mouth.  I couldn't help but laugh at him doing it again and again.  But he is healthy and happy and I hope that he stays that way for a while.

I know.... So much info

Well man this last 2 weeks have been a killer with things that we had to do.  I hope that it isn't too long for you but hack it was a lot.

For starters I had to take Rhett to the cardiologist Tuesday morning and that was a hard thing to set up since they wanted to wait until the end of the month and I told them that I wouldn't have that and he needed to be seen sooner.  So we got in and saw the doctor which I was happy about.  The doctor said that Rhett will start to desat in less than 5 minutes.  His heart sounded great and his blood pressure is great.  So they asked me to come back Wednesday and get a ECHO done and then they would call me with the results.  So after I took it him on Tuesday I took him back to school.  Then Wednesday right before the ECHO I took all the kids to the Fair to get a hand stamp and that way we could go back after they get out of school and after daddy comes home.  So after we went to the Fair I took all the kids but Rhett to school then headed to PCMC to get Rhett's ECHO done.  We had the ECHO and then I took him to school.  After that the day went pretty fast and the doctors office called me that afternoon and told me that they couldn't get a very good reading on the pressures that he has, but that he does have some flatting of his heart.  There was a slight elevation in his pressures that they could measure even though it wasn't a lot.  They did tell me that when he does strain his heart and turn blue it does elevate his pressures but no idea how much.  Too bad that he does that more and more every week.  Then Thursday I had to take him to the pediatrician.to make sure that he was in the loop with what was going on and get his input.  He said Rhett looks healthy and hope that all the testing and seeing all the doctors will provide answers that would not be available otherwise. Lucky for me the weekend was a little relaxing.

Then the following week I was grateful that my husband had work off and that we were able to spend the week together.  Monday was fun after a meeting that I had first thing in the morning we went bowling.  It was so much fun!  Of course I am not very good but I hope that I will get better and so I can beat my husband more often. :)  LOL!  Then we planned our next day.  We just had so much fun spending time with each other.  So Tuesday was our anniversary!  It was so much fun to spend the day together.  He took me to a meeting that I had that morning and then we had decided to go hike Mt. Timpanogos, but when we got there we found out that it was closed.  I had planned a babysitter for the evening so we had the whole day together.  Since we were down that way we decided to hit up some Deseret Industries looking for bowling items since my husband is on a bowling league.  We found some bowling balls that we could use and some bowling bags since he wanted me to have my own.  LOL!!!  We went bowling again that afternoon.  Then we went out to dinner and then to a movie.  Grabbed some ice cream for us and the babysitter on the way home.  It was a great day!  Wednesday was a crazy day that we had.  We found out Tuesday night that Rhett had parent teacher conferences and the last day was Wednesday between the time school got out and 7 pm.  I had called to get Rhett dropped off at the same school Dylan was at and I could pick them up at the same time.  There was some communication error and we were told that he was at the other school after I had told them to take him to this school.  So as we were going to the other school I called the bus driver to see if he had Rhett, and he told me that he had done what I asked and took him to the same school as Dylan.  So then we turned around and drove back to the school and found Rhett.  As soon as we got him we headed to the other school for parent teacher conferences there and then head back to the deaf school for their parent teacher conferences.  Well there are some classes he is doing great in, but most of them he is figuring out that it takes work to get good grades.  He has so much work to make up.  It really sucks!!!!  We headed home about 7 pm so then at 7:30 pm Rhett was taken to scouts  As he was being dropped off I put the other kids to bed and then Rhett came home almost at 10 pm!  Crazy late since he does get up about 5:45 am.  At this point I felt like I had been hit by a truck.  So I took some meds and went to bed.

