I know.... So much info

Well man this last 2 weeks have been a killer with things that we had to do.  I hope that it isn't too long for you but hack it was a lot.

For starters I had to take Rhett to the cardiologist Tuesday morning and that was a hard thing to set up since they wanted to wait until the end of the month and I told them that I wouldn't have that and he needed to be seen sooner.  So we got in and saw the doctor which I was happy about.  The doctor said that Rhett will start to desat in less than 5 minutes.  His heart sounded great and his blood pressure is great.  So they asked me to come back Wednesday and get a ECHO done and then they would call me with the results.  So after I took it him on Tuesday I took him back to school.  Then Wednesday right before the ECHO I took all the kids to the Fair to get a hand stamp and that way we could go back after they get out of school and after daddy comes home.  So after we went to the Fair I took all the kids but Rhett to school then headed to PCMC to get Rhett's ECHO done.  We had the ECHO and then I took him to school.  After that the day went pretty fast and the doctors office called me that afternoon and told me that they couldn't get a very good reading on the pressures that he has, but that he does have some flatting of his heart.  There was a slight elevation in his pressures that they could measure even though it wasn't a lot.  They did tell me that when he does strain his heart and turn blue it does elevate his pressures but no idea how much.  Too bad that he does that more and more every week.  Then Thursday I had to take him to the pediatrician.to make sure that he was in the loop with what was going on and get his input.  He said Rhett looks healthy and hope that all the testing and seeing all the doctors will provide answers that would not be available otherwise. Lucky for me the weekend was a little relaxing.

Then the following week I was grateful that my husband had work off and that we were able to spend the week together.  Monday was fun after a meeting that I had first thing in the morning we went bowling.  It was so much fun!  Of course I am not very good but I hope that I will get better and so I can beat my husband more often. :)  LOL!  Then we planned our next day.  We just had so much fun spending time with each other.  So Tuesday was our anniversary!  It was so much fun to spend the day together.  He took me to a meeting that I had that morning and then we had decided to go hike Mt. Timpanogos, but when we got there we found out that it was closed.  I had planned a babysitter for the evening so we had the whole day together.  Since we were down that way we decided to hit up some Deseret Industries looking for bowling items since my husband is on a bowling league.  We found some bowling balls that we could use and some bowling bags since he wanted me to have my own.  LOL!!!  We went bowling again that afternoon.  Then we went out to dinner and then to a movie.  Grabbed some ice cream for us and the babysitter on the way home.  It was a great day!  Wednesday was a crazy day that we had.  We found out Tuesday night that Rhett had parent teacher conferences and the last day was Wednesday between the time school got out and 7 pm.  I had called to get Rhett dropped off at the same school Dylan was at and I could pick them up at the same time.  There was some communication error and we were told that he was at the other school after I had told them to take him to this school.  So as we were going to the other school I called the bus driver to see if he had Rhett, and he told me that he had done what I asked and took him to the same school as Dylan.  So then we turned around and drove back to the school and found Rhett.  As soon as we got him we headed to the other school for parent teacher conferences there and then head back to the deaf school for their parent teacher conferences.  Well there are some classes he is doing great in, but most of them he is figuring out that it takes work to get good grades.  He has so much work to make up.  It really sucks!!!!  We headed home about 7 pm so then at 7:30 pm Rhett was taken to scouts  As he was being dropped off I put the other kids to bed and then Rhett came home almost at 10 pm!  Crazy late since he does get up about 5:45 am.  At this point I felt like I had been hit by a truck.  So I took some meds and went to bed.

Thanks to my husband who let me sleep a little longer Thursday than normal.  But not really late since I had to be at court by 8:15 am.  I was told I had to be there to testify against the man who had broke into my house a year ago.  Lucky for me my husband was there to help calm my nerves.  I talked to several police officers and they so nice.  Lucky for me the man that broke into my house and stole stuff he left his DNA that the police got a match on it, and that person was in the prison when they found out there was a match.  Going into the courtroom and having someone from the DA office ask me a whole bunch of questions was very... how do I put this...  I was trembling!  He was sitting there shackled and there was an officer sitting right behind him.  He had that expression of I can get away with anything that I do and I am going to just get a smack on the hand for this.  the detective that worked on the case was also there after someone that he works with called him and told him that he had court.  Glad that he got there before it was our turn.  The Judge decided that there was enough evidence to hold him and charge him with all the things he is being charge for that was just for our case that didn't include the other things he is being charged for.  After going to court we went bowling with Mr. Dylan since he was the only one that was not in school.  We had so much fun! 
Friday was a strange day since there was no school for Rhett and Dylan but not for Nikole and Gavin.  Which was good since Rhett had a pulmonary appointment Friday morning since we needed to measure his lung volume to see if his lungs have grown from the last surgery that he had in April.  His total lung volume went up a little but I guess it is better than nothing.  He had 1.09 February and he now has 1.33.  The only problem that I saw was that the other numbers went down.  After every blowing test that he had he was blue around his lips and he told the techs that he needed a oxygen break.  As soon as we were done at the hospital we went and got the other kids from school and took them bowling.  By that time my arm was killing me!!  LOL!!  I couldn't even bowl normally, he he he.  Oh well that is ok.

During this time I have had a cold and it just got worse and worse.  Finally by today I am finally starting to feel a little bit better but I am still coughing and my voice sounds horrible.  I hope that it goes away and my kids don't get any of it.

