Monday, December 28, 2009

Happy Holidays!!!

Ok so it has been a while since I last wrote which I am kicking myself for that reason right now. It has been a whirl wind of a holiday season for our family.

First Nikole found some Christmas presents that were from "Santa" and got in big trouble. Next Rhett and Nikole found more "Santa" presents! Ok so we did a terrible job this Christmas hiding gifts but heck you would never see them if you weren't looking!!!

But Christmas day was just awesome! I reminded the kids that the reason we celebrate Christmas is to remember what the Savior Jesus did for us. And they knew exactly what I was talking about! :) Made me so proud!! I told that that we should be very grateful for everything that we have and remember to tell the Lord everyday. You know what it works, so far every day they are saying "Thank you" in their prayers more then they were before.

On Christmas Eve I had to take Dylan to get his Synagis for RSV and while I was there I took Rhett in and he ended up getting 2 breathing treatments and then a stress that we really need to see an allergy doctor that we are seeing on the 31st. Oh the joys!! My poor boys, Dylan gets 2 shots one in each leg and Rhett gets 2 breathing treatments and to top it all off is the fact that we were at the doctors for 2 HOURS!!! Holy cow that is way long!! Now Rhett is on Drugs out the nose and I am not sure if I am going to be sending him back to school even after the break if his breathing doesn't get better I might just have to keep him home. :( The reason for that would be because his portable concentrator only puts out 3 liters at a time and at home he is on 5 liters. But when I took him to the doctors on the 24th he was sating at 92%-93% on 3 liters!!! That is so bad it isn't even funny! He really hates it when doctors say take a deep breath. He looks at me like what do they think I am doing? Hello can't you see me breathing? LOL! He cracks me up! Then they get all crazy because he isn't breathing like he should be, well duh his lungs are really really really small! He tells me all the time that the breathing treatment don't help and that the oral steroids don't help and that the inhaled steroids don't help. Well then little boy what does help? He isn't sure... He hate the fact that he has to stay inside most of the time. He hate that his oxygen hose gets caught on everything and everyone. It is making him crazy! I wish I had a place for them to play that wouldn't be a danger to their health. He wants to play with Sara outside like Nikole but knows that he can't. Sara is too strong for him and pulls him down when he is holding her collar. Meet Sara!



He loves her so much that one day before she had gotten over her separation from her family he tried to comfort her by sleeping next to her crate.





She is under that blanket in her crate. I found if I cover her she doesn't bark too much unless she really really has to go outside. LOL She is a true girl and won't go the the bathroom outside unless she has a friend to hold her hand. :) Silly dog. I just hope we can keep her, my kids love her but Rhett might be allergic to her and Nikole's cat Rosa. Nikole loves both of these animals so very much and will be so hurt if we had to get rid of them, but the doctor thinks that he is allergic to the cat for sure and that is why he is having a hard time breathing.

This is how much she loves Rosa. This is the day that she got her for her birthday almost a year ago!



This is how much she loves Sara.



Picture of Nikole and Sara after they finished running around the backyard the 2nd day or 3rd day that we had Sara.



What would happen if we had to get rid of either of these animals? :( I would be so sad for Nikole's sake. The kids are working so hard to make sure the house is clean enough that they can play with Sara in the house since she is still a puppy and looks for food all over the place.

Gavin is having mood swing after mood swing but that has been so normal for him I am not sure if that is a good thing or a bad thing. He has missed a week of school and can't wait to start again. Oh crap I need to help him with poster that he has to do for school! Oh man I totally forgot! I guess I better get on that with him Wednesday since tomorrow is booked solid.

Dylan is just loving life and learning to run and dance and throw fits that are HUGE!!! I had to put him in his crib while me and my husband made dinner because he wouldn't stop screaming and wanting to be held, and since we were both cooking over hot items neither one of us could hold him but when I picked him up he kept hitting me over and over. Can we say lack of communication! That kids has got to start signing soon before it kills me! LOL! It gets very frustrating when no one understands what he is asking for and what he wants. He is such a cutie and I have a great picture to prove it.



Look at his golden locks! He is such a cutie!! I will have to post more pictures now that he has had his hair cut.



The funny face that he is trying to show me! What a sweetheart! Love him learning!

I love my kids! They are the world to me! I would do anything I could think of to help them if it was in their best interest. I will try ot post more pictures tomorrow.

Friday, December 18, 2009

WOW less than 1 month!

Dylan turns 2 in ONE MONTH EXACTLY!!!! How time flies! I feel like all my emotions are going crazy! I am jumping from one thing to another...

Rhett gave me a huge stress factor last night. He has been telling me that he doesn't feel good but couldn't tell me what was bothering him other than a headache. I told him to go to bed and it was like me telling him over and over again. He keeps telling me that he couldn't sleep. Yeah how many kids say they can't sleep in the month of December? lol Well between me and my husband we kept telling him that he needed to go to bed and put on his by-pap. Well he finally did and went to sleep. (On a side note a little about his by-pap it is a full mask that puts about 4 to 8 liters of air into his airway to keep it open. There is a little adapter that his oxygen is able to connect to that way he is never with out his oxygen. At this time he is on 1.5 to 1.75 liters of oxygen.) Well he slept most of the night and I was getting things done like my laundry. lol Well around 2:30am he came out of his room and told me that he was hot, well after feeling his head his belly and his arms I came to the conclusion that he was cool to the touch meaning he didn't have a fever. So I sent him back to bed and and told him to put his by-pap back on and so he did. As I was sitting here trying to figure out why he was not feeling good I decided to check his sats and found out that with his by-pap on and the oxygen his sats were at 92 and dropping. His heart rate was 130! Holy heck what is going on with his little boy?!?! Ok since his sats were dropping rather quickly I decide that I would raise his oxygen. I turned it from 1.5/1.75 liters to 5 liters, and for anyone that doesn't know that is A LOT of oxygen. So he was wearing his by-pap(blowing 4 to 8 liters) and his oxygen(blowing 5 liters). I am sure you can do that math but heck if you can't I will just inform you that that is so much air and oxygen that he was basically breathing straight oxygen. Ok so after I run back to check his machine and he was slowly starting to bring his sats up. After about 15 minutes his sats started to stabilize at 96! WHAT!! 96!! That is so not high enough since he is breathing that much oxygen. CRAP!! His heart rate was still quite high at 119. OK so a normal heart rate would be between 80 and 90, and an infant heart rate is 130. lol At least it has come down a little. I sat there thinking about everything that had happened in that 45 minutes, and almost broke down. How I wish I could cry and get something out of my system, but no if I do that then I am not sure if I could stop crying. I was sitting there thinking that if he dropped again I would have to call 911 since there is nothing more that I could do. I had to prop up his bed and everything. Finally he slept and was sating at 97 and his heart rate was finally at 87!!! YEAH!!! No 911 call unless he bottomed out again. I tried to get tired but all that adrenalin was still racing through my body and it took a while for it to all get out. I wasn't able to sleep until almost 4am! Oh man I have to get up at 6 to get everyone ready for the day. :( This really sucks! Well Nikole woke me up at 8 am that is the time school starts!! Oh crap!! Well since my husband didn't have to work, of course he didn't get up until he wanted to. So I threw a coat on and my boots and luck for me Nikole was already dressed so I raced her to school and then came back home to get all the other boys ready for the day. I told Rhett that there was no way he was going to school today because of his oxygen issues. He really didn't want to miss today just because it was a Christmas party day. Oh well health first! I called the doctors office right before the doctor would be there and let the nurse know what had happened and asked her to relay to the doctor everything that way they could tell me what he wanted me to do. Well the doctor told me that I needed to come in today and have Rhett checked out. Ok well I wasn't going to make an appointment and then wait all day that would be dumb! So I just took him about a hour after they called me and told me to bring him in, they just worked him in. LOL It is great having my kids because most of the time I can usually just walk in and they will work my kids in since the boys need to be seen when they need to been seen. Well he sounded fine according to the doctor and so he wanted to take an x-ray and that came out crystal clear. FINALLY!! The doctor is understanding that the PFT says that his lungs haven't grown in 3 years, and he is finally getting the info and realizing that not all of Rhett's breathing problems are asthma. YEAH!! I have been praying that someone would come out of denial soon, because I hate being the only one not in denial. Well he said that he would contact the pulmonologist and the cardiologist and have to have a meeting with all of them in the same room to determine what needs to be done for Rhett and the best things for him. Oh the drama!!! Now that doctor wants me to keep giving him breathing treatments even though Rhett looked at me this morning and said "You know mom, this doesn't help." surprise that he knows his body and knows that he is not having asthma problems. As always he and Dylan are medical mysteries.