Thanks to my husband who let me sleep a little longer Thursday than normal.  But not really late since I had to be at court by 8:15 am.  I was told I had to be there to testify against the man who had broke into my house a year ago.  Lucky for me my husband was there to help calm my nerves.  I talked to several police officers and they so nice.  Lucky for me the man that broke into my house and stole stuff he left his DNA that the police got a match on it, and that person was in the prison when they found out there was a match.  Going into the courtroom and having someone from the DA office ask me a whole bunch of questions was very... how do I put this...  I was trembling!  He was sitting there shackled and there was an officer sitting right behind him.  He had that expression of I can get away with anything that I do and I am going to just get a smack on the hand for this.  the detective that worked on the case was also there after someone that he works with called him and told him that he had court.  Glad that he got there before it was our turn.  The Judge decided that there was enough evidence to hold him and charge him with all the things he is being charge for that was just for our case that didn't include the other things he is being charged for.  After going to court we went bowling with Mr. Dylan since he was the only one that was not in school.  We had so much fun! 
Friday was a strange day since there was no school for Rhett and Dylan but not for Nikole and Gavin.  Which was good since Rhett had a pulmonary appointment Friday morning since we needed to measure his lung volume to see if his lungs have grown from the last surgery that he had in April.  His total lung volume went up a little but I guess it is better than nothing.  He had 1.09 February and he now has 1.33.  The only problem that I saw was that the other numbers went down.  After every blowing test that he had he was blue around his lips and he told the techs that he needed a oxygen break.  As soon as we were done at the hospital we went and got the other kids from school and took them bowling.  By that time my arm was killing me!!  LOL!!  I couldn't even bowl normally, he he he.  Oh well that is ok.

During this time I have had a cold and it just got worse and worse.  Finally by today I am finally starting to feel a little bit better but I am still coughing and my voice sounds horrible.  I hope that it goes away and my kids don't get any of it.

Sorry this was a long post but trying to cover everything that has happened in 2 weeks is a little overwhelming.  I will be posting more now that there isn't one thing after another I hope. :)

How much more can I take??

So many thing have happened since I last blogged that I have to play a huge catch up on information.

This past week Rhett has been complaining about his heart hurting meaning that his heart is pounding so hard that he is feeling it through his whole body.  At one point I had him check his oxygen levels since he looked pale and was telling me that he was having a hard time.  He actually wanted to wear his bypap at 5pm since his heart was pounding.  When he checked his oxygen levels he was at 96 and sitting there not moving.  I was not happy about that since he is on about 2 liters of oxygen and that for him is A LOT of oxygen.  To top that off Friday when I picked him up from school he was completely out of oxygen and around his lips were blue!  I was so frustrated with him.  He decided not to tell anyone because at the school he was at there was no other oxygen at all.  It is a good thing that I carry oxygen around with me just in case things like this happen.  But as we left the school we were on the road maybe 10 minutes Rhett just fell asleep in the back of the car because he had been without oxygen for so long that it made him really tired.  It is a good thing we are going to be talking to someone soon about this.  It is quite scary for me having him do this to me for a whole week.

Nikole is still not doing her homework!  What the heck!  I am getting not very happy with her.  I tell her you are in the after school program so you can get your homework done before you get home.  Since as soon as she gets home it is like let's play with my brothers!  So happy!  So I had to inform her that since she didn't get her homework done that I will have to talk to the after school people and there is a good chance that she will not be able to go.  ARGH!  Not happy mommy right now.

Gavin is doing great at getting his homework done even though he is in the after school program too.  Very cute seeing him come home all happy after fighting with him to get him out the door in the morning.  It is good that school is so much fun for him and I hope that he starts loving it and wants to go to school.  He does like walking to and from school with Nikole and it is great not having to drive everyday like I had to the many year since Rhett cannot walk that far.  I hope that They will walk all year long. :)  Happy dance!

Dylan is having a hard time keeping his health good since the weather has been changing radically.  It is quite cool in the morning and by the afternoon it is around 80 degrees!  So he has caught a cold and his poor nose is green I am going to have to take him into the doctors eventually.  But his little bottom is also very sore from his cold. :(  It is like we are always having to stay on top of the diapers since he has no want or desire to learn how to use the potty.  They are helping at school too but the teacher also tells me that he has no interest in learning.  He loves going to school and playing with his friends mostly Autumn.  LOL!  She is a sweetie and he is so cutie if you ever mention her name he just grins and says that is is his Autumn. :)  They are the same age meaning born the same month so they will always be in the same school class which I am very grateful for since they get along so well together.