Sorry this was a long post but trying to cover everything that has happened in 2 weeks is a little overwhelming.  I will be posting more now that there isn't one thing after another I hope. :)

How much more can I take??

So many thing have happened since I last blogged that I have to play a huge catch up on information.

This past week Rhett has been complaining about his heart hurting meaning that his heart is pounding so hard that he is feeling it through his whole body.  At one point I had him check his oxygen levels since he looked pale and was telling me that he was having a hard time.  He actually wanted to wear his bypap at 5pm since his heart was pounding.  When he checked his oxygen levels he was at 96 and sitting there not moving.  I was not happy about that since he is on about 2 liters of oxygen and that for him is A LOT of oxygen.  To top that off Friday when I picked him up from school he was completely out of oxygen and around his lips were blue!  I was so frustrated with him.  He decided not to tell anyone because at the school he was at there was no other oxygen at all.  It is a good thing that I carry oxygen around with me just in case things like this happen.  But as we left the school we were on the road maybe 10 minutes Rhett just fell asleep in the back of the car because he had been without oxygen for so long that it made him really tired.  It is a good thing we are going to be talking to someone soon about this.  It is quite scary for me having him do this to me for a whole week.

Nikole is still not doing her homework!  What the heck!  I am getting not very happy with her.  I tell her you are in the after school program so you can get your homework done before you get home.  Since as soon as she gets home it is like let's play with my brothers!  So happy!  So I had to inform her that since she didn't get her homework done that I will have to talk to the after school people and there is a good chance that she will not be able to go.  ARGH!  Not happy mommy right now.

Gavin is doing great at getting his homework done even though he is in the after school program too.  Very cute seeing him come home all happy after fighting with him to get him out the door in the morning.  It is good that school is so much fun for him and I hope that he starts loving it and wants to go to school.  He does like walking to and from school with Nikole and it is great not having to drive everyday like I had to the many year since Rhett cannot walk that far.  I hope that They will walk all year long. :)  Happy dance!

Dylan is having a hard time keeping his health good since the weather has been changing radically.  It is quite cool in the morning and by the afternoon it is around 80 degrees!  So he has caught a cold and his poor nose is green I am going to have to take him into the doctors eventually.  But his little bottom is also very sore from his cold. :(  It is like we are always having to stay on top of the diapers since he has no want or desire to learn how to use the potty.  They are helping at school too but the teacher also tells me that he has no interest in learning.  He loves going to school and playing with his friends mostly Autumn.  LOL!  She is a sweetie and he is so cutie if you ever mention her name he just grins and says that is is his Autumn. :)  They are the same age meaning born the same month so they will always be in the same school class which I am very grateful for since they get along so well together.

Finally this past Friday I took my test and PASSED!!!  I am so excited!  I was scared that I wouldn't pass since there was a lot of grammar and reading things on the test and to be honest I am not very good with things like that.  So scary for me as I was taking it I was second guessing myself and and knowing that I am not very strong in those areas.  So after I finished the test I made sure that I answered every question but I refused to change any of my answers.  I had prayed that I would be able to pass the test and when I was having a hard time deciding what answer to choose I just went with the answer my gut told me to pick.  The passing score is 460 and I got 478!!!  I did my happy dance and was singing "I like to move it", but then Dylan got mad at me and told me that he likes to move it.  LOL!  I love how he tries to sing that song.

Now it is a new week and a pretty crazy one here.  I will have to post some pictures before I post anymore since it has been a very long time.

The end of August

Oh boy the end of August was a very frustrating time for me.  I cannot even go into detail about it because so much happened.

Rhett has been trying to get into the swing of things and so far has been doing good at school.  He has left his homework till the last minute which is driving me crazy!  If he keeps this up I might have to admit myself to the funny farm for sure.  He has almost been late for the bus a few times too.  ARGH!  He is going to give me gray hairs if he doesn't stop this, ok I refuse to get any gray hairs so he better knock it off.  His bus driver is amazing!  He picks Rhett up first and actually comes to the door to help carry Rhett's things to the buss and make sure that he is on the bus ok.  What a great guy!  Thanks Ryan!  I really wish Rhett would learn to listen better and follow direction but I guess he is at that age where he is just going to do what he wants to do.

Nikole is doing great but has also been leaving her homework till last minute too.  NO!  Not another child that procrastinates.  She is understand more but tells me that she needs help.  LOL!  It is like mom I need help and when I try she says oh I got it.  What a funny girl.  She is a great big sister and makes sure Gavin gets too and from school safe and her too.  She is doing great nad I know she will get better this year.  Nikole did get the teacher that I had requested!!  I am so excited!

Gavin is I hope doing good.  I forgot to take him in for his testing since they yelled at me the first day of school to let them walk themselves home.  Oh man that was bad!  I guess I am going to have to talk with his teacher and let her know that I am really sorry that I forgot.  Gavin also got the teacher I had requested!  YEAH!!  I hope that this school year will help him more and more so then emotionally he will be great by summer and have no more melt downs.

Dylan has a new teacher this year and she is really nice.  I met with her this past week and talked about all the things that is Dylan that I have noticed at home, since she needed to get some paper work on all the kids that she has only known for about 2 weeks finished.  LOL!  Like the teacher really knows their kids they teach within 2 weeks of meeting them.  I wish the state would give them a little more time to get to know the kids.  The school got a new playground since they didn't have one before and it was really cute seeing him run outside and want to play.

So happy that school is back in, for now I guess it might change in a day or two we will have to see.