Tuesday, August 23, 2011

Well well well...

When I started this blog it was to help my family (mostly siblings that live really far away) stay up to date on the goings on in my house.  Since there are sometimes that we have a really hard time and other time it is great.  Also to help other families try to connect.  I have been searching for other families like mine.  Trying to find people that have what Rhett and Dylan have is very hard to do when we have stumped doctors all over and they are not even sure what the boys have.  I was hoping to find someone that could relate.  No such luck but I have made many friends and it is nice when there are things going on in my house that is making me crazy I know I have some support.  It is nice that I don't have to repeat everything over and over again and I can just let people know they can look here ot find out the goings on.

On a different note....

What have we here?  Somebody decided that it was in their best interest to gossip about me.  I am very disappointed.  I sure hope it was worth it to them.

Rhett was late for school because the time I had was right and the bus driver's time was wrong.  LOL!  He has got a awesome bus driver.  He had to drive over his route again today after he dropped Rhett off to see how long it would take and try to calculate the time with the traffic to see what time he will have to pick up Rhett.  I got a call tonight and Rhett is going to have to be picked up about 6:30 am.  Oh the mornings that we are going to have here.  Two buses and then two kids either walked or dropped off.  I almost feel guilty for being happy that I will be childless.

Gavin and Nikole met their teachers and saw where their desks are and also found out who is going to be in their classes with them.  They are SO EXCITED!!  They have been getting along great together mostly when the other boys are at school and when they have a little problem they actually work it out pretty fast.  I witnessed it all day and I was just amazed at how well they played together.  I am glad that they have each other.  They are happy that there are so many things that they get to do together that they were too small to do before but are now big enough.

Sunday, August 21, 2011

Oh man!!

Oh man!!!  School starts tomorrow for Rhett and Dylan.  I am so stressed about it.  The school sent me a schedule for Rhett saying that school starts at 7:50 am Mondays and Tuesdays through Fridays school starts at 7:30 am.  But the bus coordinator has the schedule is set to have school start at 7:45 am everyday.  ARGH!  Why can't they send out all the same information?

Last year they had something that the older kids could do after school but this year I was told they didn't.  So now I have kids getting out of school at different times but at the same school.  I was hoping that Rhett and Dylan could come home on the same bus at the same time.  Rhett will be getting out of school at 2:50 pm, but Dylan will not get out until 3:30 pm.


They are also being picked up at different time Rhett for now is going to be picked up at 7:00 am and Dylan will be picked up at 7:45 am even thought school for Dylan doesn't start until 9:00 am.

Oh the numbers in my head are spinning.

The schedule for Nikole and Gavin have not changed for a while which is good.  Since I know the school time by heart and have no worries about it.  I hope that they will be able to walk to school together often this school year.  It has been hard for them not being able to ride their bikes or walk to and from school because it was so hard on Rhett we just picked them up and dropped them off 99% of the time.  There was that 1% when we walked or rode bikes but it was really hard to since I had to have the bike trailer just for Rhett's oxygen that he was going to need at school.  But that is quite sad that we only live 5 blocks away and from the time Rhett started 1st grade to the time he finished we hardly walked over there or even rode our bikes.  I hope that can change with just the other 2 going to school there for at least this year.

As for me I am studying for my test that is coming up on September 9th.  We are going to pray really hard that I understand what I need to and pass the test.  I know I can do it.  Wouldn't it be nice if everything worked on faith and faith alone?  Ahhhh.....  What a life that would be.  Oh well it is going to take Faith and lots of practice and studying to make sure that I pass.  It is going to be great after I pass.  I can hardly wait!  Ok maybe that was a little too much excitement.  LOL!  Just thinking about it freaks me out and makes me worried and stressed so I am trying hard not to think about it too much as you can tell.

This is going to be a good week!  Positive outlook as you can see.

Monday, August 15, 2011

Clarification..

Ok so I have been told that there are people getting the wrong impression about my knowledge for who my kids are going to have as their teachers this year, meaning Nikole and Gavin.  Just to let you all know I have requested certain teachers for them and I have been presuming that my kids will be in the classes that I have requested.

There is nothing in stone and I have not been told that they are or are not going to be in those classes, I am just going with my mind in thinking they are going to be in the classes that I have requested.  If they are not then bummer since I worked so hard finding out who the best teachers would be for my kids.

I just wanted to set the record straight that I have not been given any information regarding the school year.  I am like all the other parents out there not sure but hoping that my requests have been heard.

Sunday, August 14, 2011

My mind.....