Well Nikole went to school and had to sit out on fun Friday since she didn't behave very well the day before. She was not happy and told me she had a very bad day. Well of course you did but who's fault is that? lol She needs to learn to behave in class at all times, not just when she wants to. She has been crying often recently because kids in her class have been calling her names and making fun of her. Oh this is making me so mad! But when I talk to the teacher she told me that she would keep an eye on things and try to help remedy the problem but one thing is that Nikole still acts different and so the kids make fun of her. So I am trying to teach her that she has to change her actions that way the kids won't make fun of her for that reason. I feel bad and I wish there was more I can do to help her more. If things don't get better I just might go in an tell these kids that they had better knock it off. I can only take so much and I know that Nikole is going through a lot having to deal with things of this nature on a kid scale and I know that there are no other kids at that school having to deal with anything like what my family is going through. Thing have got to be so hard on Nikole, Rhett is like her best play mate ever!! I have pictures of them playing together and being the best siblings to each other. Before we moved into our house we lived at a duplex where there were no other kids to play with so they only had each other. Here is one that I love and will treasure forever!



They were watching Claymation Christmas, and enjoying each other. I really hope that she will be ok and I pray every day for my little girl, she is so very special to me! I am crying as I write because I know that she is having a hard time and there is NOTHING I can do to help her. :( Her and Rhett have almost always been buddies, through good times and bad. I love you Nikole!!

Gavin refused to take his antibiotics and hadn't completely recovered from strep so he didn't even go to school this whole week. Man how I wanted to just send him, but I was a good parent and kept him home when he was feeling sick, so that way no one else got sick. But he will be going back starting in January. He can't be sick for too much longer. lol I some times think that he wants to be but after staying home being bored he misses school, guess that shows him. :)

Dylan is a walking machine, and getting better everyday. Recently he has tried to run. LOL!! He is just so dang cute! I love the fact that he is so small and can be wearing about 6 month cloths and be walking around in them, it makes him look so cute since baby clothes are way cute anyway. He has also given a shot to jumping, that is so funny because he will move his body up but his feet stay planted on the floor. He will do it again and again because I think he thinks he is actually jumping and it is so funny to watch. We are still trying to get him to communicate with us and it can be so very hard at times. I sure hope he starts picking it up soon. It would be nice to be able to talk to him and have him talk to us. :)

As for myself and my husband we are still doing everything we can for our kids. Working on stuff here and there. Trying to figure out things before too late. Just living from day to day not knowing anything and that really sucks. It would be nice to not be the only one facing what we are facing head on but maybe this is the only way that he can keep going. I hope that he will be able to face it and know that it hurts but also know that the Lord is very aware of what is going on and will provide comfort when called upon.

I wish you all a very Merry Christmas and a Happy Holidays!! Don't forget the reason for the season.

Monday, December 14, 2009

What a weekend!

Well all things considering it has been a pretty crazy weekend. Let's see where to start...? Well Jaren's uncle passed away on the 4th and the funeral was on the 12th. well because our car is trying really hard to kill over we couldn't all go. Jaren got a ride with his parents and brother down to St. George and the kids and I stayed home. It went well and he came back home Saturday night.

While he was away we had a blast!

First the kids well Rhett and Nikole went to school while Gavin and Dylan was home with me. I had talked to a friend of mine to see if it would be ok to bring Rhett up to the pool he is in charge of to work on getting his Aquanaut for scouts. He told me that it would be great if we came up so we did that as soon as they were out of school. We got up there about 1:50pm and then we worked on that until about 3:00 and during that time one of my friends called me and told me that she had a surprise for my kids and I needed to drive to 2 different address one in West Point and one in Payson and it had to be that day. Well ok so I decided I would do that even though I told my parents that we would be going to their ward Christmas party. when I was headed to the first address the kids were doing great in the car! well we arrived to pick up the first item and it turned out to be a dog crate! Oh my the kids were getting excited. Well we were in Layton when my dad called and told me that they ran out of food at the Christmas party. Oh well then I find out that my sister's kids are sick and they are staying at my parents house over night Friday, so I was grateful that we didn't go. Well then we stopped home to use the bathroom and head to Payson. We got down to Payson before 8 pm and found the house. The kids were great with all the driving that we had done that day! Well what I found out was that my friend got us a cute little yellow lab puppy. When I say puppy I mean puppy. She is really small, but I know she will grow, like the kids they grow too. the kids have named her Sara.