Finally this past Friday I took my test and PASSED!!!  I am so excited!  I was scared that I wouldn't pass since there was a lot of grammar and reading things on the test and to be honest I am not very good with things like that.  So scary for me as I was taking it I was second guessing myself and and knowing that I am not very strong in those areas.  So after I finished the test I made sure that I answered every question but I refused to change any of my answers.  I had prayed that I would be able to pass the test and when I was having a hard time deciding what answer to choose I just went with the answer my gut told me to pick.  The passing score is 460 and I got 478!!!  I did my happy dance and was singing "I like to move it", but then Dylan got mad at me and told me that he likes to move it.  LOL!  I love how he tries to sing that song.

Now it is a new week and a pretty crazy one here.  I will have to post some pictures before I post anymore since it has been a very long time.

The end of August

Oh boy the end of August was a very frustrating time for me.  I cannot even go into detail about it because so much happened.

Rhett has been trying to get into the swing of things and so far has been doing good at school.  He has left his homework till the last minute which is driving me crazy!  If he keeps this up I might have to admit myself to the funny farm for sure.  He has almost been late for the bus a few times too.  ARGH!  He is going to give me gray hairs if he doesn't stop this, ok I refuse to get any gray hairs so he better knock it off.  His bus driver is amazing!  He picks Rhett up first and actually comes to the door to help carry Rhett's things to the buss and make sure that he is on the bus ok.  What a great guy!  Thanks Ryan!  I really wish Rhett would learn to listen better and follow direction but I guess he is at that age where he is just going to do what he wants to do.

Nikole is doing great but has also been leaving her homework till last minute too.  NO!  Not another child that procrastinates.  She is understand more but tells me that she needs help.  LOL!  It is like mom I need help and when I try she says oh I got it.  What a funny girl.  She is a great big sister and makes sure Gavin gets too and from school safe and her too.  She is doing great nad I know she will get better this year.  Nikole did get the teacher that I had requested!!  I am so excited!

Gavin is I hope doing good.  I forgot to take him in for his testing since they yelled at me the first day of school to let them walk themselves home.  Oh man that was bad!  I guess I am going to have to talk with his teacher and let her know that I am really sorry that I forgot.  Gavin also got the teacher I had requested!  YEAH!!  I hope that this school year will help him more and more so then emotionally he will be great by summer and have no more melt downs.

Dylan has a new teacher this year and she is really nice.  I met with her this past week and talked about all the things that is Dylan that I have noticed at home, since she needed to get some paper work on all the kids that she has only known for about 2 weeks finished.  LOL!  Like the teacher really knows their kids they teach within 2 weeks of meeting them.  I wish the state would give them a little more time to get to know the kids.  The school got a new playground since they didn't have one before and it was really cute seeing him run outside and want to play.

So happy that school is back in, for now I guess it might change in a day or two we will have to see.

Well well well...

When I started this blog it was to help my family (mostly siblings that live really far away) stay up to date on the goings on in my house.  Since there are sometimes that we have a really hard time and other time it is great.  Also to help other families try to connect.  I have been searching for other families like mine.  Trying to find people that have what Rhett and Dylan have is very hard to do when we have stumped doctors all over and they are not even sure what the boys have.  I was hoping to find someone that could relate.  No such luck but I have made many friends and it is nice when there are things going on in my house that is making me crazy I know I have some support.  It is nice that I don't have to repeat everything over and over again and I can just let people know they can look here ot find out the goings on.

On a different note....

What have we here?  Somebody decided that it was in their best interest to gossip about me.  I am very disappointed.  I sure hope it was worth it to them.

