Sunday, September 23, 2012

Nerves are going to end right?

It is coming up the meeting with all the doctors and to be perfectly honest I am scared of what the doctors are going to say.  We are getting the orthopedic surgeon, the cardiologist, the pulmonologist, geneticist, the pediatrician, a few social workers, and a case manager.  I am just wondering what the doctors are going to say and what that will mean for us telling Rhett the decisions that he is going to have to make.  The bad part is that I am going to have to give all the information that the doctors have to Rhett and then asking him what he wants to do with that info.  Then I and daddy will have to enforce what Rhett's choice.  How many people have said that they let their 13 year old make the decisions about their life.  That is basically letting him decide if he is ready to be done with everything and let life run it's course or keep going and doing what we have been doing all this time.

Oh man I am so nervous....  I would love to know what others would do in my place.

Saturday, September 15, 2012

Little quick update

Dylan was so cute the other day he walks in and says to me, "I need my oxygen."  When I turned and looked at him I asked why he needed that he looked at me and said "I needed to be like Rhett."  He was such a cutie getting his oxygen out and putting it on.  Then he got so frustrated when his cord would get stuck on the things on the floor and the walls.  It was super funny.

On a totally different note...  Gosh waiting for doctors can be so stressing.  I am still not sure when we are having this huge meeting.  I think that they are going to have the meeting this month but man the stress is mounting.  I cannot wait!!!

Rhett is tired and the teachers have noticed and have told me that he doesn't even want to walk from his chair to the board.  That just about broke my heart when I was told that.  He is struggling in school getting things done and turning them in for full credit.  Why can't he just get stuff done on time?  He has been treated like any other child and that is how it is going to stay as long as possible.

I have to post pictures of everything latter today.  It is going to take me a while to get them all up so please be patient.

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