The kids are loving her and they are helping keep the house clean and helping potty train her and make sure he is getting so much love. Nikole's cat is unsure, but is getting out a little more than when we first brought her home. So we did all that Friday. What a day that was! Ok then Saturday we needed to run somethings up to my parents house and we did that and then we went out to the Angel Hands Foundation Christmas party where we were there most of the day. The kids met Santa and had pizza and drinks and then Santa being such a great guy gave all the kids a HUGE candy bar. Can we talk about sugar rush? lol Oh well. The kids rode rides, played golf, and then we went to a movie. We saw The Princess and the Frog, it is a cute movie and the kids of course loved it. :) When we got done with that it was about 5 pm and non of the kids had had a nap so even before we got close to the road home I had 2 of them asleep. When we got home the kids were all getting ready for bed except for the 2 that were asleep and then Jaren came home. Then around 10 pm everyone was so tired that we all just went to bed. That was our running weekend. LOL We got so much done while Jaren was gone that it just makes me laugh. The kids are so proud of themselves. I love the kids so very much they are such great kids!!!

Sunday, December 6, 2009

The week is over!

Yeah the week is over! I know most people would be so sad about that but for me I am way happy, I am not sure why at the moment but it will come to me I just know it. Oh yeah now I know!!! The stress of this week is over and a new week is going to start. Oh drat does that mean new stresses??? I sure hope not, I can only take so much! Well to start this last week off Dylan had a double ear infection and was just really clinging. The same day I was taking Dylan in to see the doctor which was I think Wednesday(I so can't remember since the Festival of Trees was this week) Gavin slept the whole day through Pre-K. I was lucky enough to be able to be taking Dylan in after I had picked up Gavin. Well we get there and Gavin throws up on the chair in the waiting room. Wasn't expecting that since he was acting healthy all morning while I saw him. So we were taken straight to a room since they didn't want anyone else getting what ever Gavin had. Turns out Gavin had a stomach bug that lasted all day and the next day it was Rhett's turn to have the stomach bug, but his didn't start until that night which would have been Thursday night. Rhett's lasted until Friday since he still wasn't eating much. Friday morning came and my throat hurt so bad I couldn't swallow! What the heck! Can't I get a break? I went to the doctor with all the boys since they were all home. Tested for strep, don't have the results yet but treating it like it is strep. The doctor thinks I might have caught it from Dylan's infection. Holy cow little boy cover you mouth when you cough and try to blow your nose instead of wiping it on mommy. LOL like I could get him to do that. Picked up Nikole as soon as I was finished at the doctor. Then we had to take a family trip to the school district to pay for pre-k and to talk with the person over special ed. Finally when we got him I was so happy since I couldn't even see straight. I asked Nikole to help Gavin make some food since I was getting close to blacking out. Not fun that is actually very scary! I feed Dylan some pears since I knew he would be able to eat them and not choke on them and I went to the couch since I was expecting Jaren at any time since he did tell me that he could come home early that day. Well 6 pm rolls around and he finally gets home. I was in and out of consciousness. As soon as he got home I took some meds then went to bed and prayed that he would take care of the kids. I didn't wake up until almost 10 pm then I tried to choke down some pears and more meds and went to bed for the night. Wow I haven't been that sick in a long time!! I am still recovering, my throat is still sore and it hurts to eat, drink, talk, swallow of any sort and yet I am up cleaning my house until I get dizzy enough that I might pass out that is when I lay down. But I figure if I don't do it who will? Let's just say that today and yesterday was like crap all rolled into one. Oh wait as I look at the clock and see that it isn't Saturday any more I guess to was Friday and Saturday if you need me to put it like that. I should really be sleeping but man what I wouldn't give in order to relax. When my house is in ruin it make it so my body and mind cannot rest so sleep does not come easy. I guess that is why I am still awake. May today be a much better day!

Wednesday, December 2, 2009

Festival of Trees

Wow! The tree is up and auction night is over. What a busy week! Our tree looks great!!! It was amazing to see all the people purchasing items in order to help kids get medical need that they cannot afford to get other wise. I will post pictures as soon as I find my camera I think it is in my car but I will have to go search in the morning.

Mr. Dylan helped out up the tree. He was in the play pen from 10 am until 4:30 and only one break but he really didn't scream or cry. All he did was play and eat some snacks. I am very grateful that he was such a good baby to do that, but man it would have been nice to have a babysitter. :) He did all that with a horrible ear infection. He has had the infection for a about 2 days. He has just been a momma's boy and hadn't even wanted daddy. I feel bad because he is in lots of pain and there is nothing I can do about it but what I am already doing. He keep waking up at night and I feel really bad because he is always tired and grumpy right now.

Gavin has been throwing fits and I am not sure what are triggering them. But within 30 minutes he is usually calm. Maybe it is because he is 4 and going through so much but maybe it is because he is picked on frequently by Nikole and Rhett. Gavin loves playing video games with daddy! It is like their bonding time. It is great to hear him retell the things that they did. :)

Nikole's hair is finally starting to grow out! How exciting and she is even excited for that. I know weird but heck I am all about it. She is coming home right away and doing homework then she knows she can play. It is getting hard when she can't play outside because the boys can't but I guess that is life. She love's animals and is so happy to play with almost any kind at any time. Even though she sometimes forgets to take care of Rosa and has to be reminded. We are trying to think of something that Jaren and Nikole can play together since Jaren dose scouts with Rhett and video games with Gavin he really need to be able to do something with Nikole too, but what?

Rhett got his own portable concentrator!!! It was just delivered today and it is the exact same as the older one so I hope it holds up, because if it breaks I will return it and get a different brand. They think this is that best one for him but I am liking the other one that they showed us the first time we went in. I guess it is only a matter of time to see if this one will last. Apparently Rhett likes signing, go figure. LOL!! As soon as I get him from school he starts signing and it is like hard work for him to talk. Am I the only one that gets this? Why am I the parent but am told that I know not very much about my child? Go figure! Stressed to the max for sure! Rhett is one of 29 students in his class and they won't even get a aid or nothing for him or the class, what is wrong with this picture?

Oh well such is the stories of our lives. I guess it makes that world go round. I am way excited there is some business meetings this week and I am grateful to get things together. I hope and pray that I am able to meet with people in my business this week and talk with them to see how it is that they can help me do better in my business. I think I will take it one day at a time. I will update as soon as I can with the pictures from the festival of trees.