Rhett was late for school because the time I had was right and the bus driver's time was wrong.  LOL!  He has got a awesome bus driver.  He had to drive over his route again today after he dropped Rhett off to see how long it would take and try to calculate the time with the traffic to see what time he will have to pick up Rhett.  I got a call tonight and Rhett is going to have to be picked up about 6:30 am.  Oh the mornings that we are going to have here.  Two buses and then two kids either walked or dropped off.  I almost feel guilty for being happy that I will be childless.

Gavin and Nikole met their teachers and saw where their desks are and also found out who is going to be in their classes with them.  They are SO EXCITED!!  They have been getting along great together mostly when the other boys are at school and when they have a little problem they actually work it out pretty fast.  I witnessed it all day and I was just amazed at how well they played together.  I am glad that they have each other.  They are happy that there are so many things that they get to do together that they were too small to do before but are now big enough.

Oh man!!

Oh man!!!  School starts tomorrow for Rhett and Dylan.  I am so stressed about it.  The school sent me a schedule for Rhett saying that school starts at 7:50 am Mondays and Tuesdays through Fridays school starts at 7:30 am.  But the bus coordinator has the schedule is set to have school start at 7:45 am everyday.  ARGH!  Why can't they send out all the same information?

Last year they had something that the older kids could do after school but this year I was told they didn't.  So now I have kids getting out of school at different times but at the same school.  I was hoping that Rhett and Dylan could come home on the same bus at the same time.  Rhett will be getting out of school at 2:50 pm, but Dylan will not get out until 3:30 pm.


They are also being picked up at different time Rhett for now is going to be picked up at 7:00 am and Dylan will be picked up at 7:45 am even thought school for Dylan doesn't start until 9:00 am.

Oh the numbers in my head are spinning.

The schedule for Nikole and Gavin have not changed for a while which is good.  Since I know the school time by heart and have no worries about it.  I hope that they will be able to walk to school together often this school year.  It has been hard for them not being able to ride their bikes or walk to and from school because it was so hard on Rhett we just picked them up and dropped them off 99% of the time.  There was that 1% when we walked or rode bikes but it was really hard to since I had to have the bike trailer just for Rhett's oxygen that he was going to need at school.  But that is quite sad that we only live 5 blocks away and from the time Rhett started 1st grade to the time he finished we hardly walked over there or even rode our bikes.  I hope that can change with just the other 2 going to school there for at least this year.

As for me I am studying for my test that is coming up on September 9th.  We are going to pray really hard that I understand what I need to and pass the test.  I know I can do it.  Wouldn't it be nice if everything worked on faith and faith alone?  Ahhhh.....  What a life that would be.  Oh well it is going to take Faith and lots of practice and studying to make sure that I pass.  It is going to be great after I pass.  I can hardly wait!  Ok maybe that was a little too much excitement.  LOL!  Just thinking about it freaks me out and makes me worried and stressed so I am trying hard not to think about it too much as you can tell.

This is going to be a good week!  Positive outlook as you can see.

Clarification..

Ok so I have been told that there are people getting the wrong impression about my knowledge for who my kids are going to have as their teachers this year, meaning Nikole and Gavin.  Just to let you all know I have requested certain teachers for them and I have been presuming that my kids will be in the classes that I have requested.

There is nothing in stone and I have not been told that they are or are not going to be in those classes, I am just going with my mind in thinking they are going to be in the classes that I have requested.  If they are not then bummer since I worked so hard finding out who the best teachers would be for my kids.

I just wanted to set the record straight that I have not been given any information regarding the school year.  I am like all the other parents out there not sure but hoping that my requests have been heard.

My mind.....

With all the things on my mind there are good days and not so good days.  Today was not a good day.  Yesterday was different it was a great day.  Man sometimes I feel like I am on a roller coaster and there is nothing that I can do to get off or even make it not so up and down.