With all the things on my mind there are good days and not so good days.  Today was not a good day.  Yesterday was different it was a great day.  Man sometimes I feel like I am on a roller coaster and there is nothing that I can do to get off or even make it not so up and down.

There are several things happening at the same time in my life and so I cannot focus on just one thing at a time.  The kids are starting school next week and I am happy that they will be going back I just need to make sure that I have something that I can do while they are at school to help pass the time.  I am going to miss them while they are gone but I will not miss the fighting and the not listening.  the owner of the buses that will be taking Rhett and Dylan to school called to let me know that they have to make sure the oxygen is attached to the bus while he is taken to school and returned home.  But I have not heard back from him and school starts in a week!  He better give me a call soon so we can get this taken care of before school starts.

Rhett is suppose to be on Flovent 2 times a day but he is just not doing it.  We are going to be going in for a Pulmonary Function Test (PFT) soon, but the doctor thinks that the Flovent will help improve the results of the PFT.  I highly doubt that but whatever.  I got the medicine and he isn't using it, GRRR!  That was $120!  I told him when I brought it home that he better use it all but ARGH!  Not like I can tie him down and force him to use it.

There are many people that will see Rhett at an event that we go to with Hope Kids and/or Angel's Hands Foundation.  They always think that he is a such a great kid.  Which he is but sometimes it goes to his head and then he feels like it is all about him.  LOL!  That is Rhett for you.  Give him a inch and he takes a yard.

Thanks to Angel's Hands Foundation we were invited to a Monster Truck show just yesterday and it was so much fun!  The kids even had a lot of fun.  To only problem was that we didn't know the thing that they put on the oil when it spills is toxic!  What the heck!  They kept repeating over and over again that any eye contact with the dust from it should be treated by the medics.  Oh that is great what if it is inhaled?  They never said anything, but my lungs felt horrible last night and most of the day today.  I also had a sick child this morning even though we left before it was all over.  Our family had such a great time!  We have never been to an event like that before and all the kids liked it except for maybe Nikole, but she did have fun.  LOL!  Thank you Angel's Hands Foundation! You can see more about them at angelshands.org they have a new site.  It looks great.

There are things that I would love to write to help get them off my mind but I cannot seeing as I don't need the wrong people reading it.  I know most of the people that read this really care and are such an amazing support to me.  I am grateful for all the support and love that I get from those that have been following my blog.  Thank you.

Friday, August 12, 2011

Let's think

Ok so I know it has been a while but things are snowballing here.  we are down to less then 2 weeks before school starts.  I am so super excited to have the kids going back that I cannot stand it.

Rhett, Nikole, Gavin, Dylan and daddy all went to my family reunion since I had other obligations and couldn't make it.  They had a blast and I was glad to have some quite time at night.  They left Friday while I was busy and made their way to my aunt house in Idaho.  I missed them but seeing the pictures that people took was great!  How I love my family!!  I was glad that they were able to go even though I couldn't go.  They did some service projects and many other things Saturday and then came home Sunday.  They got home around 4:30pm Sunday and I was so happy that they had made it home safely.

I have registered all 4 kids for school and am waiting to hear back from the transportation company that will be taking Rhett to and from school since he needs to have oxygen.  I heard from them once but haven't since then.  I think I will call them and see what I can do since there is less than 2 weeks before he has to go.  We are thinking about getting the portable oxygen concentrator out making sure it works and then having him take that.  But the only problem that I have with that is the battery would die often and he wouldn't plug it in and charge it.  It makes me so mad that he thinks he can do whatever he wants even though it make breathing really hard and he will also turn blue very quickly.  Oh the stress he puts on me.

I informed Nikole and Gavin who their teachers were and they were happy to know that their classes are going to be next to each other.  I am happy that I only have to go to one door to drop them off.  I am glad that they are actually happy to start school again.

I asked Dylan if he wanted to see Autumn and his other friends at school.  He looked at me like I was crazy and then when he saw school his face lit up and he nodded.  At least he is happy about school even though he is only 3 years old still.

Now all I have to do is get them on a schedule before school starts so they are getting enough rest at night in order to function through the day.  That has been a bit of a challenge more so than thought it would be.  Mostly because Rhett is now 12 and wants to do what other kids do and be up all hours of the night.  ARGH!  That child can push some buttons and needs to learn that he cannot get away with that.

I have the camera it is just hard getting the pictures off but as soon as I do I will be playing catch up with pictures.

Monday, August 1, 2011

WOW long time

Ok so I know that it has been a while since I posted.  I am really sorry.  Things have been crazy busy here.  After Nikole's pageant, was Gavin's birthday and the day after that we headed out to a family reunion in Las Vegas.  That was quite a trip.