Sunday, November 29, 2009

Side note

Ok just a little side note here for now. I am doing a tree for the Festival of Trees for a friend of mine. They lost their little boy in Oct. 2008 and it has been a hard road for them. Their little boy Kael was not quite 6 months old. He passed away from some medical complications. But as I have had more time to work on the tree the better I have felt. I have a beautiful picture that is going with the tree that his mother had picked out. Thank you! But I was framing it today and I just started crying, I didn't understand at the time. From doing so much with the tree and picture I understand! Kael's little spirit is close to me right now. The only thing that know is that he really is happy I am doing this for his family. He wants them to know how much he loves them. He is happy and doesn't hurt. It is like his spirit is talking to mine and there are times when it is strong enough to just make me break down for a little bit and then it is gone as fast as it came. It has been amazing! He is a very caring child and I hope my kids will all be caring like that. I think the reason that he is so close is that we are decorating the tree this coming Monday and the Festival starts Wednesday. I just sent a note to his parents asking them to do something that is going to be hard, but as I was writing I felt his little spirit so very strong, he really wants them to do what I have asked them to do. There was a time as I was writing them that I couldn't even see the screen because I was crying. The weird part is as I write this here nothing I am fine. I am blessed to heave his help while doing this for his family. They are a very blessed family and they are very loved. I am happy to know them and call them my friends.

Sunday, November 22, 2009

Just posted at VEPTR

I just posted this at the VEPTR site hoping that they might have some ideas, I would love to know what they would do if they were in my shoes.

Ok this really sucks that I have to write this all over again I thought I posted all the info somewhere and could copy and paste but no luck. Any ways...

Rhett went in for his normal expansion on 10-1-09 and he was sating 88 pre-op, which for him is really really bad. He needs to be above 95. So all the doctors checked him out and nothing was wrong with his lungs so they thought. everything sounded great so they did the surgery and everything went great, but he still couldn't get his sats up. I have to ask them for a x-ray because my mommy feelings were telling me something was very wrong and it took everything I had to get them to do a x-ray. The x-ray was great nothing was wrong, by this time I had also called his pediatrician and was trying to get him to understand that something was wrong. He kept telling me that it was his asthma, which I knew it wasn't because he had no signs of that at the time. The doctor at the hospital said that they were not going to keep him just because his sats were low, and sent us home with Rhett on oxygen on 10-2-09. So I had to take him in for another x-ray on that following Monday(10-5-09) at his doctors office. Where we found a little fluid around the left lung and they said as soon as that clears up then he will be fine. ha ha ha yea right! Any ways then I was wondering if that was the case then why was his sats low even before surgery? That doesn't make any sense to me. Well I monitored him really really close and by Wednesday 10-7-09 his sats were in the low 90's and he was breathing really hard so I turned up his oxygen to 1 1/2-2 liters and then he was sating at 98 but his breathing was still very labored. His heart rate was 130 and he was breathing so hard that his whole bed was moving. I couldn't take it any more and took him to the ER at 12:00 at night. They told me that they were not going to send us home until they discovered what was wrong. We were in the trauma bay for 6 hours. During that time he had another x-ray and it was the same as all the other ones there was really nothing but a little fluid around his left lung. We were finally sent to a room and then we had a pulmonary doctor come and see Rhett before 9 am and his normal doctor did too. Man we were tired! Well they wanted to get a PFT(pulmonary function test) done that day and they were going to notify cardiology that we were there since I was told that if I had to take him to the ER they would get notified and then the doctor could see him before December. Well nobody notified cardiology until I asked the nurse when they wanted to see Rhett. She called down to them and they found out that way that he was there. Friday 10-9-09 we got the results of the PFT and found out that they are the exact same from when he was 7 years old! What?!?!?! How can that be he is having his chest expanded to help his lungs grown for 6 years, so for 3 years was it even helping? His lungs have not grown for 3 years! He is permanently on oxygen again and hates it but is living with it. But how could this have been overlooked? So far his heart is not affected but it is only a matter of time if his lungs cannot support him. They also did a sleep study while we were there and found out that his oxygen isn't even helping he is on a by-pap but hates it and most of the times takes it off or doesn't even put it on. Consistent battle of the attitude!!! How do you get the doctors to understand that you know when things are not right? I was so pissed off at the orthopedic doctors for sending us home with out trying to find out what was wrong with my son.

We had a follow up and I laid it on the line and told them all that I knew and they even looked up his PFT and went silent and there was nothing they could say since it was cold hard facts screaming at them on paper. But still they want to do a CT before the next surgery which would be a CT in March and Surgery in April and I am going to demand a CT before the end of June so that way I know for sure if the surgeries are even helping. Why do them if they are not helping him? I would love some feedback at how you would feel and what you would do if you were me. Thanks

Saturday, November 21, 2009

Time flies

Well things have been going crazy. Between school, therapies, doctors visits, and colds or what ever has been going around. Jaren has been working so hard pulling cable for a business and it has been a very long process. But while I was in the hospital with Dylan he was filling our garage with cable that needs to go to recycling so when I got home there was a ton of it. I kept falling over it for more than a week and then I just couldn't put up with it any longer. I got Nikole to help me load it all in my car and I asked Jaren to get the rest that needed to go and so he did it was just one little box that he put in my car. But I took it and and got enough for Nikole's new coat and also new shoes for me since mine were broken. I am grateful that Jaren had gotten so much cable from work that I was able to recycle it with Nikole's help putting it in my car. I did tell the men at the recycling place that my 7 year old and myself were the ones to load it all in and he was shocked. I am glad that Jaren works so hard outside of the home for our family.

One of my neighbors moved and asked for help so I was 2 houses away so I ran over and was helping load boxes into their big truck and it was just me helping for a long time and then some others came. But the family that moved was going to give me a twin bed meaning the whole thing, sheets included because they didn't need it any more. So that day I was frantically taking down Rhett and Gavin's bunk bed and making room since I saw the bed and was like where am I going to put that. I hurry and did that and then Jaren got home and helped take it down the stairs and then he come over to my friends house to help them finish putting the rest of their stuff in the truck. So after that whole thing my mom has been helping me try to get my house under control and that I am very grateful for. She has come over and help me move things around in the kids bedrooms to the point that they are all really liking their beds more now then when they did. Thank you mom and dad you are the best!!

Rhett's breathing has been a frustration, because of the cold he caught he has been coughing and it has been causing his asthma to become more of a problem. The doctor thinks that it is Nikole's cat that is causing all the grief but I honestly don't think so. Because it is mostly coughing outside and I know that sometimes that air can be really bad so I am not sure. We have to go see and allergist coming up hopefully we can cram appointments in before the new year that way we won't have to pay anything yet. This last week was crazy we went and got Rhett's hearing aids back from the fix shop. They took molds of Dylan's ears while they were at it. Rhett is signing more and it makes me wonder if this next year will be a good time to put him back in USDB (Utah School for the Deaf and Blind). I am so not sure what is going to happen. I feel like I have been tossed in the frying pan and in order not to get burned you have to dance. I sometimes feel like I am slipping.