There are several things happening at the same time in my life and so I cannot focus on just one thing at a time.  The kids are starting school next week and I am happy that they will be going back I just need to make sure that I have something that I can do while they are at school to help pass the time.  I am going to miss them while they are gone but I will not miss the fighting and the not listening.  the owner of the buses that will be taking Rhett and Dylan to school called to let me know that they have to make sure the oxygen is attached to the bus while he is taken to school and returned home.  But I have not heard back from him and school starts in a week!  He better give me a call soon so we can get this taken care of before school starts.

Rhett is suppose to be on Flovent 2 times a day but he is just not doing it.  We are going to be going in for a Pulmonary Function Test (PFT) soon, but the doctor thinks that the Flovent will help improve the results of the PFT.  I highly doubt that but whatever.  I got the medicine and he isn't using it, GRRR!  That was $120!  I told him when I brought it home that he better use it all but ARGH!  Not like I can tie him down and force him to use it.

There are many people that will see Rhett at an event that we go to with Hope Kids and/or Angel's Hands Foundation.  They always think that he is a such a great kid.  Which he is but sometimes it goes to his head and then he feels like it is all about him.  LOL!  That is Rhett for you.  Give him a inch and he takes a yard.

Thanks to Angel's Hands Foundation we were invited to a Monster Truck show just yesterday and it was so much fun!  The kids even had a lot of fun.  To only problem was that we didn't know the thing that they put on the oil when it spills is toxic!  What the heck!  They kept repeating over and over again that any eye contact with the dust from it should be treated by the medics.  Oh that is great what if it is inhaled?  They never said anything, but my lungs felt horrible last night and most of the day today.  I also had a sick child this morning even though we left before it was all over.  Our family had such a great time!  We have never been to an event like that before and all the kids liked it except for maybe Nikole, but she did have fun.  LOL!  Thank you Angel's Hands Foundation! You can see more about them at angelshands.org they have a new site.  It looks great.

There are things that I would love to write to help get them off my mind but I cannot seeing as I don't need the wrong people reading it.  I know most of the people that read this really care and are such an amazing support to me.  I am grateful for all the support and love that I get from those that have been following my blog.  Thank you.

Let's think

Ok so I know it has been a while but things are snowballing here.  we are down to less then 2 weeks before school starts.  I am so super excited to have the kids going back that I cannot stand it.

Rhett, Nikole, Gavin, Dylan and daddy all went to my family reunion since I had other obligations and couldn't make it.  They had a blast and I was glad to have some quite time at night.  They left Friday while I was busy and made their way to my aunt house in Idaho.  I missed them but seeing the pictures that people took was great!  How I love my family!!  I was glad that they were able to go even though I couldn't go.  They did some service projects and many other things Saturday and then came home Sunday.  They got home around 4:30pm Sunday and I was so happy that they had made it home safely.

I have registered all 4 kids for school and am waiting to hear back from the transportation company that will be taking Rhett to and from school since he needs to have oxygen.  I heard from them once but haven't since then.  I think I will call them and see what I can do since there is less than 2 weeks before he has to go.  We are thinking about getting the portable oxygen concentrator out making sure it works and then having him take that.  But the only problem that I have with that is the battery would die often and he wouldn't plug it in and charge it.  It makes me so mad that he thinks he can do whatever he wants even though it make breathing really hard and he will also turn blue very quickly.  Oh the stress he puts on me.

I informed Nikole and Gavin who their teachers were and they were happy to know that their classes are going to be next to each other.  I am happy that I only have to go to one door to drop them off.  I am glad that they are actually happy to start school again.

I asked Dylan if he wanted to see Autumn and his other friends at school.  He looked at me like I was crazy and then when he saw school his face lit up and he nodded.  At least he is happy about school even though he is only 3 years old still.

Now all I have to do is get them on a schedule before school starts so they are getting enough rest at night in order to function through the day.  That has been a bit of a challenge more so than thought it would be.  Mostly because Rhett is now 12 and wants to do what other kids do and be up all hours of the night.  ARGH!  That child can push some buttons and needs to learn that he cannot get away with that.

I have the camera it is just hard getting the pictures off but as soon as I do I will be playing catch up with pictures.