The things that we do as a parent you do many different things to take care of your family. Lately I have felt torn between so many different things trying to help my family that I wonder if it would help if I were 2 people.
Dylan had surgery on the 28th of February to get the putty he put in his ear on Christmas out and to make sure his ears were all cleaned out and put new tubes in his ears. I was so worried that the surgery wasn't going to happen because Dylan has been sick for a while. He has had a cough that hasn't gone away for a long time. Just a few days before going into surgery he had some crackling in his lungs. But because he just got off of 2 very strong antibiotics the doctor didn't want to put him on anything. We tried a breathing treatment at the doctors office and it didn't even help anything at all. Frustrating! So by Friday before surgery he was put on steroids and breathing treatments trying to get what he has under control. When we got to the hospital Tuesday morning I was praying so hard that they wouldn't hear anything in his lungs and that his lungs were clear so they could take him into the OR. Gratefully his lungs were clear and he went into surgery. They took him back right before 9 am and as soon as he went back we went down for breakfast. We were starving since we didn't have breakfast either so that way Dylan didn't feel left out. By the time we were done with breakfast and headed back to the waiting room they were done and Dylan was ready for us to go back and see him in recovery. We went right back and he was sitting there drinking some apple juice. What a cutie he was sitting there like that. He wasn't quite sitting straight up he was trying to. Then after a little while he starting coughing and it sounded like he was going to throw up, but glad that he didn't actually do that. They told us that we could take him home about 10 am!! Holy cow that was fast I have never in all my life as a parent had a child that had surgery ever left that soon after surgery. We drove away from the hospital at 10:30 am. The only thing that Dylan wanted all morning was pizza. So we got him a little personal pan pizza from Pizza Hut. He loved it!! He could not even believe that there was one just for him. LOL! He just gobbled it down. So daddy, Dylan and I hung out together all day. We went to the store, we took daddy's work car to the shop and then we went bowling. Then we got lunch and did a little bit more running around that we needed to do and headed home. All the kids were excited to see Dylan they were worried about him and wanted to go to the hospital to see him. He still has the cough but at least we don't need to worry about him having to go in for surgery right now.
Rhett is working on a science fair project. He has to turn it in before the term ends and he also has to his math project which was to sign about his VEPTRs and his small chest. Too bad he didn't get all the requirements when he signed it in front if the school, well not suite the whole school but a lot of 9th, 8th, 7th and 6th grade students. They had some awesome questions and it looked like they thought about the things they asked. The term is almost over for him and he has got so much to do before it ends. I had to show him on a calendar tonight what was all that was due and when it was due. He just looked like so what about it... Grrrr... I cannot believe the attitude that he has sometimes. Then I remember my youth and me giving my parents a hard time but when I did that I would get in huge trouble but I feel like my hands are tied because there are so many things that I cannot do as a parent that was ok for parents to do when I was growing up.
He had a PFT (Pulmonary Function Test) this past week. He is results are not that good. His function has gone down some more, and his volume has stayed the same since I don't know, maybe this last fall. The doctor THINKS that is he takes his Flovent everyday morning and night that it MIGHT improve. The problem is that the medicine is over $100 and that is with insurance. I have it and then he doesn't take it. I seriously feel like I am wasting money when I get it and he doesn't take it. I can't hold him down and force him to take it since he is 12 years old. It is just 2 puffs 2 times a day but it seems that it is too much for him. LOL!!! That cracks me up! Yeah right I know he can do it, he just thinks he can't. But with this PFT we are going to find out what the doctor is going to do for his surgery coming up this month. I am nervous since there are many rings on his VEPTRs that are not holding the ribs that they are suppose to be holding. So I wonder if they are going to have to break ribs or not to attach them back to the VEPTRs. I am not sure it is all a mystery. I guess I will find out later when the doctor sees him and goes over everything. I guess I wish my child was not the doctor's guinea pig and they knew everything there is to know about how to help him. But then I wonder if he was sent here to help the doctors learn more and help people know that there is always good in ever obstacle that comes your way.
Nikole and Gavin have been a little frustrated with each other, oh wait that is Gavin with Rhett and sometimes Dylan too often. Nikole is doing great and I have been giving her more responsibilities to help teacher her about life. I hope that she learns from it. We are working on trying to get her to get her homework done and then help around the house. I have had her help with Dylan more she is still a little nervous helping so much but I just remind her that if I didn't trust her I wouldn't allow her to do so much and that helps her feel very important and respected. So every now and again she asks what more she can do to help. But then she is again only 10 years old and wants to play often just like all the other kids too. She is still doing great in school and we only have to tell her a couple of times to get her homework done. She is one of the best in the house to get her homework done. She puts forth effort to make sure her hand writing is good and that it is correct. I am super proud of her.
Gavin has been acting up lately and it has been making me crazy!! He and his siblings fight more and more but he seems to be the one who cannot control his temper no matter what. There has been some problems getting him to complete his homework but then when he does it and works really hard on his hand writing he does a great job. He just told me the other day when he was fighting with Dylan and I asked him if they can just get along, I just about died when "I will only be nice if I get to do what I want to do." came out of his mouth. I was so very upset with that attitude and informed him if he didn't change it then there were going to be serious consequences. He can be really great and helpful when he wants like any other 6 year old. He is doing better in school and his teacher is going to be coming back from maternity leave this month. I hope he can be on his best behavior for her. He was happy to have a book from the book fair to give to her. He loves writing about angry birds and coloring his pictures from the story he has written. He has even written a letter to all of us meaning to his family, mom, dad, Rhett, Dylan, and Nikole. They were sure funny and cute. He wrote pretty much the same thing in each of them. You are the best in the whole world. LOL Best brother, best little brother, best sister best family, best dad, but mine was different he told me that he loved me so much and that I was the best mom. I wish he thought that all the time, but I guess it comes and goes.
I will have to post later about Rhett's Pre-op appt that is happening soon and let you know what is going to happen and what the doctor thinks would be best for him.
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