Nikole has still been coughing non-stop since October and there is nothing that I can do to help her stop. I feel horrible that I can't do it all.Recently she has been telling me that her tummy hurts every morning. I know that something is wrong since it just came on and that it isn't her norm. She has also told me that she doesn't like going to school because she doesn't have any friends to play with at recess. What can I do about that? I have talked to the teacher and the school councilor but to no avail she still tells me such things. she is doing great in her studies and comes home and does her homework right away. She use to come home and refuse to work and just play but now she has found out that as soon as her homework is finished she is able to play longer than before. I am very grateful that she has figured it all out. She lost her coat recently, and just yesterday I was able to get her a new one. I did have to tell her that she must not lose it.

Gavin has been doing better since we talked to his teacher. He knows now that he can talk to his teacher if there is something that is bothering him. Before he would just bottle it all up and look like he is going to explode and other times he would have a melt down. I am glad that he has a nice teacher that is willing and able to work with him. I know he does have a temper but he is normally a good boy and really like his friends. He is very protective of his friends and it is cute to watch him. He really enjoys playing with Dylan after school and there are times that they are actually playing quiet together and I think that there is a huge problem because they are quiet. But they do have their moments that Gavin won't share but then he decides better.

Dylan is just hanging out and is enjoying what he can. He loves the fact that he can walk and loves be able to get around. He is almost running!!! Way cute!!! He wants to be just like his brothers and loves following them around. There are many times that it turns into a not so good thing especially when they are tired of him following them. Hopefully we will be getting him some loaner hearing aid from PCMC soon. that should be fun to see how he reacts to them. He loves carrying around his water so that way when ever he is thirsty he can have a drink without waiting. He is suppose to have a CT scan coming up this next year to get lung volume and stuff but it is not on the calendar at the moment that is something I have to do.

Wednesday, November 11, 2009

Oh boy!

Well we went to see the orthopedic doctor and had to see what he had to say. It wasn't pretty and it wasn't ugly either.

He asked me what was going on and when I told him that his lungs haven't grown in 3 years he asked who said that and I let him know that the pulmonologist gave me that information. He asked if they said that and I said y es and asked me how come they said that and told him that the PFT(pulmonary function test) had the same numbers on it as it did when he was 7 years old. So he pulled up the results and looked them over. I did tell him that he had no signs of pulmonary hypertension but if things are they way they are going to be then it is only a matter of time before it comes back. He did agree with me and said that oxygen was a good thing. Rhett was not happy to hear that but he has always wanted to be off oxygen since he was placed on it. So he looked Rhett over and I had asked for so much information that he was soon rendered speechless. :) I am super good at that. Well after he did look over Rhett he determined that before the next surgery they want to get a CT scan and that way they can get the lung volume to see what is going on. So he has a CT scheduled in March and a surgery in April. I am going to ask the doctors to do a CT scan either in May or June to see if they the surgeries are working. Oh well just one day at a time.

This whole thing has been a roller coaster ride and I wish that I could make life easier for my family as we are riding the roller coaster. I felt really bad that I have no place to have the kids play. It isn't like Rhett and Dylan can go outside and actually play. Now that it is getting cold they are kinda stuck for the most part inside because they have a hard time regulating their body temperatures. It makes me feel like I am not a very good parent because I cannot give my children things that they could use as they go through a hard time in their live. I know that if I was able to have my business up and going more then it is now then it would be different. It is all in the Lord's hands, but I am going to do all that he asks me to do anyway.

Sunday, November 8, 2009

Getting over it.

Well after staying awake all night cleaning my kitchen and dining room and they are not completely clean. :( I wonder why it is me doing all the cleaning? I have to do it because I feel like if I don't it won't get done. I am having so much over my house being messy it is already interfering with my sleep and life. I feel like I can't let the kids play because my house is a mess. I also feel like no one from the state should come over to work with Dylan, but they do anyways. From the nasty bugs that are starting to increase in my house I pray that the state will not take my kids from me. To top it all off I have been stressing about money because I have not had the time to work on my business as much as I want, and then I find out that my husband is making over $2000 less than what I thought! Oh man!! How are we ever going to make sure our kids get the things that they need. I love my family so much and I think going through all this is so hard on me that my mask is glued to my face. If you didn't know me I could so make it look like everything is fine in life and you wouldn't even know that anything was wrong. How frustrating is that?


I feel bad that Rhett's oxygen catches on all the wall and stuff left everywhere. He gets so frustrated pulling on his oxygen cord, but then there is no place to put anything and when I put it away it usually falls out of place etc... It is hard he really wants to come off the oxygen and even asked me when he could come off of it and I had to tall him that his lungs have not grown in 3 years so I am not sure if he will ever come off the oxygen. He has decided that he doesn't like wearing his by-pap and is sleeping on the floor because climbing to his bed is too much for him. So at least he still has his oxygen on but if it doesn't help him any then pray tell why is he wearing it anyway? all he wants to do lately is play video games, I know what you are thinking so do all 10 year old boys. :) Oh well nothing I can do about that. I have thought about taking him out of school to help prevent getting the swine flu but I am not sure I would want to fight with him all day about video games. We will be seeing the orthopedic surgeon on Tuesday and maybe the test will soon start and if they don't I will have more answers than I do now. Can't wait to see them and give them a piece of my mind because I am not happy that they sent him home without finding out what was wrong after surgery. I hope he knows that I love him I tell him several times a day.


Nikole is doing great! Even though she cut her hair(at least her school pictures were taken before that) and you can so tell that she did, she is enjoying drawing and coloring and playing and reading. I am not sure what she doesn't enjoy. She is a sweet child and I wish that I could give her a sister since that is what she really wants. I feel like I really need to get Nikole into swimming since she really love that, a child after my own heart! If I could have the pool that I could swim in and teach the kids in that would be awesome but that pool cost over $20000! I know whoa that is a lot of money and that is even more when you have to use all the money you have to pay medical bills. But Nikole does need some sports and club and groups of people in her life right now but we can't at the moment. I am not sure what to do to help her get her feelings out and not bottle them up. I fear they are hurting her having them bottled up inside of her. I hope she knows that I love her I tell her several times a day.


Gavin is learning so much! Like Nikole he is acting out in need of friends and support that he could only get from being able to do things. I would love to put him on a football team or/and a soccer team. He needs more male interaction and maybe he would stop doing somethings that make me nervous. I wish he could express his feelings more openly, but it did take Nikole some counseling in order to open up for me and let me in a little, just not enough. Maybe Gavin needs some counseling too. He is so smart!! I just wish I could help him more then I can at the moment. I honestly feel bad for him because Rhett and Nikole like to pick on him frequently and there is nothing that I haven't tried to help solve that problem. Hope he knows that I love him, I tell him several times a day.


