Happenings

I know it has been a while since I posted and there have been many things that have happened.  So forgive me while I catch up on everything that has happened.  Let me see where was I???

So the kids have been going stir crazy being at home almost all the time.  Swimming lessons for Nikole and Gavin was through the month of June and into July.  It has been hard on Rhett and Dylan watching their siblings swim and they have to sit out.  Dylan has had it really hard not wanting to go and always saying swimming lessons for him.   Luck for them they started a set of lessons the end of the month of July.    While Rhett was at scout camp with daddy and my car we had to ride our bikes to swimming lessons which wasn't bad it was great seeing Nikole, Gavin, Dylan, and I go to the lessons.  Of course Dylan was in the bike trailer and Gavin was just learning to ride without his training wheels.

Rhett had his exercise study the end of June and he does get higher levels of pressure in his lungs.  So they have put him on some medication to help with the pressures.  He is still taking his breathing medication.  We are also working on getting him to wear his bypap, but he really doesn't like it since it blows air out his ears.  I hope that I will be able to get him in to the audiologist sometime to get really good ear plugs just for him to wear at night.  I hope, but I am not sure he will since he loves hearing the music playing at night. 
Rhett has some very special friends in a non-profit organization that we are with, and they emailed me and asked if they could do a picture for him.  Mural is more like it, since when they contacted me they said the picture would be about 4 feet by 6 feet.  I measured the wall next to his bed and it was a perfect size!  They said they wanted to present it to him at the motorcycle ride that they have every year.  He was so excited!  When they presented it to him we just couldn't help but grin.  He loved it!!!  They said that they needed to get it framed and then they would deliver it.  While he was at scout camp the first week of July they called and told me that they were going to be able to deliver it!!  Holy cow!  When we got home from swimming lessons they were there waiting for us.  How exciting Rhett was going to to come home and his mural was going to be at our house.  He had a lot of fun at scout camp and was able to do many things.  I was just happy that he could go since it is lower in elevation, so this was the first scout camp that he was able to attend.  He came in and couldn't stop smiling when he saw the mural.
As he was taking swimming lessons these last 2 weeks he has learned to float better, elementary backstroke, and front float.  He still cannot go very far since his oxygen cannot let him go very far but still he had a blast.  He has had a great teacher that is so excited for him to progress even so slightly.

Nikole was taking swimming lessons through June and half of July.  She is starting to swim laps!!  I am super excited!!  I thought that my kids would never show an interest in swimming like me.  I told my kids that when they could keep up with me swimming then I would take them swimming with me.   She has been a good helper.  She has been spending sometime with her cousins in Idaho and she loves it since they have a cat and girls!  She is a little homesick but you know that just means that she really loves us!!  She loves drawing pictures and is a great little artist.  She draws pictures for Dylan that he just loves!  There have been a few times that she doesn't want to help and it makes her frustrated when she has to push the wheelchair, or watch her brothers.  I just guess that it is just because she wants to be a normal sister.  I can understand.  She is going to be starting 5th grade this fall and I know she is sure excited to be going to school again.  I guess she has had way too much summer.  Ha ha ha!!!

Gavin is doing great at helping around the house and being a great big brother to Dylan.  Every now and again he just doesn't want to be the big brother.  As he had swimming lessons, he is actually getting better at learning to swim.  He wants to swim better than Nikole.  I asked him how bad he wants to swim better then her and he said a lot.  I told him that he needs to practice lots, so that is what he is going to do according to him.  He can be a frustrating little skinny dude but he is sure a cutie when he isn't throwing a fit like a normal child.  He will be starting 2nd grade and he is looking forward to it I think.  LOL!!  Ok so I am a little nervous about him going since he has always had a little bit of a hard time at school.  But this year it is going to be better, thinking positive thoughts.

Dylan is a cutie!  He has sat patiently through Nikole's and Gavin's swimming lessons.  He had a few out breaks of sadness because he wanted to swim.  But who could blame him I wanted to go swimming too. :)  He was great riding his bike, but while we were riding to and from swimming he had to be int the bike trailer since a little over 7 miles on a 12 inch bike is just too far for that little boy to go.  He also had a exercise study and I am still waiting to hear back from the doctors about the results.  He is funny and he loves to dance.  He was telling me the other day "I am shaking my booty." and I wasn't even sure what he was saying until he had said it at least 10 times and then he was showing me.  What a crack!  He has been saying things that Gavin has said so not I am in the process of correcting both of them.  Of course it is really hard to understand what he is saying until he has said it  over and over again, but still.  He loves running and he always wants to be first.  I think he has learned that from the other kids too.  I just found out not too long ago that Dylan's friend from school Autumn is not going to be at the school next year.  I don't have the heart to tell him since he has already had a few of his friends graduate and move on the the next school.  But there are so many deaf kids at the school they have no room for the hearing kids.  He is going to have a broken heart when he finds out.

I will post some pictures next to catch up on everything that has happened.  I hope that I have a video of Dylan dancing that way you can see him shake his booty as he calls it.

The boys are going to have a few more appointments this month and we are going to get some answers to so very big questions.  I will go into more detail as soon as I can, but for now this is all I have.