Thursday was Gavin's 6th birthday.  He had a blast!  The house was all clean and of course I didn't get too much sleep trying to make sure the house was clean and decorating and getting ready for our trip all in one.  We had his party where I had rapped all of his gifts and then put them in a big box and rapped the big box.  It was great to see him all excited about being 6 and is now very excited to start 1st grade too.  We actually ran out of cake and ice cream which was quite sad since he didn't get any because he was busy opening presents and didn't want any at the time.  Oh well there is always later right? :)

We left here Friday after work and got there around 3 am Utah time and 2 am Vegas time.  I was saying weird things and so not able to drive since I hadn't gotten a good nights sleep in a few days prior to leaving.But after we got there we slept in the next day and then went swimming first thing in the morning which the kids loved.  We actually swam everyday that we were there and I was sad to realize how much I miss swimming.  We met with family and had a great time.  We walked around some of downtown and saw many things and got a whole bunch of pictures I just have ot find the camera.

We left Vegas Wednesday to come home since Rhett and daddy were planning on going to scout camp Thursday morning.  We made it home before midnight which was great and Rhett was able to pack everything he needed or more like everything that we had that he needed to take with him.

Thursday was a busy morning and then came to a stop. LOL!  As I was helping them get ready to leave Rhett tells us that he doesn't want breakfast and he was coughing quite a bit.  Which is a sign that he is having a asthma attack. :(  Not a good way to start off scout camp.  I give him his Flovent and his Albuterol and sent the inhalers with him.  I was still worried and said a pray hoping that I didn't get any phone calls the rest of the day.  Good thing he is already on oxygen and that daddy was with him.  After the boys made sure they had everything they were off and me and the other kids stayed home which I was happy to do since I was so very tired from our trip.  We all veggied and cleaned up from our trip which was easy since most of the clothes that they took with them were clean thanks to the washer and dryer that we had in our condo/hotel.  Later my mom came over to watch my kids, but then I get a call telling me that Rhett and daddy were headed home and he would be able to have all the kids while I went to work.  It was great to have that time with adults.  It worked out great!  Rhett had a great time and had stopped coughing after being up there for a little while.  He did need his inhalers at least one more time, but that was it.  Glad that Thursday was over.

Friday was a little different since it was the day that Rhett was going to be spending the night at scout camp and I was scared to death!  I was worried since this was his first overnight event with out me being there and I had a hard time with it.  No wonder I couldn't sleep very good.  They packed up a tent sleeping bags and everything that they were going to need for at least 2 days.  Man was a I mess.  I probably didn't look it I guess it was because I just told myself not to think about it.  I went to work and my parents had the other kids until I got off work and then I took all of them out to a play at the Off Broadway Theater.  It was great to get out and get my mind off of not having Rhett or daddy home.  I can handle not having daddy home since he does travel for work some times but not having Rhett was another thing.  He has always been with me and it get hard not knowing if everything is ok or if he is waking up or if if if.....  It is like a million things that could happen and I wasn't there to make sure or know anything about it.

Saturday was a hard morning for us all. the other kids were not feeling great and I was just stressed to say the least so the plans we made fell through since I didn't want to take any type of sick kid out.  Lucky for me they got over it by lunch time and were ok the rest of the day.  I have 3 kids all playing nice and making sure the house was clean and just playing it was great!  There was a whole bunch of peace in my house.  Rhett and daddy came home around 1 pm and then we had a whole yard to care for since we have been very neglectful. LOL!  That is what happens when you have to take care of yourself and not the house.  We got some of it done and then I got sick from the heat and was done for the day.  I let the kids play outside on the slip and slide that Gavin got for his birthday.  Then we went and got some cute clothes for our new niece right before we went to dinner with the scouts.  I never know scouts were so weird.  I guess it is a boy thing.  LOL!  It was great seeing Rhett with these boys that he was at camp with and seeing for myself that he was being treated like one of them.  Made me smile to see that they treated him nice and it was the same for all of them.  They were being nice to each other which was great.  After we were finished we went and said hi to my sister in law and saw her new baby and the rest of the family.  After coming home I decided to give the boys hair cuts and started with Gavin.  After I was finished Dylan was eager to jump in and be second to have his done and of course Rhett didn't want his done but got it all cut off anyway.  Then I made them all jump in the shower and make sure they all got clean.  It was great to have them clean and with hair that is not blocking their ears. :)  While I cut their hair daddy went out and finished up cutting the grass.  The yard looks so much better then it did.

I found the camera but I have not gotten the pictures off of it yet so as soon as I do I will post some pictures to show you our grand month of July.
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