Dylan is so cute and he knows it! LOL! He is walking around like a crazy little man. It is just so dang cute because he is like only 2 feet tall and walking. He doesn't have any real language but I have been trying to sign with him and get him to sign back. He is just not doing it. :( He has got some great expressions but you can never know what he wants unless he throws a fit of cries or something like that. I hope he is starting to understand what I am telling him. I sign and speak at the same time. I am grateful for a great doctor and that he is drinking again and maybe he will put some weight back on since fully clothed he only weighted 19 lbs. 7 oz. I know not that much, but maybe we can get him back to at least 20 lbs. :) I am happy that he is feeling better and eating again. He had me really worried, but I guess the Lord wants him with our family a little longer, which I am truly grateful for. He is getting many different people out to our house for therapy every month. I know that when he is 3 he will be going to preschool at USDB and that will be exciting. I have been thinking of sending Rhett back so that he can pick up signing again so that way Dylan has someone to talk to other than me.

We will see how everything turns out since I only can go one day at a time. My family means the world to me! I have no idea where I would be with out my family and friends and all the support that I get from people. Living life the way I have to can be very hard but because of the support it is possible. My family is amazing!!

Friday, November 6, 2009

Lovely!

So I am happy to report that Dylan doesn't need IV fluid! I know I was very happy to hear I didn't need to take him to the ER. Oh the down side is he is very clingy. I try to get stuff done but I feel like I can't get on top of anything. I am so very stressed and that is not easy to do. But the weird part is I am stressed because my house is the way that it is. IT is hard for me to keep pulling late nights then having to get up early and stuff. I was really glad that Jaren got all the kids up and going this week because i am still trying to recover from no sleep in the hospital, but my body can't seem to relax because my house is a mess. :( Bummer! No wonder that I am crashing meaning falling asleep in the middle of something. I am not getting the rest that I need. I have no way of changing that until my house gets clean and organized because I just can't handle it. Wish me luck since my goal is to go to bed before 4 am. :) Guess I better get started.

Tuesday, November 3, 2009

Finally Home!

Dylan has made it out of the hospital and we are home. They discharged him today around 4 pm. We got home and was able to enjoy the family being together before they all went to bed. When I can think straight I will post photos of all the kids playing like the good kids they are.

On the home front

Watching brother and sister at the Halloween parade was my cute Darth Vader and his friend.

My sweet Pippi Longstocking at the Halloween parade.

The Halloween parade my little Yoda.


Well since I have been at the hospital trying to get Dylan better so he can come home, my other children have been in care of others. I can honestly say that I have no clue other than parents and friends and spouse, but I could totally be wrong too.

Since I haven't been there it has been giving me stress to the point of crying at nights because I miss all my other children too and it makes me nervous having them go from place to place. I hope life isn't too unstable for my little ones right now.

We missed SEPs and will make them up as soon as we get Dylan home for the hospital. As far as I know Rhett is doing well, but has been slightly slacking in school work. Nikole is doing awesome and going into a 3rd grade ELP class called Discovery for a little while. Gavin I hope is doing well and isn't getting into too much trouble at school.

I was sad that I missed the Halloween Parade at school and I know that Nikole was really sad that I missed it also. But she was really sad that Dylan had missed it too. She misses us dearly and she has cried on the phone to me more than once wishing that Dylan and I can come home right NOW. Well since that cannot be it make me feel stressed that Dylan isn't doing as well as I know he can do. But I did have someone come give him a blessing on Sunday when they brought around that sacrament and I know that everything is in the Lord's hands it just isn't what we would like at the moment.

Jaren brought the kids to have dinner with me in the cafeteria on Sunday and it was so great to see the kids that I have not seen for 5 days. Then I noticed that Nikole had cut her hair right in front and it was not good. Well she told me that she cut it because she was out of her mind and just had to cut it. I told her that she is not allowed to use scissors because she cuts things that are not hers to cut and she cuts things without asking first. Thankfully my mom was getting her hair done Monday after school and was able to take her and have Melanie try to make it not so obvious that she had cut her hair.

Honestly I have no clue what I would do without my parents. They have been a huge support and I know that they love me and my family immeasurably. I hope that they know how much they mean to me. They have been a blessing from the start and there is no way that I could ever repay them for all that they have done for me. I love you mom and dad!!

Update on the Hospital stay

My fuzzy Panda Bear in the PICU. Wishes he could be home.

Well Dylan was worked off the By-pap by the end of Wednesday night and then as soon as he was off he spiked a fever. Oh man what I thought was bad was just getting worse. They did all sorts of tests and found out that he had Influenza Type A, which I was told was just a flu but in most cases the secondary test usually say that it is H1N1. Well his test results finally came back and he did in fact have H1N1. :( My little baby was frying up just like his sister did almost 2 week before. We couldn't give him anything except Tylenol, because of the surgery he had. So we were giving him Lora-tab and Tylenol every so often but even all that his fever still raged on. This whole time we had been in the ICU and we had to be isolated and everything. It was so not fun. They keep a close eye on his left lung and so they had taken a few x-rays to make sure his lungs were getting better. Come to find out that he had pneumonia also. Can things possibly get any worse? well we were finally moved out of ICU on Saturday October 31st to the floor. :) Yeah that means we are a few steps closer to going home. So now he is not drinking so his output is really bad. They had to finally stick in with a IV after a few days without one since his IV's go bad so easy. The only place that they could find was in his head, because he is so hard to place an IV in. Well after 12 oz. of fluid on top of what he has been drinking his output is still really really really bad and his IV won't flush so I am not sure what they are going to do but I do know that if he doesn't drink we can't go home. He has got to keep himself hydrated in order to stay out if the hospital, but I am not sure if he know that. He finally had a little over 8 oz. by mouth which is great! That is a whole heck of a lot better then he was doing. I am glad that he didn't throw up yesterday since he has been doing that lately. I just hope that we can go home before too long I miss my other children also and I know that they miss us too.

This was Wednesday evening. He had just came off of the by-pap and this was right before the fever.

Wednesday, October 28, 2009

Long Month

Holy Cow can we say hospital? I feel like this month I have been up here so very much that it isn't funny. right now I am sitting here typing this in PICU at PCMC. Dylan had a really bad night after surgery. He was so close to being intubated because he was refusing to breathe deep enough to get all the oxygen he needs. Then we found out that his left lung collapsed so he just couldn't breathe deep enough no matter how he tried. We are working him off the bi-pap machine that he had to be on all night. I feel so bad because he is tied to the bed so he doesn't rip it off. What a night, he would still wake up at night screaming and all I could do was pray that his sats were not dropping more. What was meant for an over night hospital stay as just a precaution has now been extended. I hope we can leave tomorrow but there is a chance that we wont.

My little kid has got a great talent that he will gladly share with anyone who wants to learn how to sleep through anything sitting up. :)




You might be able to see it or you might not. He does sleep with one eye opened and one eye closed, due to an earlier surgery. See his closed eye?
















Here is my favorite one that looks so funny. :)



I love my talented little kid! I love all my kids they are wonderful!!!

Monday, October 26, 2009

Some pictures!

Nikole is such a big girl going into 2nd grade! She is a sweet little girl and this is such a great picture of her.



Rhett's first day of school! Can't believe he is old enough to be in 5th grade.




I couldn't make up my mind, these are from Gavin's first day of Pre-K. He loves that color green.





Dylan started walking in September!

No news good news?

So is that saying "no news is good news." actually a good saying? I doubt it! I want information and I want it now! I did finally get a hold of the genetic department and let our genetic counselor know what we have found out. I have yet to actually hear from the doctor himself but heck at least I got a hold of someone. We had another PFT with Rhett and found out that the test results were worse then they were 2 weeks ago. I have tried to get Dylan in for a sleep study and to no avail they have no openings before he goes in for surgery. He is actually going in for surgery in Tuesday the 27th so that is tomorrow. Wow! Time flies when life isn't any fun! Rhett had a sleep study while he was at the hospital and we got the results on Wednesday the 21st. We found out that Rhett really needs to wear a bi-pap to bed because his sleep apnea is so bad that even the oxygen doesn't help him at night. We are getting that machine today! Oh heavens I was going to write tomorrow. I guess that is what I get when I have to update in the middle of the night. I have to try to make it to parent teacher conferences this week too! Oh heavens this is going to be a long week!

My friends and family are such a great support to me while I go through some hard times. It is good to have them here for me. Especially going through such times as these, when life is in the air and it is very emotional.

Friday, October 23, 2009

What is going on

Ok so there have been some drastic changes that are going on here. Rhett health has not been this bad in a long time and now he is needing more medical equipment and time. Because of his breathing problems the doctors are clueless and can't give me the answers that I really need. I posted this info on FB and all of a sudden I was getting help from my friends online. We are all getting ready for Halloween, look and see.

What a month, so glad it is almost over.

Thursday, October 15, 2009

Latest and greatest

Well we have had a many new development that has come up in our lives. Last week I had to take Rhett to the ER, he ended up being admitted. We got to our room from the ER at 6 am on Thursday morning. How exhausting! That day they did a PFT(Pulmonary Function Test) and that came back to us 2 days later with not a good reading. We found out from the PFT is that his lungs have not grown in 3 years. So we needed to find out about his heart. the Next day Cardiology came to see us and then gave him an ECHO to see about his heart. They found out that his heart looks great and is doing a good job doing what it does. So we are still waiting for doctors to call us so we can take Rhett in and get it over with. I will have to keep you posted.

Friday, October 2, 2009

Stress can do that

So we had a a horrible thing happen to our family. One of our tenants moved and didn't let us know or anything. I was really really mad! It took 3 1/2 weeks to get it ready and rented. I couldn't believe the mess they left. My heart broke! It was such a stressful time since my house was placed on the back burner and it has taken me forever to try to get it cleaned up, which it still isn't... Oh well at least we found some one that takes renting seriously and will be able to make the payments and not move out on us.

About 2 weeks after all this happening we went with LPA to Ruby Tuesday and had dinner with them. Ok well we tried to have dinner with them. As soon as our dinner was brought to us, Dylan grabbed a piece of shrimp off my plate and started chomping on it. Well he get it in his mouth in a few pieces, and i was watching him closely. He then started trying to throw it up so I raced him to the bathroom trying to get there before he threw it up. Well he ended up screaming and not getting it out. So I thought he must have swallowed it. Was I WRONG! Next thing I know I take him back out of the bathroom and he started to turn blue. I mean blue from head to toe. He almost lost consciousness, he was so close and it took everything we had to keep him slightly awake. He was limp like a rag doll. I told Jaren that he was choking and he told someone to call 911 so we had a few people jump up to help try to get the piece that was stuck out. Well we were pounding on his back trying to get it out without doing physical harm to him. It was so very scary! Finally we dislodged it and walked outside with him waiting for the ambulance to get there because it was still stuck in his little throat. After they arrived he finally was his normal color and was trying to get it out by throwing up again and he got it out!! yeah for him I was so relieved!! Then he was so exhausted that he just passed out. Because of the way he is we did ask to be taken to PCMC and so Dylan and I went for a ride in the ambulance from Draper to PCMC. Jaren stayed at the restaurant with the kids, but basically packed up everything and left with the kids but left the diaper bag. :) At least we were able to retrieve that the next day. We got to the hospital and the monitored him and everything and he just laid there for the longest time until grandma came and then he wanted to play. They took a chest x-ray to make sure his lungs were clear. Well they didn't look as good as they sounded so they wanted to keep him but I told them that I could monitor him at home as well as they could at the hospital. We were able to go home but I did have antibiotics to give him and had to follow up with his doctor on Monday. He is doing ok, but I have made an appointment with the ENT and trying to get in to see how his airway is doing.

Stress can do that to you!

If you have questions please feel free to ask me.

Thursday, October 1, 2009

Forever ago

Holy heck!!! It has been forever since I wrote anything. :) I should update this more often. I think I will work on that so that way it won't be old news to everyone that even reads this. So now school has started and I am super busy with 3 kids in school and doing business while the kids are not home, well with 1 kid at home.

Let's see where to start? Oh I know... Nikole is in 2nd grade and loving it. Well kind of, she has been having a hard time with friends, but we are all helping her and it is getting better. she is so smart and she is loving looking pretty and helping me around the house and with Dylan. She is such a sweet girl and I am so blessed to have her.

Gavin is in Pre-k and is giving the teachers a run for their money. He is the only one running around in class and getting into tantrums in class. What is up with that? We had a little chat and I informed him that he had better change his attitude or things might just get really bad for him. He is telling me all the time that he is changing his attitude so that way he is happy and good at school. :) What a good boy, but I wonder if he is just saying that or if he really wants to do it.

Rhett is in 5th grade and is enjoying his class. He is so smart! He got all 4s on his CRT this last spring and the teacher made him a deal last year that if he got all 4s he would take him and a friend to lunch where ever he wanted to go. I am so proud that he did his best! He is a great brother to his siblings that are in school and like to help watch out for them since he is older then them. He is struggling doing homework on time so the school is helping promote doing homework on time and complete so that way he can make a habit of doing that.

Dylan started walking last month and is enjoying the freedom that it has brought to him. He is still very wobbly but making progress. The PT wants to work on helping him do stairs this next time which means that I guess I had better get my house clean. :) He is just loving life at 20 months old and it is loving him back. the kids are all very good to help with him and be such great brothers and sister to him. He is learning lots like how to take toys and sometimes how to share. Also to hit if someone takes what you have without giving it to them. The kids are such great teachers. :)

Monday, August 10, 2009

More summer

Wow what a busy few months! Here are some more pictures!



Me and Gavin the grumpy because he wasn't getting his way at the parade. LOL He had fun no the less.



Our crew for the parade! We had a blast sorry you couldn't make it. :)



So Dylan loves sandles even if they don't fit if you take them away from him he throws a fit. LOL these shoes are Gavins.



See he loves shoes! So now he can chill and watch the parade! he he he Don't they fit lovely?



I love how every year these guys get a standing ovation! We love what the military does for our families and our country!!







The end of the parade and we are headed out. Like how we transport? LOL

Lake Photos

Here are some pictures of our summer so far. Here is our trip to the lake! :)




Rhett walking into the lake! :)



Dylan loving the MUD!! So happy that I am not getting after him for getting dirty. LOL



Gavin on the boat getting ready to watch Nikole tube. :)



Nikole tubing with cousins!! Loving it said she will go again next year!!

Been a while



Ok so it has been a while since I was last on here. There has been crazy times here. the kids are going to start school soon thank heavens. They are taking the long summer out on each other. LOL They are usually pretty good but heck when they have had enough of each other look out. We have been to the Angel's Hand Foundation motorcycle firefighter ride in June then in July we had a ton to do, we went to 2 different family reunions that were the same week. Man my kids mostly Dylan was so tired of being in the car. But the great news was that Emily and her boys came out for 3 weeks!! We were so excited to be able to play!! They got sick the end of their stay but they are all better now and home safe and sound with Tom who couldn't come and play. We also went boating with my aunt, uncle, and cousins while Emily was here visiting. The kids had a blast and Nikole actually went tubing!! I know I couldn't believe it The boys didn't but maybe next year. :) There was also the parade and firework with the days of 47'. The kids always love that day! I found out at the day on the lake Dylan is so not scared of the water and wanted to go deeper and deeper and swim more and more. The little puddle that they had for him just wasn't good enough. He would just scoot his way to the lake and then splash like crazy laughing and loving the water. Yep he is surely my kid!! :)

The best is yet to come! :) Hope that I will be able to get on more and do more posting now that summer is almost over! Can't wait for the autumn weather!!

Tuesday, May 5, 2009



This has got to one of my favorites!! Tubeless!!



Our 10th anniversary!! Yeah!

Update

Well it has been a while and it has just been crazy. so I figured that I would be able to update what is going on and what has gone on.

Well after The beginning of March after I got my computer I went on a business trip with Dylan and he ended up aspirating something on the trip so that wasn't very fun. We were taken in by a family that lives out there and I am ever so grateful for their hospitality. When we got back Dylan had therapy like crazy and got sick too. Then there was pictures that we volunteer for at the school. Plus I was working on my business at the same time as all of this.

The end of March Dylan got the intestinal flu and lost a whole pound in one night. I couldn't believe it! He went from 15 lbs. 9 oz. on Friday to 14 lbs. 11 oz. on Monday morning. It took him almost 2 weeks for him to eat enough to sustain himself. After a week of him being sick Gavin ended up as sick as Dylan was but of course he didn't lose the huge amount of weight that Dylan did. He was also not as sick for as long as Dylan was. That week Rhett had to go in for surgery and I was praying that he wouldn't get sick because i didn't need them postponing his surgery any. So Rhett had a rib expansion and replacement and went home in 5 days. Then it was spring break. Well trying to work on top of this was so hard that I had to just wipe my brain since I had been so worried and then all of a sudden I could breath again. Rhett went back to school in less than 2 weeks after surgery.

After that we have been to doctors offices and I also registered Gavin in Pre-k!!! I am so excited and I know he is too. He can not hardly wait!! Now that we are in May we have a ton of stuff happening and I still have not had some breathing time to work on my business, but tomorrow I will totally have time. It is going to be awesome!! I hope to be able to keep up to speed on this more so than I was.

Wednesday, March 4, 2009

Yea!!! Happy Days!!!

I have it!! I finally got a computer!! I know it has been forever but I am so happy that I can finally be online now without the drama of not having a computer!!!

My husband decided to get me a computer with the taxes. I am ever so grateful!! Try living without a computer for a year!! It sucks take my word for it.

Update on the kids!

Rhett is doing well!! He is going into surgery on the 9th of April and will be in the hospital for a while since it is major surgery. He is trying very hard to get his pinewood derby car ready for the race on the 20th of March. He really wants to have a shark on fire. When I get some pictures I will have to post some. Other then that he is doing well.

Nikole is very happy since she got a cat for her birthday in January. She is enjoying the cat so much that she is forgetting that she still has homework and chores around the house. Then she turns into a drama queen when I have to remind her. She is too smart for her own good and she is loving life. She is my into trouble child, it doesn't matter if she is home or at school she is almost always in trouble. I wonder why that is!! I pray that it will get better.

Gavin is one of the sweetest kids while my older children are at school! When they get home it is like having the WWF in my house. He can totally hold his own and then some. He loves being the big brother!! It is great he has just learned how to put on his socks and shoes all by himself but it takes a lot of reverse psychology to get him to do it though. For now that really works for him. I ask him if he is a baby and needs help like a baby and he does amazing things to prove that he is a big boy!! It is great!!

Dylan is scooting all over the place!! He is so funny!! I will have to get a video of him one day to show you what I mean. He scoots on his head and butt. He truly cracks me up!! He loves to eat and can pack it in!! He has finally doubled his birth weight!! Yeah, he made it to 15 lbs!!! He is getting closer to moving into size 2 diapers but not because he has out grown them but because he is peeing too much!! I know crazy!! He has got to be the most spoiled child I know just because his siblings are all trying to take care of him all the time. I am always telling Nikole not to carry him and pick him up especially over her head! She really scares me sometimes.

Other than that we are all doing well. Just working on making it all work out.
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Kids

Kids
Lilypie - Personal pictureLilypie Kids Birthday tickers
Lilypie - Personal pictureLilypie Kids Birthday tickers
Lilypie - Personal pictureLilypie Kids Birthday tickers
Lilypie - Personal pictureLilypie Kids Birthday tickers